Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

I was recently diagnosed with a 4.6 ascending thoracic aneurysm and an additional aneurysm was found in the celiac artery measuring 1.2 cm. My cardiologist at MGH believes that suggests a congenital vasculopathy. I will keep you informed. Presently, my surgery for the triple A is awaiting a re-examine in December. No action on the celiac aneurysm was recommended at this time.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

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what are they doing for yours i was pretty upset today when i found out tried to call my doctor or talk to a nurse to make my self feel better no one got ahold of me i found out on my portal the test results i had the test done in march and just finding out today

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Profile picture for pamelasnell51458 @pamelasnell51458

hi my name is pam i have the same it was found accidentally it really upset me do you have any suggestions on this

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no i didn’t blood pressure is elevated

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Profile picture for Kari Ulrich, Alumna Mentor @kariulrich

I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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hi my name is pam i have the same it was found accidentally it really upset me do you have any suggestions on this

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

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Can confirm that it was 2.3cm in Jan and I just went back for another CT to see if it has gotten bigger. The nausea ramps up when I stand up and after a bit of activity, I just 'crash'. I would suspect that an ultrasound would be next to test this standing up and supine to measure blood speeds in these different positions. At least that's what the research says.

Amazed that this happens in only 4% of VAAs. Or maybe new imaging techniques are catching more now.

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Profile picture for patvr @patvr

I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack where I subsequently had my gall bladder removed. It's currently 2.3cm and I was just wondering about symptoms. When laying down, supine or prone. I have no discomfort. When I stand, within minutes I get nauseous and this does not stop until I lay down again. Is this due to the left gastric artery being impeded somehow due to gravity?

Jump to this post

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

REPLY
Profile picture for nicothegreek1 @nicothegreek1

i found out the same way (CT) after a bilateral hernia surgery , mine is 1.5 cm , i was very healthy 68 years old , anyway how are you doing today? is your celiac artery aneurysm got bigger?

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Mine is at 2.3cm and I get nauseous when I stand up. Working with the doctors now to see if it's this or my recent lap choly that is causing these symptoms

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Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

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Has anyone here with this experienced nausea, only when standing up? I am fine if I lay down but minutes after standing up I start to feel ill. If i lay down, it guess away again. Mine celiac artery aneurysm is currently at 2.3cm and have just had my 2nd CT. I would suspect ultrasound is next.

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I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack where I subsequently had my gall bladder removed. It's currently 2.3cm and I was just wondering about symptoms. When laying down, supine or prone. I have no discomfort. When I stand, within minutes I get nauseous and this does not stop until I lay down again. Is this due to the left gastric artery being impeded somehow due to gravity?

REPLY
Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

Jump to this post

i found out the same way (CT) after a bilateral hernia surgery , mine is 1.5 cm , i was very healthy 68 years old , anyway how are you doing today? is your celiac artery aneurysm got bigger?

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