Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@dollylinda

I've posted previously. In Oct of 2017, I was diagnosed with a celiac aneurysm. Originally it was 1.2 and 6 months later was 1.3 and they considered that nothing and probably just the measurer who measured it. I have lots of right rib pain but they say it's not related. So I've gone to a pain specialist and am getting nerve blocks to see if that helps because I have a bad back also. Helped some but still have the scary pain under the top right part of rib by the chest. I'm to go back in a few months to the vascular surgeon. I try to not think about it. I'll keep you updated. My MRI's of my thoracic and lumbar showed nothing. That's good but you'd think since it's by my back it would show up. Does anyone have this sort of unexplained pain?

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My aneurysm is also 1.3. Last summer I had a lot of pain in my right ribs up into my shoulder for several weeks. It passed after a while. I went to see my internist when I had the pain last summer. He is wonderful but he ordered the wrong kind of CT scan and it looked good. I should have gone to my Vascular surgeon. I went to my vascular surgeon for my annual check a couple of weeks ago and he is concerned that this the right side is pain connected to my liver. I had a splenic infarction in 2017 that was caused by a embolism from my celiac aneurysm. He is concerned that I may have had another small infarction to my liver. I am getting a CT scan in a couple of weeks then will meet with him again. I am hoping it is nothing. He noted that right sided pain can be your liver and should be taken very seriously for people who have a celiac aneurysm. For a small aneurysm he says you just watch it. But if I am having more clots that can affect other organs then we will have to consider surgery even though it is small. I can live without my spleen but not without my liver. I hope you see your vascular surgeon soon. Like I said, I should have gone to my Vascular surgeon last summer but on a positive note, I am dealing with it now. If you want I can keep you posted on what I find out.

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I've posted previously. In Oct of 2017, I was diagnosed with a celiac aneurysm. Originally it was 1.2 and 6 months later was 1.3 and they considered that nothing and probably just the measurer who measured it. I have lots of right rib pain but they say it's not related. So I've gone to a pain specialist and am getting nerve blocks to see if that helps because I have a bad back also. Helped some but still have the scary pain under the top right part of rib by the chest. I'm to go back in a few months to the vascular surgeon. I try to not think about it. I'll keep you updated. My MRI's of my thoracic and lumbar showed nothing. That's good but you'd think since it's by my back it would show up. Does anyone have this sort of unexplained pain?

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@rob1962

I had a CT due to kidney stones last week. They found a 3.2CM by 3.6CM celiac artery aneurysm. Who do you contact in the Mayo system to inquire about sending scans for evaluation?

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Hi @rob1962 and welcome to Connect. I apologize that your post wasn't seen sooner.

To answer your question, the best way to inquire about sending scans for evaluation at Mayo would be to call the number of the nearest Mayo Clinic location. You can find those phone numbers at this link: http://mayocl.in/1mtmR63

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Hi @catbaker and welcome to Connect! You must be so grateful that surgery isn't necessary at this time.

I wanted to introduce you to fellow connect members @randy1950 @janet26 and @marylisa as they all have celiac artery aneurysms and you all may be able to provide support to one another.

Back to you @catbaker, what size is your aneurysm at this time?

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Hi. I was diagnosed at 50 with a aneurysm of the celiac artery. Luckily, I haven't had to have surgery as it hasn't grown to a size that requires it. There is not many people that have this. It is very rare. My doctor says there is no reason for me to have such a thing! Well, it happened and I prayer it doesnt get bigger. I hope you are doing OK after your surgery!

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I had a CT due to kidney stones last week. They found a 3.2CM by 3.6CM celiac artery aneurysm. Who do you contact in the Mayo system to inquire about sending scans for evaluation?

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@randy1950

Why would your doctor wait? You have already had issues from it. My celiac aneurysm is 1.25 mm. 1.5mm and they operate. I am wanting to do it now while I’m healthy. Don’t get the waiting.

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Yes I wonder why they wait also mine is 1.2 but they said it had to be 2
It’s scary wondering if it’s growing

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The aneurysm was unknown, further if test were done while having the abdominal pain during first visit they should of caught it considering within under 24 hrs it was diagnosed as ruptured.
Grateful to be alive as I'm sure alone any ruptured aneurysm if fatal.
Clearly assuming someone in the emergency didn't do proper testing and assumed morphine would do, took a guess on their own that being young it wasn't an aneurysm. Clearly any age can get one.
If this was discovered earlier then I'm sure surgery would have been less evasive along with less time in hospital along with less issues that came with the surgery. Scar prob may been less long(one have is from under my bust to 3 inches under belly button)
To me comes as surprise how something like this went under detective to point where it ruptured.

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@marylisa

Reirel, I am sorry for everything you have gone through. It is very scary. I hope you will ask your doctors for more information and perhaps seek a consult with Mayo, Cleveland Clinic or a major medical center. Is it a celiac aneurysm or something else? I have a celiac aneurysm and this condition is relatively rare so many doctors do not diagnose it or even know to look for it. Fortunately I live in a major city with excellent doctors and a university hospital. It was discovered last year after I had a splenic infarction which was caused by a clot from the celiac aneurysm (I also have stenosis at the same spot.) As a result my spleen mostly died from the lack of blood. They did not remove the spleen since that is no longer the usual protocol. My doctor is taking a wait and see approach since the aneurysm is relatively small. I see my internist twice a year and a vascular surgeon once a year. But that is what I have experienced and may be very different for you. I wish you the best and hope you will keep us posted. This group has been very helpful for me and we learn from each other.

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The celiac artery is much smaller than the arotic. So the sizes do not correspond. 1.5 mm on the celiac is large compared to 1.5mm on the aortic. The aortic could have a 5 mm and still be small compared to the celiac.

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@marylisa

Reirel, I am sorry for everything you have gone through. It is very scary. I hope you will ask your doctors for more information and perhaps seek a consult with Mayo, Cleveland Clinic or a major medical center. Is it a celiac aneurysm or something else? I have a celiac aneurysm and this condition is relatively rare so many doctors do not diagnose it or even know to look for it. Fortunately I live in a major city with excellent doctors and a university hospital. It was discovered last year after I had a splenic infarction which was caused by a clot from the celiac aneurysm (I also have stenosis at the same spot.) As a result my spleen mostly died from the lack of blood. They did not remove the spleen since that is no longer the usual protocol. My doctor is taking a wait and see approach since the aneurysm is relatively small. I see my internist twice a year and a vascular surgeon once a year. But that is what I have experienced and may be very different for you. I wish you the best and hope you will keep us posted. This group has been very helpful for me and we learn from each other.

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Why would your doctor wait? You have already had issues from it. My celiac aneurysm is 1.25 mm. 1.5mm and they operate. I am wanting to do it now while I’m healthy. Don’t get the waiting.

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