Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

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I was diagnosed in July 2017. I had gone to the ER thinking I had an inner ear infection. Was sent to,a larger hospital where a vascular surgeon confirmed it. He said it was just shy of being big enough to operate.
I have consistent pain in my left side under my rib. No one can find what is wrong. Causes pain and nausea. I do not have insurance and after 2 trips to the ER this weekend I was sent home with Zofran and Bentyl. Helps with nausea but not the pain. They suggested I go to a gastro doc to have a scope but with no insurance I can’t afford it.
I will just withno reason start throwing up. Does anyone else have anything like this happen? I know it’s no related to my aneurysm. Just so tired of not finding any help. I have a history of diverticulitis but the CT scan at the ER doesn’t show anything.

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Profile picture for maryswims @maryswims

Yeah that can happen. I have a really nice surgeon he’s younger and he’s friendly and walks around with his big cuppa coffee from the convenient store and sits on the windowsill in your room and talke to you like a friend

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I kind of like that!

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Profile picture for helenannmarie55 @helenannmarie55

I once was told by a dr in a larger city I am the doctor. I told him but I know my body and want to tell you what I am experiencing. I gave him my notes and just gave it back to me and went out the door. There is so much patient abuse. You have to spend thousands of dollars to find the one doctor that will listen, sad! I sometimes think smaller towns have better doctors because they aren’t over worked. A nurse told me book your appointments with a physicians assistant because they get scheduled for 30-45 minutes and a MD gets 15 minutes lots and if he is running late you may get 10 or 5 minutes.

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Yeah that can happen. I have a really nice surgeon he’s younger and he’s friendly and walks around with his big cuppa coffee from the convenient store and sits on the windowsill in your room and talke to you like a friend

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I once was told by a dr in a larger city I am the doctor. I told him but I know my body and want to tell you what I am experiencing. I gave him my notes and just gave it back to me and went out the door. There is so much patient abuse. You have to spend thousands of dollars to find the one doctor that will listen, sad! I sometimes think smaller towns have better doctors because they aren’t over worked. A nurse told me book your appointments with a physicians assistant because they get scheduled for 30-45 minutes and a MD gets 15 minutes lots and if he is running late you may get 10 or 5 minutes.

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Profile picture for marylisa @marylisa

I was told by my vascular surgeon that the pain under my right ribs and into my right shoulder blade could be referred pain from the liver, possibly due to a small embolism from the celiac aneurysm to the liver. He is concerned about that for me because I have already had one aneurysm to my spleen causing a splenic infarct. (This is not common.) I will have a CT scan this week to see if my liver has any signs of an infarct. He took the symptoms related to the pain in my right side seriously. If it is, I will post to you all again this weekend. I am hoping it is nothing. (Also for me, the pain in my right ribs and shoulder blade occurred last summer and I told my vascular surgeon about it when I saw him recently. Even though I am fine now, he took what I said about the right side pain seriously.)

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Thank you for the information.
I had 2 CT scans one a little over a year ago and one 2 years ago. Mine were fine so am hoping yours will be fine too but please let me know what they find. The area of pain is the same as mine.
My pain was pretty much 24/7 for about 4 years. I still have it but its not quite as bad. Mine also hurts in my right waist area.
I do not live by any big hospital. Am wondering if you live close to major hospital as it sounds to me as though you are getting quality care and are being listened to.

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I was told by my vascular surgeon that the pain under my right ribs and into my right shoulder blade could be referred pain from the liver, possibly due to a small embolism from the celiac aneurysm to the liver. He is concerned about that for me because I have already had one aneurysm to my spleen causing a splenic infarct. (This is not common.) I will have a CT scan this week to see if my liver has any signs of an infarct. He took the symptoms related to the pain in my right side seriously. If it is, I will post to you all again this weekend. I am hoping it is nothing. (Also for me, the pain in my right ribs and shoulder blade occurred last summer and I told my vascular surgeon about it when I saw him recently. Even though I am fine now, he took what I said about the right side pain seriously.)

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Profile picture for dollylinda @dollylinda

Thank you!
I'm confused for myself as only on one test did it say I have a fatty liver... Which was ultrasound and not on any CT scan. So weird my doctor who did say I had fatty liver said it wouldn't cause osin. Seems like way too many differing opinions that the doctors give out. My supposed fatty liver is non alcoholic. I say supposed ss the gastroenterologist said if the CT scan didn't see that I don't have it.

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Its all abstract to Doctors , they only practice medicine, none of them really know. Since these aneurysms are so rare and there is no data, there's nothing they can really be certain that I suppose

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Profile picture for onemind711 @onemind711

No, he only said the pain might be the aneurysm. I have a fatty liver, thats why I thought it might be the culprit. But its definately a pain i experience often. Its not bad, more dull achy. It is a very odd unique pain. Its not debilitating just odd.

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Thank you!
I'm confused for myself as only on one test did it say I have a fatty liver... Which was ultrasound and not on any CT scan. So weird my doctor who did say I had fatty liver said it wouldn't cause osin. Seems like way too many differing opinions that the doctors give out. My supposed fatty liver is non alcoholic. I say supposed ss the gastroenterologist said if the CT scan didn't see that I don't have it.

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Profile picture for dollylinda @dollylinda

I was told the liver doesn't cause pain. I've had 2CT scans and all was fine with internal organs.
Did your vascular surgeon say it would hurt in the upper right under ribs? Asking as I am going to discuss this with mine at next appointment. Thank you

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No, he only said the pain might be the aneurysm. I have a fatty liver, thats why I thought it might be the culprit. But its definately a pain i experience often. Its not bad, more dull achy. It is a very odd unique pain. Its not debilitating just odd.

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Profile picture for codonpatrick @codonpatrick

It would be good to find vascular surgeons who have actually performed the operation. I live in the L.A. area and have consulted a surgeon at UCLA but he has never done one. During my first visit about 4 years ago he told me to monitor it with CT scans and we could consider a coil stent or a more invasive surgery if and when it grows to 1.4cm. I haven't met with him since then but when I had a follow up CT he read the results and emailed me. He said that it wasn't growing and I should continue to monitor but he didn't believe that I would ever need repair. I haven't received any advice about things I should be doing prophetically and was never told to avoid lifting weight of any type.

Perhaps collectively we can all develop a consistent strategy of how and what to do while waiting as well as symptoms we may experience while waiting.

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That's very interesting. Thanks for the info. I wasn't told about lifting weight either. In fact they simply said just live your life like normal. Did they advice you to take any type of precaution? Mine is 1.3 and my vascular surgeon said they wouldn't do anything unless it was 2cc.
Also, I will bring that up.

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