Changes after Transplant

Posted by 2011panc @2011panc, Nov 22, 2016

I have learned that following a transplant there are many changes beyond your physical situation. What is your experience? Has your mood changed? Are you happier, calmer, more agitated, more anxious, more relaxed or something else? Do you feel you have changed emotionally, spiritually or mentally? Do you feel that your personality has changed? I am curious about more than physical. I appreciate your input on this issue.

@jodeej

Hi All! I thought this was a fascinating article. I know of a couple of people that have noticed some changes in food and music preferences after a transplant. Have any of you noticed anything?
https://www.medicaldaily.com/can-organ-transplant-change-recipients-personality-cell-memory-theory-affirms-yes-247498

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There is know doubt we are affected by the coded language of cells in our bodies. Case in point: when that foreign cell invader of our bodies takes root then forms to a fetus and so on, every single cell in our body adapts and changes in the name of procreation. The coded DNA of multiple cells combines to become one cell that eventually matures to a human with recognizable personality & physical traits of the coded DNA cells that originally formed the fetus.
When considering this simplified bigger picture it makes perfect sense that we would take on some characteristics of foreign matter.

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@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

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Thank you

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@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

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@kellysmith1215 OMG words defy how moved I am about your story. I lost my 1st born & the rebound seemed out of reach. As a survivor of being a throwaway youth I'm incredibly bonded with my sister whom I later recieved custody of…I think I would feel like dyeing if something as serious as organ failure happened to her. As a matter of fact one of my negative emotions (which is on the normal list of donor emotions) is "What if she needs a kidney after I've given mine away." You're story is a perfect example of why I want to give the gift of life. Thanks for sharing. @rosemarya I just found something (a question) I feel like I should keep as my own yet I wonder if someone could benefit because they have the same question, ugh.

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@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

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@contentandwell Unfortunately that is far more common than any of us can imagine. We are in a very real sense at the mercy of the medical institution and it's myriads of interlocking businesses (insurance companies, medical practices, scientific trials, the politics, ect…). It is a fact that what applies for one is totally inapplicable for another because as we've seen repeatedly in these discussions "one size does not fit everyone". Thank you for sharing your experience

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@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

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@beckyjohnson, There is a Private Message option on Mayo Connect. Do you see the envelope icon on top right of page? You are welcome to send me a PM anytime:-) I will be able to give you some thoughts about posting it.
I am working on a last minute sewing project and I am enjoying reading these posts.
Rosemary

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@rosemarya

Before my transplant, I used to devour historical fiction. But now, I cannot tolerate anything fictional, including reading, TV, and movies. Has anybody else experienced this?
Rosemary

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@linmarie My goodness you have a lot on your plate. On a positive note I've heard it said "Pain builds character & What doesn't kill you makes you stronger". Although I have to admit whenever I've been a victim of hardship I've found it hard to believe one day I will be a survivor which is the accumulation of strife & overcoming it. Thank you for sharing.

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@vacamrc

Hi my name is Marco I had heart transplant July 2013,coming up on four years, it has change me in many wise as calmer, I like at life different than others, I live life to fullest each day, I view things different than others, am much more quieter easy going and I have a lot patience now with every thing I do, I had hard time at first because I came from being in icu for three weeks and two of those weeks on a vent, plus I went to the heaven gates, I had learn how walk again and learn how to hold things again, and had to learn how use the restroom and shower again, but it was tough for me, but now am new man and a lot more caring in life.

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@vacamrc You are indeed a tremendous example of resilience. Thank you for sharing – it is inspirational

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@contentandwell

Over the years I had already gotten more outgoing and friendly but since transplant in September, 2016, I really open up to people and am not shy with them at all.
I also find myself really working to get in shape, which I had been trying to before but not with my current effort. I feel my problems stemmed from my weight and being out of shape (NASH) so now I am really working at eating better and exercising, I have lost at least 40 pounds. Speaking of which, if anyone needs to lose weight I highly recommend myfitnesspal. I don’t think I could have done it without that tool to keep my accountable. I also use a fitness tracker to make sure I am getting a decent amount of exercise.
I feel grateful every day for this gift I have been given and I believe it has made me a more gracious person. I don’t see any real personality changes in liking things or disliking things different from before but I am a more committed person, and odd as this might sound I think I am a nicer person.

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@contentandwell I say this carefully & with good intentions (Yes I've heard the highway to hell is paved with good intentions) but it is no wonder you think (I might add know) you are a nicer person. My children's dad died when they were still in primary school. They were often affected by this & it showed at times in the way they treated others. I countered this with the cliche "Kill them with kindness" because I know how difficult it can be to (let's use the word attack) attack someone who is being so nice to you. The catch here is that it is also challenging to be nice to someone who is being mean to you. Therefore the lesson by proxy is the fact that you were shown the ultimate kindness so it is bound to rub off on you a little bit at the very least.

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@bexhall

There are two odd changes I’ve experienced. One, I abhor seafood of any kind and pre-transplant I was a fan. Second, I am no longer afraid of spiders. I didn’t have a conscious thought about it; nothing bubbled up and announced the revelation. I was at an outdoor gathering and there were two writing spiders in their web at the end of the porch and I just reached out and touched it without thinking about it. No fear whatsoever. It was surreal. I don’t *like* them, but the squeamishness I used to have is gone. I don’t react the same. The seafood thing was a physical reaction. My husband asked me to Red Lobster for a meal and I thought I would puke just thinking about it. Haven’t had seafood or fish since Oct. 2014. Which was when I received a new liver. There are some other odd changes like my taste in music, an obsession with color, creative expression wakened. Some I’m sure can be explained because of meds or age appropriateness or having a second chance at life. Whatever the reasons, I’m happy for the changes and my life has never been better!

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@bexhall I'm a believer in cell memory simply because our body knows how to deal with anything it is already experienced as compared to something new we are going through. This is evidenced by our antibodies, practice makes perfect, adaptation, evolution, personality & physical traits passed down through our DNA. Of course some things are not so easily explainable which explains why science is always changing what was, expanding what is & theorizing what we cannot confirm.

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How appalling to hear that Medicare literally cuts off transplant recipients antirejection medicine after 36 months (3 yrs.) Is this the same as immunosuppressive medicine? What is one to do when they are not financially capable of handling the monthly expense of staying alive? Is that the expected time range for ones body to fully accept the transplanted organ? I must pose this matter in the discussion thread Transplant-Kidney- Journey From the Donors Side.

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@contentandwell

Over the years I had already gotten more outgoing and friendly but since transplant in September, 2016, I really open up to people and am not shy with them at all.
I also find myself really working to get in shape, which I had been trying to before but not with my current effort. I feel my problems stemmed from my weight and being out of shape (NASH) so now I am really working at eating better and exercising, I have lost at least 40 pounds. Speaking of which, if anyone needs to lose weight I highly recommend myfitnesspal. I don’t think I could have done it without that tool to keep my accountable. I also use a fitness tracker to make sure I am getting a decent amount of exercise.
I feel grateful every day for this gift I have been given and I believe it has made me a more gracious person. I don’t see any real personality changes in liking things or disliking things different from before but I am a more committed person, and odd as this might sound I think I am a nicer person.

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@beckyjohnson I am behind on this site so I just read your post. Thank you for the compliment. I do try, I know sometimes when I am tired I slip though.
JK

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@beckyjohnson I am still wondering if when Medicare B stops paying at three years, if Medicare D starts paying, albeit a less amount. I hope so.
I know that when they go through everything to qualify you for a transplant, one of the considerations is financial. I have heard if they feel you cannot pay for the immunosuppressants that you are not accepted as a transplant candidate! I find that appalling in this country that finances can be a death sentence for some people.
JK

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@wkary

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

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@rosemarya Aww yes I do… right next to the annoying sideways – beautiful double rainbow pic that I personally took. I hadn't really given personal messages any thought. Thank you for the pm offer. That is really sweet & I do appreciate it.

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@contentandwell

Over the years I had already gotten more outgoing and friendly but since transplant in September, 2016, I really open up to people and am not shy with them at all.
I also find myself really working to get in shape, which I had been trying to before but not with my current effort. I feel my problems stemmed from my weight and being out of shape (NASH) so now I am really working at eating better and exercising, I have lost at least 40 pounds. Speaking of which, if anyone needs to lose weight I highly recommend myfitnesspal. I don’t think I could have done it without that tool to keep my accountable. I also use a fitness tracker to make sure I am getting a decent amount of exercise.
I feel grateful every day for this gift I have been given and I believe it has made me a more gracious person. I don’t see any real personality changes in liking things or disliking things different from before but I am a more committed person, and odd as this might sound I think I am a nicer person.

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@contentandwell Thank you. I was a bit worried that my choice of words might be taken the wrong way. You're welcome & thank you for seeing them as the compliment that they are.

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@contentandwell Hopefully the following link will give you some answers. It turns out there are some circumstances in which coverage may be extended. Not to sound calloused because I do agree that finances should not be a death sentence I am agreeable to such screenings because someone either loses their life and/or voluntarily gives up an organ/s to improve the quality of multiple (recipient & loved ones) lives. These screenings cannot guarantee success but I'm convinced they significantly raise the odds. https://www.ncbi.nlm.nih.gov/books/NBK225251/

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