Celiac Artery Aneurysm: Anyone else with same illness?

Oh yes! Especially on the legs... I found I had Factor 5 when I had a knee replacement and my entire leg was clotted. This was in 2000, right after the Genome Project was completed, and several specialists were consulted on my case. One sent off a blood sample to Mayo after my telling him my mother and my cousin had serious blood clots and my cousin died of one after knee surgery. Sure enough, Factor 5. I have since had another knee replaced and a broken femur which require having a rod placed inside the bone. These were all fine, but they were carefully watching me.
After I'd been on Xarelto for a couple of years, I had a shunt to drain fluid from my eye inserted. Two different hematologists told me to stay off Xarelto for two days. I had a bleed during the surgery and then about a month later, on the day I was having my stitches out, I had a massive bleed in the eye - the eye actually collapsed at one point. Two surgeries later, we waited for improvement but the optic nerve was damaged. The retina specialist told me later that I should have off Xarelto for TEN days, not two - I had actually taken off four days, just because Xarelto can be scary. This is because there are a huge number of teeny blood vessels and they are all weak, he said. Also my hematologist told me later that Factor 5 makes a particularly hard clot that's very difficult to dissolve. I can see light and dim shapes with that eye but it's not really useful and I am old enough that I haven't managed to adapt my brain to the new situation. No depth perception, mixed dominance. So pay attention to what your doctor says, especially when it involves your eyes...

I fell off a cliff in the jungles of Costa Rica. I cracked my sternum and they found a celiac artery aneurysm that is 1.5cm in size. I was told that so long as it is stable they will monitor every two years. I was told that I would know if the aneurysm ruptures is by back pain. I have several disc's out in my back and have chronic back pain. I am nervous that I won't recognize the correct symptoms and end up bleeding out. The UW ER doea nothing for back pain so I would never go into the ER for back pain. Are there other symptoms that a person would recognize?

I read in one of the comments that one of the members on Mayo Clinic Connect had a celiac artery aneurysm repaired by an embolization w/ coils procedure back in 2016. My husband has a celiac artery aneurysm that is 1.5 cm in size, and I have read on this site that usually these aneurysms are repaired when they reach 2 cm in size. We are very interested in a less invasive approach and are wondering if Mayo Clinic's Vascular Surgery department repairs celiac artery aneurysms with this less invasive endovascular approach or if this is an endovascular procedure repaired by interventional radiology. Any information regarding this issue would be most helpful. Thank you all and best wishes for good health.

Hi - I am in Australia too. Let us know how you are doing with your surgery plan - or how did you go? PM me if you want to chat.

I too have a CAA and a dissection in that artery. The dissection is more of a concern than the aneurysm until it reaches 2.0 cm or increases in size rapidly. My drs instructed me not to lift more than 10# and watch my breathing and exertion. Also to watch my blood pressure and keep it as low in the correct ranges as possible.
That artery feeds many organs so any lower back pain should be a concern.
I've been on a 6 month cadence for 4 scans and after this next one I'll go to 12 months if nothing has changed.
I also have an ascending aorta aneurysm at 4.3 cm which comes with the same instructions.
Since you don't have a tear or rupture, medical professionals don't see immediate need to surgically intervene. However, relax more if you can and keep a keen eye on it and follow all of your instructions. Since it is smooth on both ends it seems there isn't an abrupt interference with blood flow that may give your drs something more to be concerned about.

You shouldn’t worry needlessly. I was diagnosed 10 years ago and it has remained the same.
He sees me once a year with no new symptoms or growth.

Is there anyone on here whereby the hospital did testing for connective tissue disorders/diseases?
I wonder because they told me that having aneurysms can be a sign of connective tissue disorders?

Are you sure it was in the celiac artery? Because wow, what a story. If I knew my aneurysm has a tear or is ruptured, I wouldn’t leave the hospital. I would demand answers and help. I mean you are lossing blood?

Hang in there. The fact that you're under a doctor's care and monitoring it means you're better off than 99% of the people out there who do not know that they have this condition. Peace.

My celac artery dissected recently. The doctors think it could fix itself. I have a new scan in 6 months to see how I am doing. It is a lot to digest, but I've worked as a medical professional for over 30 years. It has helped my own understanding of everything.