Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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Reirel, I am sorry for everything you have gone through. It is very scary. I hope you will ask your doctors for more information and perhaps seek a consult with Mayo, Cleveland Clinic or a major medical center. Is it a celiac aneurysm or something else? I have a celiac aneurysm and this condition is relatively rare so many doctors do not diagnose it or even know to look for it. Fortunately I live in a major city with excellent doctors and a university hospital. It was discovered last year after I had a splenic infarction which was caused by a clot from the celiac aneurysm (I also have stenosis at the same spot.) As a result my spleen mostly died from the lack of blood. They did not remove the spleen since that is no longer the usual protocol. My doctor is taking a wait and see approach since the aneurysm is relatively small. I see my internist twice a year and a vascular surgeon once a year. But that is what I have experienced and may be very different for you. I wish you the best and hope you will keep us posted. This group has been very helpful for me and we learn from each other.
Hello @reirei Did you know you had a celiac aneurysm? And if you did what size? This to me is a good reason to repair before rupture. Why do they always want to wait? Hope you are doing well.
Hi, I was 29 (30 now, all happened recent)when end up having a celiac aortic aneurysm that ruptured.
Began having abdominal pain first thing in morning, though tried working through it thinking go away. Three hours into shift got worst, end up leaving work and tried going emergency.
Was waiting two hrs, went through triage second time as still was getting worse, only get told not much they could do but put me up few places but wait time was probably still 2 more hrs.
Left emergancy cause was in enough pain and could not sit still and pacing moving around, was close to laying on the floor there. Went to a smaller town health center walk in clinic that was 15 mins away, there after seeing me they sent be back to the hospital by ambulance.
Back at the hospital, I honestly dont remember what test were and were not done, only was giving morphine and ice chip diet, discharge early next day.
Went home and pain moved to chest, couldn't lay still and tried hot bath in hope would help out some unfortunate didn't. Within few hours being home went back to emergency. Only few things recall from second visit was going for a chest xray and unable to even switch body from the pain and passing out, only to awake to bunch of doctors around me and being lifted to a stretcher. Got told was going be sent to another hospital as they didn't have a vascular surgeon.
The surgery told my close members in my family that my survival rate was 10%, more less prepare for the worst.
I undergone 3 surgeries, one for repairing the aneurysm, second was due to clamps shifting from first surgery resulting in mass blood loss. Carton of milk(1L) blood every 30 mins. Third surgery resulted in spleen removal due to loss of blood flow it died , and to repair artery in leg. Had four surgery to go back to fix the leg one later as they could not find a pulse in the foot about 10 days later.
Was in the icu unit for 3 weeks before being sent back to hospital in my area in regular unit for another 4 weeks.
Currently on anticoagulant, seeing doctors for different things every week so far.
The cause for this, unknown. Alone as they say quite young for this to happen. Not overweight, no high blood pressure, no drugs, no alcohol or smoking (other then vape if do want count that which only did for year and half) health wise I was pretty good.
I was seen at Mayo in Phx. Great vascular team, the bay told me pretty much the same thing everyone here seems to be told under 2 cm is generally watch and see I only get CTS every two years. Was diagnosed about five and a half years ago and mine hasn't grown at all.
I appreciate everyone who has posted on celiac artery aneurysm's. I am learning so much. I am at risk for developing an aneurysm in this area, I feel like I am able to be better educated, so thank you!
Mine was smaller. Like 2.5 cm. No other symptoms after initial diagnosis. They did mri to check for other aneurisms in whole body. Another ct. Ultrasound. Chest xray. Blood flow analysis. Those are all they ones i can remember.
May I ask what size was your aneurysm when you went and did you have any symptoms? Did they attribute any of your symptoms to the aneurysm?
Are you saying that you had a week of tests? Only tests I've had for this is CT scan and ultrasound. What other tests did they do?
I went to minnesota one and spent a week. They checked me over good. No other aneurism. Piece of mind was worth it for me.
@@randy1950 Randy, going to mayo might depend on which Mayo has the experience to deal with this. Try to contact someone there who can tell you which Mayo has the experience.
Yes, that is a consideration. I live in the DFW area. I have a cousin from Oklahoma that is in the Mayo now for surgery. I haven't talked to her yet but I am very interested in why she went up there and how it went.