1. < Aortic Aneurysms

Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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onemind711 | @onemind711 | Aug 27, 2018
In reply to @onemind711 "Ya, sometimes mine does too. But not often. They told me the pain will be too..." + (show)
@onemind711

Ya, sometimes mine does too. But not often. They told me the pain will be too intense if it burst, no way I wouldn't know. I told the doc, I was scared every time i had an unusual pain, i was affraid it was bursting.

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I agree, I even forget about it. Then I get a pain, and Im like could this be it?...lol

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dollylinda | @dollylinda | Aug 27, 2018
In reply to @onemind711 "Ya, sometimes mine does too. But not often. They told me the pain will be too..." + (show)
@onemind711

Ya, sometimes mine does too. But not often. They told me the pain will be too intense if it burst, no way I wouldn't know. I told the doc, I was scared every time i had an unusual pain, i was affraid it was bursting.

Jump to this post

That's what they told me too. My pain is never intense just deep, aching, crampy and uncomfortable!
Best of wishes. It's a very scary condition but after a while I got use to knowing I have it so I'm not freaked out, I'm just uncomfortable!

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onemind711 | @onemind711 | Aug 27, 2018

Ya, sometimes mine does too. But not often. They told me the pain will be too intense if it burst, no way I wouldn't know. I told the doc, I was scared every time i had an unusual pain, i was affraid it was bursting.

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2 replies
dollylinda | @dollylinda | Aug 27, 2018
In reply to @ernestine "I am having digestive problems because of my aneurysm.....any help for that?" + (show)
@ernestine

I am having digestive problems because of my aneurysm.....any help for that?

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My ab muscles hurt too. What hurts on me a lot is the area at my waist!

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dollylinda | @dollylinda | Aug 27, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

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I have pretty bad pain under my ribs. But mine is chronic so it's usually there and it just depends on how bad it is. My favorite solution is that I lie on a heat pad pillow that I put in the microwave. Sometimes I take cymbalta which helps but can make me feel sick to my stomach so I only take that if it's really bad. I end up lying down more than I'd like cause sitting really hurts and after a while so does standing. But I think it's important to walk to stay flexible. It's a viscous cycle.. too sedentary...gain weight... Ease pain ( do not like). It's all a payoff.
Not much else to do.

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marylisa | @marylisa | Aug 27, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

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What do you do for the pain under the right ribs? Mine goes up my right ribs into my shoulder blade and right side of the neck. I try to just breathe through it but it can be frightening since it seems to come out of no where and after a while (10 minutes maybe) it just goes. I would like to know what causes this symptom for those of us who have a celiac aneurysm.

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marylisa | @marylisa | Aug 27, 2018
In reply to @ernestine "I am having digestive problems because of my aneurysm.....any help for that?" + (show)
@ernestine

I am having digestive problems because of my aneurysm.....any help for that?

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Thank you for posting this. I get digestive problems too and at times it like my abdominal muscles are sore. I never had this until last fall, then I was diagnosed for the celiac aneurysm in Dec. I would like to know too if there is any help for this discomfort or do we just learn to live with it. I did get a recent CT scan of the abdomen and everything was good.

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onemind711 | @onemind711 | Aug 27, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

I get the pain under my right lowest rib as well. I call it twingy, shocky, squeezy pain...lol

REPLY
onemind711 | @onemind711 | Aug 27, 2018
In reply to @janet26 "Hello .I see most of these posts are from a couple years ago. I hope someone..." + (show)
@janet26

Hello .I see most of these posts are from a couple years ago. I hope someone is still out there. I have just been diagnosed with a 1.2. Celiac artery aneurysm. I went in with upper chest pain and the Dr. ordered a Ct scan of chest. Lungs were fine but incidentally found this aneurysm along with a dissection of the Sma. Reading a little here and there I feel quite frightened by all this. I see a vascular surgeon for a consult today. I think according to my GP, he is going to recommend only observing it. I wonder how you know if it is growing ,how dangerous is the wait and see approach?

Jump to this post

I'm in the same boat as you both are. I was diagnosed with a 2 centimeter Celiac artery aneurysm about 5 years ago. I also have a blood clot on the back side which apparently is safe because the direction of the blood flow and the aneurysm block it from traveling. Apparently the hepatic artery had a blockage from a small blood clot as well that obstructed blood supply to the liver however my body grew capillaries or veins on its own or whatever to supply the liver with blood. Watching and waiting is no fun come and I always get so concerned when I have to have my ultrasound every two years, but I guess it's just the life I've been given

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onemind711 | @onemind711 | Aug 27, 2018
In reply to @kariulrich "I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?" + (show)
@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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As of May 2018, there have been no changes. The aneurysm is stable, and the pain level is minimum and not consistent. I get like a shockey twingy pain under my lower right rib. I was told by my doctor at Mayo, that the pain if it ruptured would definitely be bad since it is so near my spine. In other words I would know right away if it ruptured.

My apologies as well for not replying sooner, but I lost this thread until today when I was seeing if there's any further studies

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