Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@hopeful33250

Thank you so much for your update @auntbrenda44. I'm sure you are relieved to have this surgery scheduled and to be progressing in the resolution of this problem. I hope that others who have had the open procedure will post with you to let you know of their experiences. If the invasive surgery will eradicate the aneurysm, I can understand why that would be preferable.

You and your doctor are to be congratulated for persisting in getting the approval for a CT scan. It takes a lot of follow-ups to make these procedures happen. Please keep in touch before the surgery and let us know how you are doing.

Do you know how long you will be hospitalized after the surgery? Will you have support/help when you return home?

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Dear Teresa, thank you for your continued kind thoughts. It means a great deal to me.

I was told that the less invasive (stent) procedure is not an option. I do not know why. I suspect it may be due to my BMI.

It certainly was frustrating to worry about being approved for the CTA. I am unable to tolerate a traditional or pharmaceutical stress test so this CAT scan ordered by my cardiologist is vital to being cleared for surgery.

I do not yet know how long my anticipated hospital stay will be. I am meeting with my vascular surgeon on the 24th and expect to get the details.

I live alone and am cautiously optimistic about being able to recuperate on my own for the most part. My son and my brothers will be available to come by. Although both brothers offered for me to recover at their homes I prefer to be at my own and deeply hope that this is realistic.

Thank you again. It truly helps to communicate with someone who understands and I am sincerely grateful.

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@auntbrenda44

Hello Teresa. I hope that this finds you well. It looks like my surgery will be the first week in June. I have a CTA scheduled for next Friday (took 3 tries for insurance to approve) and then will be meeting with my vascular surgeon the following Monday. I am reaching out to see if anyone has experience with the open procedure and perhaps would be willing to share their experience, recovery, etc. Continued many thanks, Brenda

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Thank you so much for your update @auntbrenda44. I'm sure you are relieved to have this surgery scheduled and to be progressing in the resolution of this problem. I hope that others who have had the open procedure will post with you to let you know of their experiences. If the invasive surgery will eradicate the aneurysm, I can understand why that would be preferable.

You and your doctor are to be congratulated for persisting in getting the approval for a CT scan. It takes a lot of follow-ups to make these procedures happen. Please keep in touch before the surgery and let us know how you are doing.

Do you know how long you will be hospitalized after the surgery? Will you have support/help when you return home?

REPLY
@auntbrenda44

Hello Teresa. I hope that this finds you well. It looks like my surgery will be the first week in June. I have a CTA scheduled for next Friday (took 3 tries for insurance to approve) and then will be meeting with my vascular surgeon the following Monday. I am reaching out to see if anyone has experience with the open procedure and perhaps would be willing to share their experience, recovery, etc. Continued many thanks, Brenda

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P.S. Turns out the oirginal sizing of the aneurysm was incorrect. Newest film shows 2.5cm x 1.9cm.

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@hopeful33250

Thanks for your response, @auntbrenda44. It sounds like everything is coming along. I would like to hear how you are progressing. Will you keep in touch with updates as to the surgery date and any other concerns you might have? Did your doctor give you any idea how long you might be hospitalized after surgery?

Jump to this post

Hello Teresa. I hope that this finds you well. It looks like my surgery will be the first week in June. I have a CTA scheduled for next Friday (took 3 tries for insurance to approve) and then will be meeting with my vascular surgeon the following Monday. I am reaching out to see if anyone has experience with the open procedure and perhaps would be willing to share their experience, recovery, etc. Continued many thanks, Brenda

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@auntbrenda44

Hello. I’m new here. My celiac artery aneurysm is 2cm. I was diagnosed recently and my vascular surgeon advised that I will likely require an open surgical procedure as opposed to a stent. At this time I’m still having more CT scans and working with a cardiologist as I must be cleared by him first. When I first heard the work aneurysm I panicked as my mom died of an aortic aneurysm rupture. Sometimes I feel like I’m walking around with a time bomb. I’ve been trying to find information as to things to avoid, i.e foods, activities etc. Thank you for reading.

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My surgeon said that surgery shouldn't be considered unless the aneurysm is at least 2.5 cm. I have done some of my own research by reading articles in the Journal of American medical association and Journal of Vascular surgery and I have found articles that agree with him. Also from what I have read Aortic Aneurysms are much more likely to rupture than Aneurysms in the Celiac Artery.

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@auntbrenda44

Dear Teresa, thank you very much for your welcome and response to my post. I sincerely appreciate your kindness. I am embarrassed to say that at the time that I met with the vascular surgeon my mind was all over the place and I did not ask about the reason for an open procedure rather than a stent. I suspect that it may be due to my BMI. It was explained to me that the invasive procedure will eradicate the aneurysm rather than a stent. Of course I intend to discuss this with the doctor. Very anxious to have it done and start recuperating. I was told it would likely be a 6-8 week recovery, something I am not looking forward to as I am sure no one is. I am hopeful that I will be cleared for surgery by the end of this month and be on schedule. Thank you again.

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Thanks for your response, @auntbrenda44. It sounds like everything is coming along. I would like to hear how you are progressing. Will you keep in touch with updates as to the surgery date and any other concerns you might have? Did your doctor give you any idea how long you might be hospitalized after surgery?

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@hopeful33250

Hello @auntbrenda44

I would like to welcome you to Mayo Clinic Connect, where patients like us can give and receive support. I would also like to invite @dkmullins68, @mike9560, and @bdickinson666 to join this discussion with you as they have dealt with a similar condition.

I congratulate you for taking this matter seriously and for pursuing help to treat it. Since your mother had an aneurysm you know how important it is to treat it.

Did your doctor indicate why you would need the open surgery rather than the stent? Is it based on the size or location?

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Hello @hopeful33250. Thank you for your kind and encouraging message. I will be discussing the reason for the open procedure with my doctor. I suspect it may be due to my BMI, lack of exercise etc.

My sincere appreciation and best wishes.

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@upartist

I am responding to AuntBrenda44. I understand your fear, especially with your mom having passed from an aortic rupture. It is good that your celiac aneurysm has been discovered and the steps for treatment have begun. Treatments and imaging have advanced a long way. It sounds like your Docs are approaching carefully. I hope that your surgery goes smoothly and you can approach activity without fear, but informed. I think, and others correct me if I am wrong, the general rule of thumbs is keeping the blood pressure under control. This includes resistive lifting, medication, and general stress. Your docs should be able to guide you with more direct parameters specific to you. Not all aneurysms are created equal. I hope this helps. Open discussion allows us to vent, which helps relieve a bit of stress. Good luck with your procedure and be positive!

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Dear @upartist my sincere gratitude for your response to my post. I greatly appreciate your advise and kindness and positivity. My best wishes.

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@hopeful33250

Hello @auntbrenda44

I would like to welcome you to Mayo Clinic Connect, where patients like us can give and receive support. I would also like to invite @dkmullins68, @mike9560, and @bdickinson666 to join this discussion with you as they have dealt with a similar condition.

I congratulate you for taking this matter seriously and for pursuing help to treat it. Since your mother had an aneurysm you know how important it is to treat it.

Did your doctor indicate why you would need the open surgery rather than the stent? Is it based on the size or location?

Jump to this post

Dear Teresa, thank you very much for your welcome and response to my post. I sincerely appreciate your kindness. I am embarrassed to say that at the time that I met with the vascular surgeon my mind was all over the place and I did not ask about the reason for an open procedure rather than a stent. I suspect that it may be due to my BMI. It was explained to me that the invasive procedure will eradicate the aneurysm rather than a stent. Of course I intend to discuss this with the doctor. Very anxious to have it done and start recuperating. I was told it would likely be a 6-8 week recovery, something I am not looking forward to as I am sure no one is. I am hopeful that I will be cleared for surgery by the end of this month and be on schedule. Thank you again.

REPLY
@auntbrenda44

Hello. I’m new here. My celiac artery aneurysm is 2cm. I was diagnosed recently and my vascular surgeon advised that I will likely require an open surgical procedure as opposed to a stent. At this time I’m still having more CT scans and working with a cardiologist as I must be cleared by him first. When I first heard the work aneurysm I panicked as my mom died of an aortic aneurysm rupture. Sometimes I feel like I’m walking around with a time bomb. I’ve been trying to find information as to things to avoid, i.e foods, activities etc. Thank you for reading.

Jump to this post

Hello @auntbrenda44

I would like to welcome you to Mayo Clinic Connect, where patients like us can give and receive support. I would also like to invite @dkmullins68, @mike9560, and @bdickinson666 to join this discussion with you as they have dealt with a similar condition.

I congratulate you for taking this matter seriously and for pursuing help to treat it. Since your mother had an aneurysm you know how important it is to treat it.

Did your doctor indicate why you would need the open surgery rather than the stent? Is it based on the size or location?

REPLY
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