Celiac Artery Aneurysm: Anyone else with same illness?

Hello @ewillard and welcome to Mayo Connect.

I can certainly understand your discouragement and your "freaking out with how it was supposed to be rare and I have it again" as you said in your post. While I have never had this problem, I have had a rather rare disorder myself with reoccurrences. When a disorder is rare, it seems to create even more anxiety because it is something that only a few people can relate to. Is that the way you feel?

It sounds as if you are getting some good medical attention and I hope that your visit to UCSF is helpful to you. Will you provide an update and let us know how you are doing?

Prayers are with you. Has anyone found any form of relief for the aches/soreness feeling? I am trying all things to see if there might be a link to food. My first step has been to try and eliminate Gluten from my diet. It really has been hard to tell if it has helped. Some days I feel better and other days not so much. I just keep trying different things thinking something must be triggering it, but who knows at this point?

I hear UCSF is a great research hospital. I think this is a good referral and that you're in good hands. Ill.keep you in good vibes. Let us know...?

Sorry that you are having a recurrence but is good that you are having it addressed. Best wishes and please keep us informed.

I assume this is why they only repair when absolutely necessary. I am so sorry for what you have been through. I hope for your sake if the do a second repair it will be successful.
I go for an MRI in two weeks I have had three Ct scans so far no change to the aneurysm but the dissecting Mesonteric artery I hope they see some healing on. Best wishes for you!!

Hi I was diagnosed with a celiac artery anuerisym with dissection in 4/2010. I had severe abdominal pain for 2 weeks, lost 10 lbs before they did CT and found it. I had it repaired with immediate invasive open surgery. Since then, I have had issues with gerd, barretts disease, malnutrition, gastric and abdominal pain, bloating, and many tests to figure stuff out. Within the last 2 years, I have had intermittent abdominal pain and gastric issues with severe pain from mid upper abdomen between breasts under ribs to left side, 30 min to 5 hours in length. Yesterday 4/12/19 (9 years to the day of last surgery) I was diagnosed (AGAIN) with another celiac artery anuerisym. I have been referred to UCSF for further follow up and decisions. Has anyone else heard of someone being diagnosed again after repair? Needless to say, I am freaking out with how it was supposed to be rare and I have it again.

I too have both SMA dissection and celiac artery aneurysm. So far it’s watch and see. No offer of repair due to risks I assume I don’t seem to be having too many symptoms. Last month there was diarrhea and bloating but that seems to have resolved. They did a CT scan as apparently this can be a sign of something changing.

I am hopeful that sharing these posts will help you and the rest of us to seek and obtain appropriate treatment and resolution.

Best wishes for success and thanks for posting.

I was diagnosed in 2016 w/ Celiac artery stenosis and a dissection of my SMA superior mesentaric artery with a 70% blockage I had a SMA bypass using my left femeral artery in Feb. 2017 at OHSU in Oregon. I still continue to have pain and March 2018 was hospitalized for a week with a tube in my stomach pumping out blood. My Celiac issue was never addressed so I seemed a second opinion and am going in for an angiogram and possible stent April 24th in Medford.