Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
Interested in more discussions like this? Go to the Aortic Aneurysms group.
I have pretty bad pain under my ribs. But mine is chronic so it's usually there and it just depends on how bad it is. My favorite solution is that I lie on a heat pad pillow that I put in the microwave. Sometimes I take cymbalta which helps but can make me feel sick to my stomach so I only take that if it's really bad. I end up lying down more than I'd like cause sitting really hurts and after a while so does standing. But I think it's important to walk to stay flexible. It's a viscous cycle.. too sedentary…gain weight… Ease pain ( do not like). It's all a payoff.
Not much else to do.
My ab muscles hurt too. What hurts on me a lot is the area at my waist!
Ya, sometimes mine does too. But not often. They told me the pain will be too intense if it burst, no way I wouldn't know. I told the doc, I was scared every time i had an unusual pain, i was affraid it was bursting.
That's what they told me too. My pain is never intense just deep, aching, crampy and uncomfortable!
Best of wishes. It's a very scary condition but after a while I got use to knowing I have it so I'm not freaked out, I'm just uncomfortable!
I agree, I even forget about it. Then I get a pain, and Im like could this be it?…lol
Not sure where to jump in here. I was diagnosed with a celiac artery aneurysm also. 09/04/018, Mine is 1.25CM. Will be checking it every six months. My MD says surgery would be considered at 1.5CM. Mine seems small compared to others on here. I have low grade lower abdomen pain that may be the aneurysm, not sure. I thought it was a hernia and that's how they found the aneurysm. I will follow. Thanks, Randy.
Very similar size to mine. I was diagnosed almost a year ago and also on watch and see. I have fairly consistent abdominal/rib pain. However, my doctor didn't think it was related and I don't understand that. Since I see you say it might or might not be related, I'm curious if that's what your doctor said?
It makes me not trust my vascular surgeon.
What do you do for your pain of I may ask? Nothing seems to help mine.
Correction…not biannually, rather biennial
In 2008 a ct showed what several radiologists though was an aneurism in my stomach. One doctor didn’t agree it was an aneurism so he did an angigram and then I was diagnosed with median accurate ligament disease. The doctors would not touch it because it was rare. Last years I had a blocked small intestine, and then was diagnosed with gastroparesis. It is one thing after another with such pain with eating. I am very frustrated that no one will offer to surgically release this artery. Maybe when the appendage attached to this artery bursts someone will do something unless I am gone. It is so frustrating because no one understands.
The vascular surgeon said there may be pain in the lower abdomen. My primary doctor says there should be no pain from the aneurysm. However, we can't a reason for the pain. Still kind of a mystery. They were looking for a hernia when they found the aneurysm. No hernia. Nothing seems to help with the pain. It is mostly a low grade pain that flares up on occasion, but nothing unbearable yet.
I get it. I feel so frustrated also. I just heard about that liagment disease. I feel that I cannot get anyone to take my condition seriously which is ridiculous when it's so serious. Since it's rare and perhaps they don't take know much about it, then send me out of state so I get an accurate diagnosis.
Was your pain chronic, deep and feeling as though you are being squeezed? Mine is that way and also under my ribs on the right side and deep on the side of my right waist.
I hope you get some relief.
Have you thought of calling to get an appointment with Mayo or another big hospital/clinic?
Sometimes I think of doing this.
Best of wishes on your journey to health!
Thank you! That really helps me. I appreciate your reply.