Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Jen | @jurney01 | Jun 1 6:44pm

Hello all. I started this topic 10 year ago not knowing what to expect. Thank you all for your information. I now have Superior Mesenteric Artery Syndrome (SMAS) is an incredibly rare condition, with experts estimating that only.01
to .3 of the general population has it. I underwent a procedure we're 2 stents were placed in the artery at University of Pennsylvania in Philadelphia. My vascular surgeon had me following up every 2 years. She said my celiac embolism changed over the past year also. My appendix also had to be removed last year. Apparently, this is probably genetics. My luck. I will be following up with Dr on 29th of June. Thank you everyone again and stay healthy!!!

williampullen | @williampullen | May 27 8:37am

In reply to @janet26 "Its good to hear it may self heal thanks for that I can hope" + (show)

@janet26
Hi Janet - may i ask what do you mean by self heal?

pc1veteran | @pc1veteran | May 8 1:46pm

I seem to fit this posting. I am male, 72 yoa. In my recent CT scan to monitor the growth of my ascending aortic aneurysm (see 1 below) , the radiologist also spotted a celiac artery issue (see 2 below). Ugh!

1. Stable fusiform aneurysmal dilatation of ascending aorta measuring 4.9 × 5 cm. No evidence of dissection.
2. Focal dissection in distal celiac artery without evidence of stenosis. Mild aneurysmal dilatation of distal third of celiac artery measuring 1.3 cm.

A subsequent follow up at my cardio thoracic surgeons office by his PA indicated I will stay in a “monitoring” status, since there is no growth of my TAA; and the PA didn’t seem to be concerned about the newly discovered small celiac aneurysm. I can continue going to the gym doing lite workouts and doing my aerobic walks throughout the neighborhood. Since my BP is good, no issue there either. No use worrying about it all. Just keep trucking, so to speak.

mjpisa | @mjpisa | May 7 8:03am

Not sure but one of the posts may be confusing celiac artery aneurysm for celiac disease and aneurysm which are different

williampullen | @williampullen | May 6 12:56pm

In reply to @mjpisa "Hello according to us news, cardiology, heart and vascular surgeryhttps://health.usnews.com/best-hospitals/rankings/cardiology-and-heart-surgery, would read the report as pt...." + (show)

@mjpisa Thank you for this.

marylou8910 | @marylou8910 | May 5 1:30pm

I was just diagnosed with a 2.5 cm aneurysm and I am a Celiac. Dr said not to worry as it’s very small

marylou8910 | @marylou8910 | May 5 1:26pm

Yes, I just found out I have one that is 2,5 cm. Dr says not to worry, it’s small.

mjpisa | @mjpisa | May 4 6:57pm

Hello

according to us news, cardiology, heart and vascular surgeryhttps://health.usnews.com/best-hospitals/rankings/cardiology-and-heart-surgery, would read the report as pt. experience at these places varies too.

1. nyu langone
2. mt sinai
3. Cleveland clinic
4 Mayo Clic
5. ny presbyterian Columbia/Cornell