Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Kari Ulrich, Alumna Mentor | @kariulrich | Sep 16, 2018

I appreciate everyone who has posted on celiac artery aneurysm's. I am learning so much. I am at risk for developing an aneurysm in this area, I feel like I am able to be better educated, so thank you!

dougf | @dougf | Sep 16, 2018

In reply to @dollylinda "May I ask what size was your aneurysm when you went and did you have any..." + (show)

Mine was smaller. Like 2.5 cm. No other symptoms after initial diagnosis. They did mri to check for other aneurisms in whole body. Another ct. Ultrasound. Chest xray. Blood flow analysis. Those are all they ones i can remember.

dollylinda | @dollylinda | Sep 15, 2018

In reply to @dougf "I went to minnesota one and spent a week. They checked me over good. No other..." + (show)

May I ask what size was your aneurysm when you went and did you have any symptoms? Did they attribute any of your symptoms to the aneurysm?
Are you saying that you had a week of tests? Only tests I've had for this is CT scan and ultrasound. What other tests did they do?

dougf | @dougf | Sep 15, 2018

I went to minnesota one and spent a week. They checked me over good. No other aneurism. Piece of mind was worth it for me.

oldkarl | @oldkarl | Sep 14, 2018

@@randy1950 Randy, going to mayo might depend on which Mayo has the experience to deal with this. Try to contact someone there who can tell you which Mayo has the experience.

randy1950 | @randy1950 | Sep 14, 2018

In reply to @dollylinda "No... But I'm thinking about doing this. Problem is that I live all the way in..." + (show)

Yes, that is a consideration. I live in the DFW area. I have a cousin from Oklahoma that is in the Mayo now for surgery. I haven't talked to her yet but I am very interested in why she went up there and how it went.

marylisa | @marylisa | Sep 14, 2018

That is a very good question. Do they know any more than other doctors at major medical centers? I get the sense that no one knows a lot about this disorder. My husband has suggested going to Mayo for a second opinion but I don't know if it would be worth it. I'll look forward to hearing if anyone has been to Mayo for this.

dollylinda | @dollylinda | Sep 14, 2018

In reply to @randy1950 "Has anyone been to the Mayo Clinic for a second opinion for celiac artery aneurysm?" + (show)

No... But I'm thinking about doing this. Problem is that I live all the way in Oregon.

randy1950 | @randy1950 | Sep 14, 2018

Has anyone been to the Mayo Clinic for a second opinion for celiac artery aneurysm?

dollylinda | @dollylinda | Sep 5, 2018

In reply to @randy1950 "The vascular surgeon said there may be pain in the lower abdomen. My primary doctor says..." + (show)

Thank you! That really helps me. I appreciate your reply.

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