Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

@lisalucier

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

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what are they doing for yours i was pretty upset today when i found out tried to call my doctor or talk to a nurse to make my self feel better no one got ahold of me i found out on my portal the test results i had the test done in march and just finding out today

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@pamelasnell51458

hi my name is pam i have the same it was found accidentally it really upset me do you have any suggestions on this

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no i didn’t blood pressure is elevated

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@kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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hi my name is pam i have the same it was found accidentally it really upset me do you have any suggestions on this

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@lisalucier

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

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Can confirm that it was 2.3cm in Jan and I just went back for another CT to see if it has gotten bigger. The nausea ramps up when I stand up and after a bit of activity, I just 'crash'. I would suspect that an ultrasound would be next to test this standing up and supine to measure blood speeds in these different positions. At least that's what the research says.

Amazed that this happens in only 4% of VAAs. Or maybe new imaging techniques are catching more now.

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@patvr

I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack where I subsequently had my gall bladder removed. It's currently 2.3cm and I was just wondering about symptoms. When laying down, supine or prone. I have no discomfort. When I stand, within minutes I get nauseous and this does not stop until I lay down again. Is this due to the left gastric artery being impeded somehow due to gravity?

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Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

REPLY

I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack where I subsequently had my gall bladder removed. It's currently 2.3cm and I was just wondering about symptoms. When laying down, supine or prone. I have no discomfort. When I stand, within minutes I get nauseous and this does not stop until I lay down again. Is this due to the left gastric artery being impeded somehow due to gravity?

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@tvickey

My doctor told me that whenever I have surgery that I must always tell the doctors about the Factor 5 - don't know why it is important but I tell them.

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Oh yes! Especially on the legs... I found I had Factor 5 when I had a knee replacement and my entire leg was clotted. This was in 2000, right after the Genome Project was completed, and several specialists were consulted on my case. One sent off a blood sample to Mayo after my telling him my mother and my cousin had serious blood clots and my cousin died of one after knee surgery. Sure enough, Factor 5. I have since had another knee replaced and a broken femur which require having a rod placed inside the bone. These were all fine, but they were carefully watching me.
After I'd been on Xarelto for a couple of years, I had a shunt to drain fluid from my eye inserted. Two different hematologists told me to stay off Xarelto for two days. I had a bleed during the surgery and then about a month later, on the day I was having my stitches out, I had a massive bleed in the eye - the eye actually collapsed at one point. Two surgeries later, we waited for improvement but the optic nerve was damaged. The retina specialist told me later that I should have off Xarelto for TEN days, not two - I had actually taken off four days, just because Xarelto can be scary. This is because there are a huge number of teeny blood vessels and they are all weak, he said. Also my hematologist told me later that Factor 5 makes a particularly hard clot that's very difficult to dissolve. I can see light and dim shapes with that eye but it's not really useful and I am old enough that I haven't managed to adapt my brain to the new situation. No depth perception, mixed dominance. So pay attention to what your doctor says, especially when it involves your eyes...

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I fell off a cliff in the jungles of Costa Rica. I cracked my sternum and they found a celiac artery aneurysm that is 1.5cm in size. I was told that so long as it is stable they will monitor every two years. I was told that I would know if the aneurysm ruptures is by back pain. I have several disc's out in my back and have chronic back pain. I am nervous that I won't recognize the correct symptoms and end up bleeding out. The UW ER doea nothing for back pain so I would never go into the ER for back pain. Are there other symptoms that a person would recognize?

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I read in one of the comments that one of the members on Mayo Clinic Connect had a celiac artery aneurysm repaired by an embolization w/ coils procedure back in 2016. My husband has a celiac artery aneurysm that is 1.5 cm in size, and I have read on this site that usually these aneurysms are repaired when they reach 2 cm in size. We are very interested in a less invasive approach and are wondering if Mayo Clinic's Vascular Surgery department repairs celiac artery aneurysms with this less invasive endovascular approach or if this is an endovascular procedure repaired by interventional radiology. Any information regarding this issue would be most helpful. Thank you all and best wishes for good health.

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@bdickinson666

Yes, thank you, I am seeing a vascular surgeon to determine what surgery should be done

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Hi - I am in Australia too. Let us know how you are doing with your surgery plan - or how did you go? PM me if you want to chat.

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