1. < Aortic Aneurysms

Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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Kespectrum | @kespectrum | Jun 12, 2017
In reply to @kariulrich "I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?" + (show)
@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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I was diagnosed with celiac artery aneurysm June 3, 2017. I was diagnosed with Crohn's Disease in 2005, underwent a resection in my ilium 2009 and have been on Humira since. I have just joined this forum because I understand how rare CAA is and wonder if it has to do with the Crohn's as well as the Humira. Any insight would be appreciated.

REPLY
Kari Ulrich, Alumna Mentor | @kariulrich | Jun 3, 2017
In reply to @colleenyoung "Jen, like @hopeful33250 I too would like to get to know about you. I didn't find..." + (show)
@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

Jump to this post

Dr.Sullivan is a wonderful physician, I agree with your recommendation!

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kdh1 | @kdh1 | Jun 3, 2017
In reply to @colleenyoung "Jen, like @hopeful33250 I too would like to get to know about you. I didn't find..." + (show)
@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

Jump to this post

I had my surgery at Abbott the Doctors name is Timothy M. Sullivan. Very good Dr explains everything. Takes time not just in and out. Would highly recommend him.

REPLY
1 reply
DeeDee | @nursecook1948 | Jun 2, 2017
In reply to @colleenyoung "Jen, like @hopeful33250 I too would like to get to know about you. I didn't find..." + (show)
@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

Jump to this post

Where did you have your surgery? Dr.'s name?

REPLY
1 reply
kdh1 | @kdh1 | Apr 14, 2017
In reply to @colleenyoung "Jen, like @hopeful33250 I too would like to get to know about you. I didn't find..." + (show)
@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

Jump to this post

Mine was 5.5 so had grown quite a bit so it had to be operated  on.  I am glad it is over.

REPLY
dougf | @dougf | Apr 14, 2017
In reply to @colleenyoung "Jen, like @hopeful33250 I too would like to get to know about you. I didn't find..." + (show)
@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

Jump to this post

Excellent to hear, all is well. Based on research I've done there has been no one who had the surgery that had bad results. Mine is only 1.8 CM so they want to wait and see but I'm heavily leaning towards getting it done after next follow up in 3 months.

REPLY
kdh1 | @kdh1 | Apr 14, 2017
In reply to @colleenyoung "Jen, like @hopeful33250 I too would like to get to know about you. I didn't find..." + (show)
@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

Jump to this post

I had an open surgery and everthing went extremly well. Went in for my one year check up and was given excellent grades. The person that did the ultra sound said the repair was so good the graff blended right in with the aorta. I am very pleased. I am a smoker and the kidney veins were getting clised. He opened one but didn't have time to open and clean the other one.

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Jen | @jurney01 | Mar 23, 2017

Not my case either. The doctors have no clue. They had thought possibly hereditary or even stress. I consider myself lucky to still be alive..
🙂 🙂

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dougf | @dougf | Mar 23, 2017

At this point not in my case. They told me they really don't know the cause and I have none of the risk factors like High cholesterol, smoking, High blood pressure. Sometimes it just happens. They did a battery of Rheumatology tests on me to rule out connective tissue disease etc. So no underlying cause was identified at this point.

REPLY
Kari Ulrich, Alumna Mentor | @kariulrich | Mar 23, 2017

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

REPLY
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