Celiac Artery Aneurysm: Anyone else with same illness?

Agreeing with Sharon.
May God🌹be with you.🙏🙏

I never heard of using xarelto as a blood thinner and I’ve been on Coumadin for 10 years. Warfarin is the same thing pretty much and all I’ve been using is Coumadin.
Every Wednesday morning the lab comes to my house to draw blood and the results goes to my cardiologist and he determines my dose as it is up and down weekly.

I have facto 5 Leiden and have had a pulmonary embolism…I’m on xarelto (blood thinner) now and I will be taking it for life.
Has anyone ever taken toridol with factor 5 Leiden?

If I can interject here. I had a cat scan done for a heart valve issue. The doctor said that I was going to be transferred to a trauma hospital because you have a torn celiac artery aneurysm. Like you said. It’s very rare.

When I got to the trauma hospital the cardiovascular surgeon acknowledged it but I forgot to ask him how big it was. He said that it wasn’t bleeding so they felt it was ok to discharge me with a torn but not bleeding celiac aneurysm.
He told me to see my own cardiovascular surgeon which I did. Well my cardiovascular surgeon said that he didn’t see anything even though he’s been monitoring yearly. He was annoyed and rushed out of the exam room. Last week I had 2 MRI’s, 2 cat scans and a few regular X-RAYS and said nothing but my ENT saw it and told me it was at 3.7 with a tear in it. I was seeing an ENT for a paralyzed right vocal cord.
He suggested I see my cardiovascular surgeon and that surgeon said that 10 years ago my aneurysm was at 1.7 and it’s still at 1.7. I said great. A few months go by and that’s how I found it to be at 3. 7 cm with a small tear in it. My ENT found it even though I was going to him for a paralyzed vocal cord. He found the torn Aneurysm looking for something else. He found it by accident. What now? One sends me to a trauma hospital and he said that since it wasn’t bleeding. I could be discharged and follow up with my annoyed doctor. Well there is a difference between a 1.7 torn aneurysm and a 3.7 torn aneurysm! I don’t know what to do other than find another surgeon.

I was in a hospital ER for Coumadin poisoning ( my mechanical aortic Valve requires Coumadin for life. Normal level for me is 2.0 to 2.5 blood level but I was at 12.0! I was bleeding to death in my abdomen,
While there they said that they were going to have to send me to a trauma hospital for emergency surgery to repair my torn celiac artery. There ct scan had detected it.

Once the trauma hospital recognized it they told me that I had one but they felt I didn’t need emergency surgery because it wasn’t bleeding but to come back when it wasn’t an emergency later. They said to visit my cardiovascular surgeon. He was annoyed because he had appointments that needed his attention.

He said that he’s been watching it since 2017 when it was newly discovered. 6 years went by and my Celiac vessel aneurysm was at 1.7.cm 6 years ago and it was still 1.7 cm and not to worry about it. I’m to see him on a yearly schedule. I had no pain and the aneurysm hasn’t grown although I had a tear in it so to me that was a good sign. I didn’t need surgery. All doctors can do is observe it.

Well, Friday I went to the cardiovascular surgeon that laughed at me and this time I cornered him like a rat.
All I wanted is to know what size is it and the tear. No matter how big or tiny it was.
He grabbed my chart after I just had an echocardiogram or sonogram ( whatever it’s called) and he said “ look, I’ve been monitoring your aneurysm since 2017 and it was 1.7 cm then and today it reads 1.7 cm and I don’t see any bleeding going on and I don’t know why the hospital put you threw that.”
“So it hasn’t bulged in 6 years “
I said thank you, “that’s all I needed to know “ then he told me he was retiring and that he would find a good cardiovascular surgeon for me.

So now I’m concentrating on a health issue that has been going on for 3 years making me seek an ENT. My 1st visit he ran a flexible scope down my nostril and made me make several sounds. The news wasn’t good (or bad) yet. He said that my right vocal cord is “paralyzed ”.
Now I had to undergo 2 MRI’s back to back. The neck and the brain (looking for a possible stroke) I laid in that noisy MRI tube for 80 minutes. ( no headphones). Then he sent me for a swallow X-RAY you. Swallow contrast dye standing up. That was hospital number 1.
Then I was sent to a bigger hospital specializing in trauma surgery if needed.
I had a speech therapist put a bigger scope down my throat.
It had a little camera, a microphone and a bright light that made the movement of the vocal cord in slow motion. After I was finished with that he tells me that I had to go see a gastroenterologist ( I thought they were only for colonoscopies). But it was another test and another scope down my nostril. I fee him in a couple of weeks. Once I’m done all that I go see the ENT. He tells me I could have a nodule or cancer behind the fold. They call them “ folds”

Whatever it is requires surgery to repair the gap between the folds which is what I have. They use fat from your leg and put it between the 2 folds and that repairs it. ( for a while) no guarantees. Monday I go see my PCP as he wants to know what’s going on. The ENT he referred me too has not been updating my progress. Hopefully it’s not cancer. That’s the last thing I need. We’ll see how it turns out.

Hoping all the best and you get it repaired.

I’m living with a celiac Artery aneurysm. My cardiovascular surgeon said that I shouldn’t worry about it. A recent different ER visit found that I had this torn aneurysm. The doctor said “we are going to have to transfer to a trauma hospital for emergency surgery and off I went

The trauma hospital acknowledged it and said “well, it’s not bleeding right now so we wasn’t you to come back to our hospital but right now we feel “safe discharging you” and they did. I am also on a blood thinner so I could bleed out quickly but my cardiovascular surgeon said
“ see you next year “. Could it burst I asked him and he said that it could. And it’s been a year and I’m seeing him Tuesday. We’ll see what he says.

Hi I had a celiac aneurysm which ruptured and caused damage to my spleen and liver. I had a massive blood loss and was very lucky to have survived. It took 3 days before the hospital realised how serious my condition was. The specialist repaired a second aneurysm a bit further up the celiac truck with stent and coils.

Jen - I just had a similar response on wait and see. I'm not comfortable with that and was wondering how you progressed? Seems like the ER and Vascular Dr. want to wait...to see if my pain is gastro or anerisum.