Celiac Artery Aneurysm: Anyone else with same illness?

Hi @clevelandpatient , very nice to meet you! It sounds like you are dealing with an inflammatory vascular disease. I do know of a vascular doctor at the cleveland clinic that would be able to help you navigate your diagnosis. (By your user name I am guessing you are near Cleveland,Ohio?) The vascular doctor is Dr. Heather Gornik, and that is who I would see if I was in Cleveland. Here is a link: https://my.clevelandclinic.org/staff/6671-heather-gornik

Hi @carolina58 I am so sorry to hear about your MALS diagnosis. Can you explain what you mean by a full wrap?

Hello @clevelandpatient,

Welcome to Connect. Thank you for sharing your information. We cannot give any medical advice or diagnoses here, but given that your report mentions celiac artery, I moved your message to the Digestive Health group so that you can meet @kariulrich, @jurney01@saschlief @dougf @kespectrum @janetpomponio @kdh1 @lynnkay1956 who have been talking about abdominal aortic and celiac artery aneurysms.

@clevelandpatient, could you share a few more details? We look forward to getting to know you.

Can someone please explain to me what this means and how serious is this?

Hi....i was just diagnosed w mals..median artucate ligament syndrone..i am having open surg soon. I had a nissen fundopilation done about six years ago. I had a full wrap done. My surgeon wax chief gastro at dartmouth hitchcock hosp in nh..this dr told me that the wrap either full or partial..cannot be undone..unless something has changed in the few years since. I had a difficult time eating for over a year after that F surg. But..i have no symptoms oif gerd anymore..now am dealing w mals. I hope this helped you somne. Carolina

Could use some feedback from anyone familiar with celiac artery aneurysm...I had my post-hospitalization follow up visit with the surgeon who said my latest CT scan showed a decrease in the size of the aneurysm (good news!) however, he downplayed the seriousness of the condition, saying that within their surgical practice they have seen celiac artery aneurysms and not to be concerned. My online research has shown it to be a rare condition, and not to treat lightly. Where can I find a balance of facts?? Anybody have any suggestions?

Hello @kespectrum,

My sincere apologies for the tardy welcome! We're so glad that you've joined us in this group on Connect.

As you point out celiac artery aneurysm is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

With regards to Crohn's disease and Humira, I would encourage you to view Mayo Clinic's Inflammatory Bowel Diseases (IBD) blog: http://ibdblog.mayoclinic.org

@barens2 @guener @jewel8888 @jay_baruch @chicagomichelle do you have any thoughts about Humira and any links to CAA?

I have GERD (acid re-flux) that I take a daily pill for, but nothing like the pain I experienced with this. They said the same thing with me that the pain was most likely from the inflammation around the aneurysm. Since it's gone down no more pain. That doesn't mean it wont flare up again at some point. I think they are most reluctant to do anything because I have no present symptoms. If I had constant pain I'm sure they would consider surgery to eliminate the problem. I also had some colon polyps removed but nothing serious. They found some diverticulitis but again nothing to worry about. I was concerned because my Father died of esophageal cancer and my Mom had to have a colostomy because of bowel blockage. So I have tried to address any gastrointestinal issues early.

Am looking forward to the conversation with my surgeon - hope he says some similar like infinitesimal. Have you ever experienced any gut issues before? Hope all goes well for your prognosis.
Karen

I go back this week for my follow up CT 3 months after original diagnosis. In the meantime I talked with the vascular surgeon who told me my chances of having it burst are infinitesimal. So I'm glad mine is small and as long as it doesn't grow I should be good to go. We will see after this weeks CT.