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Central retinal artery occlusion

Posted by @IndianaScott, Nov 30, 2017

Good day all! Yesterday I lost 100%% of the sight in my right eye. After a day of testing, etc. I was diagnosed with central retinal artery occlusion. Simply put they say I had a stroke in my right eye. The ophthalmologist said “99% the loss is permanent”. Seeing a retinal specialist next week.

I am curious if anyone here has this condition and if your loss was indeed permanent.

Thanks for any input!

Strength, courage, and peace to all.

REPLY

Hi Scott, I’m sorry to hear this. Did you wake up and it was just gone? Can you recall feeling any symptoms before it happened?

@bonitav, @rosemarya and @cherriann– you have all discussed some kind of occlusion on a thread here — https://connect.mayoclinic.org/discussion/after-a-slow-degradation-of-my-vision-especially-close-as-in-computer/?pg=2#comment-29352. I hope you all will be willing to share your experience and symptoms with Scott.

If you wouldn’t mind- Keep us updated with what you find out from the retinal specialist and most of all…. strength, courage and peace to you!!!

@IndianaScott, Hi Scott. I have a Branch Retinal Vein Occlusion (BRVO) It was described to me as a eye stroke, also. In my case a vein leaks and causes a puddle of blood that cannot exit the eye, along with the resulting inflammation. I see through a ‘donut hole’ in my right eye. I get injections of Lucentis to ‘mop’ up the leakage and to reduce the inflammation. I am told that the nerve damage is permanent.

Scott, I don’t know whether there is an urgency or if the damage has already been done, but I wonder if you might ask about being seen by the retina specialist today instead of next week. I think you should make a phone call to the retina office and inquire about that.

Let me know what you find out.
I am willing to share if there is anything you want to ask me.
Rosemary

@jamienolson

Hi Scott, I’m sorry to hear this. Did you wake up and it was just gone? Can you recall feeling any symptoms before it happened?

@bonitav, @rosemarya and @cherriann– you have all discussed some kind of occlusion on a thread here — https://connect.mayoclinic.org/discussion/after-a-slow-degradation-of-my-vision-especially-close-as-in-computer/?pg=2#comment-29352. I hope you all will be willing to share your experience and symptoms with Scott.

If you wouldn’t mind- Keep us updated with what you find out from the retinal specialist and most of all…. strength, courage and peace to you!!!

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Thanks, @jamienolson It came out of nowhere and with no warning signs. I will check out the thread and appreciate the direction to it!

@rosemarya

@IndianaScott, Hi Scott. I have a Branch Retinal Vein Occlusion (BRVO) It was described to me as a eye stroke, also. In my case a vein leaks and causes a puddle of blood that cannot exit the eye, along with the resulting inflammation. I see through a ‘donut hole’ in my right eye. I get injections of Lucentis to ‘mop’ up the leakage and to reduce the inflammation. I am told that the nerve damage is permanent.

Scott, I don’t know whether there is an urgency or if the damage has already been done, but I wonder if you might ask about being seen by the retina specialist today instead of next week. I think you should make a phone call to the retina office and inquire about that.

Let me know what you find out.
I am willing to share if there is anything you want to ask me.
Rosemary

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Hi @rosemarya I appreciate your input and information! I was told there is no bleeding in the eye, but I will call my retinal specialist again and raise the issue. The ophthalmologist said the damage is already done, and this coming week is as fast as the specialist can see me, but he knows the score and has me on the ‘if anyone cancels shoehorn me in’ list! Getting some other testing done before that so we shall see if there is more to the story on Monday. As we all know, the waiting part is often amongst the tougher assignments we get in our medical journeys!

Thanks for your info and as new questions emerge I will ask here for sure!

Peace, strength, and courage!

Hello, Scott. I don’t have any exact information at this time except for what I know from a routine eye check appointment two weeks ago. I do not have the situation; my husband does. He told me several weeks before that his eye felt as if it was swollen. I looked but nothing was different on the outside. When we went for our checks, he could see only blurs with his left eye. The dr. ran some tests and came in and showed us the photos of his eye—- the blood pooling, the swelling, like a wave, the blood vessel crimped—all causing him not to be able to see clearly. That led to the procedure he will have Monday to dissolve the blood and help it be absorbed and have several needle injections to reduce swelling. He told us that it would not improve the damage, but it should keep it from causing more problems. He called it an eye stroke. My husband’s problem is a result of high blood pressure which caused the pressure first and then the crimping to blur his vision. We won’t know until after more tests and the procedure with injections into his eye what the result will be. I will be in touch as soon as I find out more. I have been researching and preparing us for his appointment.

I hope you can have some reversal. Thinking of you as you see a retinal specialist.

retiredteacher

@retiredteacher

Hello, Scott. I don’t have any exact information at this time except for what I know from a routine eye check appointment two weeks ago. I do not have the situation; my husband does. He told me several weeks before that his eye felt as if it was swollen. I looked but nothing was different on the outside. When we went for our checks, he could see only blurs with his left eye. The dr. ran some tests and came in and showed us the photos of his eye—- the blood pooling, the swelling, like a wave, the blood vessel crimped—all causing him not to be able to see clearly. That led to the procedure he will have Monday to dissolve the blood and help it be absorbed and have several needle injections to reduce swelling. He told us that it would not improve the damage, but it should keep it from causing more problems. He called it an eye stroke. My husband’s problem is a result of high blood pressure which caused the pressure first and then the crimping to blur his vision. We won’t know until after more tests and the procedure with injections into his eye what the result will be. I will be in touch as soon as I find out more. I have been researching and preparing us for his appointment.

I hope you can have some reversal. Thinking of you as you see a retinal specialist.

retiredteacher

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@retiredteacher, I’ll be thinking of you and your husband on Monday.
Rosemary

@retiredteacher

Hello, Scott. I don’t have any exact information at this time except for what I know from a routine eye check appointment two weeks ago. I do not have the situation; my husband does. He told me several weeks before that his eye felt as if it was swollen. I looked but nothing was different on the outside. When we went for our checks, he could see only blurs with his left eye. The dr. ran some tests and came in and showed us the photos of his eye—- the blood pooling, the swelling, like a wave, the blood vessel crimped—all causing him not to be able to see clearly. That led to the procedure he will have Monday to dissolve the blood and help it be absorbed and have several needle injections to reduce swelling. He told us that it would not improve the damage, but it should keep it from causing more problems. He called it an eye stroke. My husband’s problem is a result of high blood pressure which caused the pressure first and then the crimping to blur his vision. We won’t know until after more tests and the procedure with injections into his eye what the result will be. I will be in touch as soon as I find out more. I have been researching and preparing us for his appointment.

I hope you can have some reversal. Thinking of you as you see a retinal specialist.

retiredteacher

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Thank you @rosemarya. We are grateful for all the positive thoughts and prayers we can get. Our greatest hope is that he has not lost his sight in that eye.

retiredteacher

Hey @IndianaScott, I've been thinking of you and wondering how things are with the eye and how you're adjusting to losing the sight in your eye.

@IndianaScott. My husband had an eye stroke from high blood pressure and heart problems in November. He had an eye stoke, but he did not lose the sight totally. He is having injections in the eye every four weeks, though the damage that's been done cannot be undone. The doc said the bleeding from the stoke is slowly being absorbed, but the blurred vision remains.
We were in for another treatment yesterday, and the retina is now swollen. When this started, we had never heard of an eye stroke, but we researched, asked questions, and got answers we didn't want to hear. So far his right eye is okay. I am sorry this happened to you as it did my husband. He is not sightless, but another stroke in that eye will possibly render that outcome.
I'll be interested in what a specialist tells you.

Good luck, and you are not alone; my husband and I are with you and hoping that something can be done.

retiredteacher

@colleenyoung

Hey @IndianaScott, I've been thinking of you and wondering how things are with the eye and how you're adjusting to losing the sight in your eye.

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Thanks @colleenyoung The adjustments are progressing and as a caregiver of old, I am looking at this as one more change in a world filled with changes for each of us! Still in the 'discovery phase' where I encounter new lighting conditions, etc., which cause some new learning, but am trying hard to not let this get in my way anymore than it does!
Scott

@retiredteacher

@IndianaScott. My husband had an eye stroke from high blood pressure and heart problems in November. He had an eye stoke, but he did not lose the sight totally. He is having injections in the eye every four weeks, though the damage that's been done cannot be undone. The doc said the bleeding from the stoke is slowly being absorbed, but the blurred vision remains.
We were in for another treatment yesterday, and the retina is now swollen. When this started, we had never heard of an eye stroke, but we researched, asked questions, and got answers we didn't want to hear. So far his right eye is okay. I am sorry this happened to you as it did my husband. He is not sightless, but another stroke in that eye will possibly render that outcome.
I'll be interested in what a specialist tells you.

Good luck, and you are not alone; my husband and I are with you and hoping that something can be done.

retiredteacher

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Hello @retiredteacher Nice to read your kind words and thank you for sharing your husband's experiences with this. I just got the 'good news' from my specialist I can move to 6 month check ups, but along with that now know my right eyesight is gone for good. Nothing to be done in my case and a bit tough to hear him say the only change is the tissue in the eye dying more and more.

Hey, at least our grandsons think it's cool to have a grandpa they can call a pirate now!

I'll chalk that one up to looking on the bright side of things!

Courage, strength, and peace!

@IndianaScott
Hello Scott,

Thanks for sharing your 'good news' as well as your grandkids perspective – being a pirate isn't all bad is it?

Teresa

i am curious if the stroke occurred following cataract surgery. I am currently receiving injections every four to six weeks..

@hikergirl

i am curious if the stroke occurred following cataract surgery. I am currently receiving injections every four to six weeks..

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Hello @hikergirl It occurred out of the blue. I’d had no prior eye surgeries.

Thanks for your response. The wavy lines appeared following cataract surgery and I was told at a follow-up visit that my eye had a stoke, possibly because of my age and independent of the urgery.

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