Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

I have a 14mm celiac artery aneurysm on a 7mm artery and found by a CT I have Gastropareses also and GERD I was on Prilosec for about 10 years way to long! Was going to have the Wrap to solve it but a snowstorm happen and it got put off. I was told I could get off the Prilosec after the operation. So, I decided to do it ahead of time since over the 10-year period I had been on way too many drugs that were not fixing anything? My GERD got under control once off the Prilosec so I stopped the operation since they said it may not work and could cause more problems. I am pretty upset about all the wrong things done to me over the years like being treated for COPD and not having it. On 3 inhalers till I was so sick I gave up and quit all my drugs and then got a lot better. Doctors are not happy with me but I feel the same about them right now. This Gastric problem was so bad with all the Small Intestine Bacterial growth's and just more antibiotics to solve it. Those have gone away now I breath so much better, but the chest pain is still there? I use Lidocaine for it and swallow it sometimes 3 times a day for the pain. I got off the 7.5 Hydrocodone's 4 times a day they had me on for pain due to all the problems it caused!! I feel the celiac artery aneurysm is the cause of my pain or MAULS just living in a Rural Area I was blown off when they found it and said to dangerous to fix and we will watch it. Then they forgot about it. I have a new doctor I will see doon and a 100% Disabled Veteran with PTSD too so the care I have got on the inside and outside has been substandard to say the least. They have cut a duct on my Pancreases and were surprised I got better so fast but it was because of all the Dreon I was taking that I stopped. It was not needed another drug they were trying. I am scared to have them treat me anymore over all this. Filled a complaint and was told this is how we do stuff to find answers. Well, the celiac artery aneurysm to me may be the whole problem I so not want to wait for it to burst and going to try to have it looked at again by the new doctor. I am 70 years old 5' 5" and 130 lbs I lost 30 lbs in a year once from 150 lbs not eating right. Now off the Prilosec I can eat better just wish they said do that on and how to do it. I started taking the pills apart and making them smaller for many weeks till off them. That worked but cold turkey was horrible to do but this worked without the acid overload. I read a lot on this, and I know it is rare, but the pain is a problem. They have looked inside me both ends many times and see nothing wrong? It is time for the celiac artery aneurysm to be corrected and a real doctor to deal with it that knows what to do. Been a long post but so has my journey to get better! Was hoping to hear those others have gone thru what I have here so I joined. Thanks for any help. Mark

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@tallbeachbum

I have been diagnosed with a fusiform aneurysmal dilation of the celiac artery 1.8 cm x 1.4 cm just below its origin on Oct 28 2021 . The VA is my primary and they can not take the case so they are looking outside the VA . I have no pain or symptoms. They found it doing a CT scan for my heart and chest arteries. The only other case beside yours is a 30 year old male with 3 gunshot wounds to his abdomen. They are supposed to be formed by trauma . I had a bad accident 34 years ago and had trauma to my kidneys and broke my left femur. How was your 2019 test . Did the doctor tell you what activities you can do or not do ?

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Hello @tallbeachbum

As it's been a while since you last posted, I was wondering how you are doing. Have you found a doctor, outside of the VA, who can provide an opinion on your aneurysm?

I hope you are feeling well.

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@tompatrick1234

Hi Jen how are u doing.I no its been awhile but I just want to know how the surgery was?hope I hear from you.God bless

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Hello @tompatrick1234 and welcome to Mayo Clinic Connect!
I appreciate your follow-up with Jen about her surgery.

Did a diagnosis of celiac artery aneurysm bring you to Mayo Connect? Please post as you are comfortable doing so.

I look forward to hearing more from you.

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Hi Jen how are u doing.I no its been awhile but I just want to know how the surgery was?hope I hear from you.God bless

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@colleenyoung

Jen, like @hopeful33250 I too would like to get to know about you. I didn't find another Connect member with a diagnosis of celiac artery aneurysm. As you point out, it is very rare. But given that the celiac artery is the first major branch of the abdominal aorta, I thought you might appreciate the introduction to a few members who have recently been talking about living with an abdominal aortic aneurysm. Please let me introduce you to @janetpomponio @kdh1 @playsdixie @elsinann and @lynnkay1956. You may also wish to read this older and ongoing discussion http://mayocl.in/1WX0ypo

Jen, are you a candidate for surgery?

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I am just seeing this but ironically I too was diagnosed about the same time. They did not operate because the aneurysm was too small. I havent had insurance so I have just let it ride. Can you tell me how you are doing?

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Ok great , that was my plan as well. Thank you Kevin

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@tallbeachbum

I have been diagnosed with a fusiform aneurysmal dilation of the celiac artery 1.8 cm x 1.4 cm just below its origin on Oct 28 2021 . The VA is my primary and they can not take the case so they are looking outside the VA . I have no pain or symptoms. They found it doing a CT scan for my heart and chest arteries. The only other case beside yours is a 30 year old male with 3 gunshot wounds to his abdomen. They are supposed to be formed by trauma . I had a bad accident 34 years ago and had trauma to my kidneys and broke my left femur. How was your 2019 test . Did the doctor tell you what activities you can do or not do ?

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I live a very normal life. I can do whatever I want. I add a note to review with my doctor every year for my physical. The doctor that treated me said to check every five years. Do whatever your doctor suggests.

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@tvickey

I was diagnosed with this in 2016. My doctor’s notes suggest:

Better redemonstration and confirmation of 2.1 cm fusiform aneurysmal dilatation of the celiac artery. Associated occlusive dissection with thrombus formation likely within the false lumen involving the celiac artery, proximal common hepatic artery, and origin splenic artery. Etiology of this is unclear. This can be seen in association with underlying vasculitis. No other findings to suggest vasculitis as far as visualized.

I presented with similar symptoms, severe pain in low back with nausea. From onsite of initial pain (while sitting in my barber’s chair hoping he would finish quick because I needed to vomit) until the time I ended up in the ER was 90 minutes. Was on a Friday night. ER doctor sent me home, couldn’t find any reason for the pain. I suffered thought the Memorial Day week and was first in line to see my primary care doctor on Tuesday. He immediately sent me to a general surgeon who admitted me to the hospital (same one I had gone to on the Friday).

I was lucky that the general surgeon was a very experienced doctor with 40+ years of medical practice. He had seen this before and knew what to test and sent me to the vascular surgeon who explained to me “it is like you have wallpaper in the walls of your arteries. For some reason, the wallpaper is peeling from the top and blood is getting behind the wallpaper causing the issue”. Great explanation. The pain was explained as my spleen dying from lack of blood flow. Don’t know if that is a common symptom.

Was in hospital for four days, started on blood thinners (stayed on for 6 months) and re-scanned with no issues. Follow up visit in 2019, no issues.

If I can be of help to anyone here, please let me know.

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I have been diagnosed with a fusiform aneurysmal dilation of the celiac artery 1.8 cm x 1.4 cm just below its origin on Oct 28 2021 . The VA is my primary and they can not take the case so they are looking outside the VA . I have no pain or symptoms. They found it doing a CT scan for my heart and chest arteries. The only other case beside yours is a 30 year old male with 3 gunshot wounds to his abdomen. They are supposed to be formed by trauma . I had a bad accident 34 years ago and had trauma to my kidneys and broke my left femur. How was your 2019 test . Did the doctor tell you what activities you can do or not do ?

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I was diagnosed with a Fusiform Celiac Artery Aneurysm Oct 28 2021 from a CT scan that was to check out my heart and arteries . It is 1.8 x1.5 cm . With no symptoms. The only trauma I have had was a car wreck 34 years ago that was very bad.
I’m 62 years old in good shape and the VA here in Hampton VA is my Primary Care sines I have retired, the VA here can not help me because it is so rare. I have read all these post from being to end and have only seen 1 post about a Fusiform Celiac Aneurysm on this group. I’m sure when the VA clinic finds me a Vascular Doctor it will be a wait and see as well. But I agree, to be so rare there are a lot of post on this site . So if there is anyone on here that has been diagnosed with a Fusiform Celiac Artery Aneurysm I would like to talk with you. The only post I saw I think was in 2019 on this group.
Before the diagnosis I was walking on the beach a lot , riding my bike, playing golf , and other wise doing what I wanted to.

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Today marks three years since I had my celiac aneurysm surgery. Unfortunately they were unable to stop the blood flow even with the stents and coils they did so we continue to monitor it. unfortunately the aneurysm grew a little on the last visit but it seems the blood flow and pressure is not as big a concern as it was prior to the surgery. Best of luck to all. If we are here writing we are the fortunate.

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