Celiac Artery Aneurysm: Anyone else with same illness?

Greetings ... I'm virtually sure I didn't post this in the right place, but I was recently diagnosed with a 1.5mm celiac artery aneurysm that was coincidentally found by CAT scan for an unrelated blood vessel rupture in the top of my left lung that produced quite a lot of bright red blood while coughing. They did an emergency bronchotomy and repair the leak. And now I'm left with the knowledge of the CAA. In shock after reading up on the disorder. This was all at University California San Diego hospital in Hillcrest, San Diego, 92103. Confused and worried. Thank you, Andreas.

hope all goes well... let us know how things went..

My dad was diagnosed with a celiac artery aneurysm a couple years ago. His doctor wasn’t worried about it until a couple years ago, when he started to become sick after eating or drinking anything. If he even drinks water he gets pain from his stomach to his back and up under his ribs. He has lost over 40lbs in the last 2 months. He doesn’t sleep. Has anyone experienced this? It’s very scary for me to watch him in pain. He does see a vascular surgeon today. Finally

Thanks for your story. I also was diagnosed 2 years ago and worked nights as a correctional officer for several years. I'm 47 and female. My aneurism was embolized but I still have that fear of rupture everyday. ☹☹

Hello ALL..I was diagnosed with an aneurysmal dilitation of the distal celiac axis 2 years ago. Caught when I had a CTA of the chest due to severe back pain between my shoulder blades. I was diagnosed with a descending aortic dissection and had TEVAR to repair. No one really said anything about the celiac artery aneurysm because they were more concerned about the descending aortic dissection. My PCP actually told me that if it were to rupture I'd be dead before hitting the ground. I am currently in a new position and won't have insurance until October. I plan on getting a new PCP and going to MAYO in Jacksonville. I am scared everyday. I don't know my measurements on the celiac artery. Good luck to you all. Glad there are others like me. I am 53, female. Not overweight nor ever smoked. I am a nurse and worked night shift for years. Now on days.

Was in the hospital for a bladder polyp biopsy last week and he said basically the same thing... Mine is at 1.6 but told me to just get scans yearly, which I do anyway due to my bladder polyps..

Your observation regarding the inconsistencies among Doctors regarding how to treat Celiac Aneurisms troubles me as well. The inconsistencies are probably related to the rarity of the disease. The UCLA vascular surgeon I consulted told me that nothing should be done until the aneurysm reaches at least 1.6 cm and he doesn't expect that I will ever have it addressed. I was also told to live my life normally and have a CT every once in a while.

thanks for the reply.. But yes he does know it's a CAA.... I've seen numbers all over the place but most of the data I read say they will go in around 2.5 CM..

I think you may want to get a second opinion. He may be thinking of aorta aneurysm. My vascular surgeon will operate at 1.5. CAA is much more rare. Good luck.

I was also diagnosed with a Celiac Artery Aneurysm in May... I had my left kidney removed in 17 and then a surgical hernia repair this past October.. My CT scan BEFORE the hernia repair showed nothing.. This may when I had a follow-up CT scan showed a 1.6CM celiac aneurysm... Came out of nowhere. I have no symptoms either.. What I find odd though is the difference in the size of what Dr.'s consider a time to intervene.. That is the most distressing part to me.. My Dr. told me that 1.6CM is to small and he wouldn't suggest I do anything.. So at this point we will monitor with biannual CT scans and I go and live my life... I ain't gonna worry about it.. BTW I am 64 and WAS a smoker..