1. < Aortic Aneurysms

Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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txkathy | @txkathy | Jan 28, 2019
In reply to @dougf "Mine was 1.2 and I thought as you are that I should get it repaired. They..." + (show)
@dougf

Mine was 1.2 and I thought as you are that I should get it repaired. They basically refused to do it. they said the surgery is too risky for the benefit. It's been 1.5 years since first discovery and it has self healed some. Now just a yearly CT scan for me. Good luck but be prepared that they may not do the surgery.

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Thanks for the info. I see the vascular surgeon on Thursday. I'll post an update then.

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2 replies
dougf | @dougf | Jan 28, 2019
In reply to @janet26 "Its good to hear it may self heal thanks for that I can hope" + (show)
@janet26

Its good to hear it may self heal thanks for that I can hope

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Maybe self heal is the wrong way to say it. I had a lot of clotting/ mass around mine which eventually disappeared. They couldn't distinguish from the CT scans what was actual aneurysm and what was inflamed/clotted. eventually it cleared and what was left was about the same as the original size. It's hard to tell when they are this size.

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janet26 | @janet26 | Jan 28, 2019
In reply to @dougf "Mine was 1.2 and I thought as you are that I should get it repaired. They..." + (show)
@dougf

Mine was 1.2 and I thought as you are that I should get it repaired. They basically refused to do it. they said the surgery is too risky for the benefit. It's been 1.5 years since first discovery and it has self healed some. Now just a yearly CT scan for me. Good luck but be prepared that they may not do the surgery.

Jump to this post

Its good to hear it may self heal thanks for that I can hope

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1 reply
dougf | @dougf | Jan 28, 2019
In reply to @txkathy "I recently had a abdominal CT to check on a hernia, but they found a celiac..." + (show)
@txkathy

I recently had a abdominal CT to check on a hernia, but they found a celiac artery aneurysm measuring 11 mm. I have an appointment with a vascular surgeon this week, but my husband & I want me to have surgery for this, although the aneurysm is not very large.I don't even know if he has ever performed this kind of resection before. We live 3 hours from Dallas & may decide to have a surgeon there do the operation. Any advise would be helpful.

Jump to this post

Mine was 1.2 and I thought as you are that I should get it repaired. They basically refused to do it. they said the surgery is too risky for the benefit. It's been 1.5 years since first discovery and it has self healed some. Now just a yearly CT scan for me. Good luck but be prepared that they may not do the surgery.

REPLY
2 replies
txkathy | @txkathy | Jan 28, 2019

I recently had a abdominal CT to check on a hernia, but they found a celiac artery aneurysm measuring 11 mm. I have an appointment with a vascular surgeon this week, but my husband & I want me to have surgery for this, although the aneurysm is not very large.I don't even know if he has ever performed this kind of resection before. We live 3 hours from Dallas & may decide to have a surgeon there do the operation. Any advise would be helpful.

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1 reply
bobrush | @bobrush | Jan 27, 2019

Hi .... Ive had 2 ultrasounds 3 ekgs and 4 cat scans in the past 2 weeks . theyve mentioned disc degenerative to me for my lower back and this aneurysm but nothing else . I do have viens that stick out in my arms and another parts .. Idk this is very depressing

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Kari Ulrich, Alumna Mentor | @kariulrich | Jan 27, 2019
In reply to @marylisa "My aneurysm is also 1.3. Last summer I had a lot of pain in my right..." + (show)
@marylisa

My aneurysm is also 1.3. Last summer I had a lot of pain in my right ribs up into my shoulder for several weeks. It passed after a while. I went to see my internist when I had the pain last summer. He is wonderful but he ordered the wrong kind of CT scan and it looked good. I should have gone to my Vascular surgeon. I went to my vascular surgeon for my annual check a couple of weeks ago and he is concerned that this the right side is pain connected to my liver. I had a splenic infarction in 2017 that was caused by a embolism from my celiac aneurysm. He is concerned that I may have had another small infarction to my liver. I am getting a CT scan in a couple of weeks then will meet with him again. I am hoping it is nothing. He noted that right sided pain can be your liver and should be taken very seriously for people who have a celiac aneurysm. For a small aneurysm he says you just watch it. But if I am having more clots that can affect other organs then we will have to consider surgery even though it is small. I can live without my spleen but not without my liver. I hope you see your vascular surgeon soon. Like I said, I should have gone to my Vascular surgeon last summer but on a positive note, I am dealing with it now. If you want I can keep you posted on what I find out.

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Thank you for sharing your experience @marylisa !

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Kari Ulrich, Alumna Mentor | @kariulrich | Jan 27, 2019
In reply to @mfolan "I have been diagnosed with a celiac artery aneurysm. I had a stent put it my..." + (show)
@mfolan

I have been diagnosed with a celiac artery aneurysm. I had a stent put it my celiac artery 3 weeks ago. I have a lot of genetic testing and everything came back negative. My artery is thinning and I am worried about long term effects. How are you feeling? I feel so much better since I received the stent. I did have complications from the surgery my bronchial artery ruptured and I had to have emergency surgery to repair it. I would like to follow up with a specialist to find out why this happened to my celiac artery.

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Very curious if they ever spoke the words Fibromuscular Dysplasia or Ehlers Danlos to you? I also have frail arteries and have those diagnoses.

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Kari Ulrich, Alumna Mentor | @kariulrich | Jan 27, 2019
In reply to @bobrush "Hello I'm 42 and was just told I have this as well. I cant work at..." + (show)
@bobrush

Hello I'm 42 and was just told I have this as well. I cant work at my normal job because its all heavy lifting. I cant even pick my little girl up anymore. It's extremely depressing . ive never been the type to let a little pain keep me down but I'm speachless after hearing I have this... Like others I go back in 2 weeks for another cat scan... I just dont know what to say anymore

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@bobrush welcome to Mayo Clinic Connect... the journey is a long one with MALS and can be overwhelming. This is a wonderful group and you will get a variety of experiences that I believe will be helpful in your journey. Have you had a GI work up yet? What symptoms have you been experiencing? I have been navigating MALS for quite sometime and will try my best to support you. Understand the frustration and depression that comes along with this. You are not alone. Thinking of you.

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bobrush | @bobrush | Jan 27, 2019

Hello I'm 42 and was just told I have this as well. I cant work at my normal job because its all heavy lifting. I cant even pick my little girl up anymore. It's extremely depressing . ive never been the type to let a little pain keep me down but I'm speachless after hearing I have this... Like others I go back in 2 weeks for another cat scan... I just dont know what to say anymore

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