1. < Aortic Aneurysms

Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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janet26 | @janet26 | Jul 15, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

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Thank you for that reply. I guess it’s all new and scary to me to think of this aneurysm you can’t see and wonder what it’s doing in there. I also have a messenteric artery that has some dissecting going on that’s scary too but the doctor says sometimes these heal on their own over time. One can only hope towards healing as opposed to further dissecting. I am on statins and asa that’s all. I do not have hypertension. I guess that’s in my favor.
Good to hear some stay stable for years. Thanks again.

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degarden_girl | @degarden_girl | Jul 15, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

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Ernestine, I believe there is a AAA non-surgical repair available for those who are not able to tolerate a surgical repair. I suggest discussing with your cardiovascular specialist. I believe it is called EVAR.

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ernestine | @ernestine | Jul 15, 2018

I am having digestive problems because of my aneurysm.....any help for that?

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2 replies
ernestine | @ernestine | Jul 15, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

Someone mentioned trying to shrink the aneurysms. Since I can't have surgery because of my age I thought that steroids and antibiotics might help to make me feel better.. Anyone ever given that option?

REPLY
degarden_girl | @degarden_girl | Jul 13, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

Hi Janet26,
Apparently some aneurysms can grow quite slowly or are stable at one size. The surgery to repair an aneurysm is very invasive and MD's don't wish to subject a patient to that if is isn't necessary. My aneurysm has been stable at 3.9 cm for 8 years. I am sure if it starts to grow the monitoring will be more frequent and if it gets into the high 4cm range, surgery will be considered. It is my understanding that aneurysms are more likely to rupture once they reach 5 cm and above. For me, since I also have two leaky valves, including the aortic valve, I expect at least the aortic valve will be replaced in the same surgery. Right now, my cardio is trying to limit the pressure on the artery via medication --Metoprolol. Heart surgery is serious stuff and although I would like to have all my issues corrected, I hope to avoid surgery for as long as I can.

REPLY
janet26 | @janet26 | Jul 13, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

If aneurysms don’t go away then I am wondering why they just wait and see. I know it’s not large but it seems to make sense that a stent of some kind makes more sense than doing nothing and risking rupture Does anyone have thought or can enlighten me.

REPLY
janet26 | @janet26 | Jul 10, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

Thank you all for responses. I hope you can see my response to dolly Linda. Praying for favourable healing on dissecting artery and waiting until October for repeat Ct scan.

REPLY
janet26 | @janet26 | Jul 10, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

Thank you for reply. I saw vascular surgeon for consult today. He is doing a wait and see on the aneurysm with a repeat Ct scan in six months
The dissecting artery he wants me to start on a cholesterol lowering drug at very low levels with gradual increase in hopes to strengthen artery walls and a lus dose asa
My blood pressure is low so he is reluctant to add that to medication regime. Fingers crossed this is appropriate treatment.

REPLY
ccubed | @ccubed | Jul 10, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

You should definitely be followed by vasc dr. If you have any digestive problems they could be affected by you superior mesenteric artery problem. Being followed is important to keep a record of size change or other symptoms

REPLY
dollylinda | @dollylinda | Jul 10, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

I was diagnosed with a Celiac artery aneurysm last October. Same size as yours. I did go to a vascular surgeon and he is doing a watch and see approach. I went back 6 months later and they did an abdominal ultrasound. My aneurysm was 1cm larger but he said that most likely the difference was do to who was taking the measurement as 1cm is extremely small.
Anyway... I too was very frightened but I decided that I may have had this for years without knowing so I relaxed knowing that this is small, that whatever is going to happen will happen and that most likely everything is going to be fine like everything in life.
I still have pain/discomfort on my right side that everyone dismisses. In my case, I will go back in one year and get another abdominal ultrasound.
My suggestion is to try to relax as that is the best thing for your body. Easier said than done but now that I've known about this for 10 months I don't think about it much.
I think the only way they know that it's getting growing is by getting those abdominal ultrasounds.
I'm curious if they think your pain is from the aneurysm?
When you say your chest had pain, are you saying your rib area (that's where mine hurts... Under my ribs ...Like I'm getting squeezed)
I have no idea how dangerous the wait and see approach is but it seems rather standard from what I gather. I was told they don't want to do anything unless it is 2cm or larger. Let me know what your surgeon says as I too am very curious.
Also let me know if they say the pain is related.
Best wishes!

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