Celiac Artery Aneurysm: Anyone else with same illness?

Hello @johnnyfive,

It is good that you are being proactive and searching for the best treatment/diagnosis possible. I'm glad that your doctor is proceeding with a referral to Mayo. I hope that goes well for you.

I'm wondering about the doppler for your legs. Are you having leg symptoms?

So, I went to the vascular surgeon and he said that they wouldn't do any surgery until it reaches 2cm. Since mine is 1.8cm if they would still do surgery. He said not until it hits 2cm and that's protocol. (I'm 2mm short of surgery) He wants another scan in 6 months. I do have an appointment in a few weeks for an ultrasound and a doppler to check blood flow in my legs. To be honest, I want a second opinion. My insurance case manager called me to see how my appointment went and I told her that he wants to wait another 6 months. I told her that I wasn't comfortable with that. So, I asked my family doctor for a referral to the Mayo clinic. She agreed 100% with me and she asked that Mayo do a case evaluation on me. That way they can look at all the data and scans to see if I really need to wait. If I hear that Mayo clinic wants me to wait then I'll be ok waiting. I guess I need to hear if from more that one professional.

10 mm per cm , so a 40 mm would be 4cm.

How many millimeters per centimeter? I was diagnosed with a 3 cm and also been measured at 40mm. How many centimeters is that?

Thank you for this information. i just received a bit of hopeful news from the doctor stating that the size was a minimal 9mm, so not yet 1cm. I have been referred for more tests.

@andytheman

I hope that you get some resolution to these varying opinions. Will you post again if you get another opinion?

In the meantime, how are you feeling?

Yes I do. Brown University not too far from me. Graduates are mostly doctors and health professionals. The Warren Albert School of Medicine has Professors of medicine researching health issues. I think I need an impartial opinion even if it isn’t what I want to hear

Your frustration at the different readings of the reports is certainly understandable. Please remember, @andytheman, that you can get another opinion if you are not comfortable with what you are being told. A research-oriented facility might be a good place to get another opinion.

Is there a university hospital school or a facility like Mayo Clinic where you could get another opinion?

I have MyChart and left a message with my doctor that I was recently diagnosed with a Celiac artery aneurysm by a CT scan and it’s 3cm with a tear in it. That was 3 weeks ago and he never responded .

I had gone to a hospital ER for something unrelated and the work up included a CT scan. While I waited in the exam room the doctor came in and told me that I was going to be transferred to a trauma hospital for emergency surgery.

When I was examined at the trauma hospital they said that I would have to come back to their hospital but at the moment it wasn’t bleeding and the team feels that I didn’t need surgery that day..
I was told I could be discharged because it was felt that I was stable enough to do so but to contact my cardiovascular surgeon ASAP.

I had a feeling that he was annoyed by his tone of voice. He said “I’ll only look at it if the hospital says it’s an emergency “ He said that “all hospitals say that” (asap).
I got an appointment the next day and he made light of it and was in a rush and after a sonogram he said that he didn’t see anything.

He’s been checking on this known aneurysm for 3 years and now he’s saying that he didn’t see it? 2 different Hospital cardiovascular surgeons from 2 different hospitals acknowledged it and he’s saying that he didn’t see it. He said “see you next year “ and as he was rushing out the door I said “ could it burst” and he said “ it could, but we have ways to treat that”. And he left. What now?