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Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
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Yep, 11 mm, not cm, which is much larger. When I asked the vascular surgeon if he had ever done the operation, and he said "no",, but I can't find you someone here who probably has. Not risking that. If the CT in 6 months shows that it is larger, I have a connection at UT Southwestern in Dallas, & they have about 12 vascular surgeons. I won't trust any dr here in Wichita Falls for anything! Our doctors are pathetic.I do keep having pain under my bottom left ri, but the dr said that's not where the aneurysm is located. Don't even know if he knows what he's talking about.Sometimes I wish I lived in a larger city. Dallas is 3 hrs away & OK City is too.
That is an unpleasant way to live and I agree that the rarity of the condition contributes to medical intervention inconsistencies. Sit , wait and monitor isn't very satisfying. I had never heard that lifting weight is an issue. Is your pain under your ribs? Are you also having persistent digestive issues? 3 tenths of a cm seems minute and I wonder why Doctors would suggest waiting in view of the difficulty you are having.
I think the problem is celiac aneurysm is so rare. I explained thr pain I have ans the dr told me theyre not supposed to hurt.. I then said .. Really? I didnt get the owners manual didnt know you had one.. Like seriously so few have popped up since 1745 no one honestly knows anything.. I get compared to having a AAA so much and there so different. And yes all they want to do is wait. Go home dont lift over 20 lbs. I now work like 3 days a week for 3 hrs a day . I get pain all the time and am tired a lot. Ive read about someone in my same case. No lifting and wait wait wait for 4 years..like really? Mine is 3 tenths of a cm off of when they recommend the operation.... 3 tenths .. The condition and how your treated is sickening
So sorry to hear this. My prayers are with you!
My father was sick all of his life with stomach issues. He never had a diagnosis and he had a rupture and died a week later. My father suffered so much.
I have MAL and gasterparesis no one will do a thing. No treatment just waiting until it ruptures but maybe so late. I have been to many doctors no treatment is given. I gave up gonna let my body do what it needs to do and if it is an emergency then someone will do something if it isn’t to late. I am tired of paying all these medical bills and higher insurance premiums with being dismissed. I am sorry for sounding negative that is just my truth.
I am being told they prefer not to repair until it reaches 2 cm
Have you had it repaired... or planning to?
Per my vascular surgeon that's more than likely just due to the person taking the measurement. I had the very same thing as you..exact same size.
i.1 cm is pretty small 11 cm seems quite large. Have you had a second opinion ? My vascular surgeon gave similar advice but less frequent MRI's.