Celiac Artery Aneurysm: Anyone else with same illness?
Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you
Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.
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Hi @finled...I'm new here...first post. My husband is 58 and a few weeks ago, they found a 1.3 cm celiac artery aneurysm on a Cat scan, that was for an unrelated gastric issue. The vascular surgeon wants to see him every 6 months, and if it gets to 2 cm. he will do endovascular repair. His advice was to stop smoking, no fattening food (control cholesterol), keep a very close eye on his blood pressure, no heavy lifting, and limit stress! Like you, I cannot believe it's almost 2021 and it is still so rare, that I cannot find anything on google for 'how to live with a celiac artery aneurysm". Take good care of yourself. All the best.
Thanks for adding that info Chris. I am 63 yers old and last Wednesday the Docs just found a 1,4cm celiac artery aneurysm on a Cat scan. i only know this because I have access via Mychart to my records and i read the results of the Scans. pretty bummed that after 5 days, i have not received a call. It is almost 2021 now and there still is little about this out there.
Hope you are doing well.
Oh Jen, I am really sorry to hear about a new aneurysm. Think positively, if you can. 🙄 At least it's small. How did they discover it? I'm coming up for my first tests for measuring growth since my CA was found last August. Then, it was 1.2 cm. I'm in Florida, so I understand your concern about no hospital beds. Please keep us posted and know that our best thoughts are sent your way. COVID free so far, too! 🤞Mary
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1 ReactionI wanted to thank everyone for their stories. i started this blog back when i was diagnosed with the CAA. I was so afraid there were no others with this. I appreciate people being able to open up and tell their stories. I wanted to follow-up on mine from 2016. I continued being monitored by surgeon after embolization with Cat Scan of abdomen yearly. A few days ago I became dizzy. I went to ER, hoping not to be exposed to COVID. Instead I was told I have another aneurysm on a blood vessel. Its located on back of neck right side. The size is .5 by .3 centimeter. Now I am freaking out. Am i a walking time bomb??? The hospital has no beds. So now Im waiting to be seen by neurologists. Keep you all updated. Oh yeah COVID
Free!!!
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1 ReactionHi @tjelderd and welcome to Mayo Clinic Connect. Have you been diagnosed with a Celiac Artery Aneurysm? Would you like to share your experience?
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1 ReactionDo they say they would put a stint in?
Factor V Leiden increases your chances of developing blood clots. That is why.
My doctor told me that whenever I have surgery that I must always tell the doctors about the Factor 5 - don't know why it is important but I tell them.
No surgery. Was on meds for 6 months and follow up. Second visit showed a smaller dissection. No idea how that happened.
My doc is awesome. I switched health insurance, he was out of network. I was prepared to pay for my annual follow up visit out of pocket (he is good and expensive).
HE WAIVED HIS FEE!
Indeed, @susangourdlady. Would you mind repeating your experience with Factor V Leiden?