Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Hang in there. The fact that you're under a doctor's care and monitoring it means you're better off than 99% of the people out there who do not know that they have this condition. Peace.

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My celac artery dissected recently. The doctors think it could fix itself. I have a new scan in 6 months to see how I am doing. It is a lot to digest, but I've worked as a medical professional for over 30 years. It has helped my own understanding of everything.

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Hello-please see my post at the celiac artery dissection thread as celiac aneurysm can occur with this issue. Hope this helps. Also, there are two types of celiac aneurysms-true and false which determines how they are treated. My personal advice is to always seek a second opinion for serious medical issues like this with a specialist (like a vascular surgeon) at a tertiary care center where these rarer problems are treated more frequently. Hard to balance anxiety of the risks and concerns of monitoring vs the risks of treatment.

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Would love any additional updates from anyone my husband also just had this and they have done nothing, and basic just a wait and see. That does not really sit well with me, feel like we should be more proactive?

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Dear All
Thank you for sharing the information as above.
I was diagnosed with a celiac artery Aneurism in 2020 and the size was 1.cm . Last year due to my abdominal pain after CT scans the result show an increase of the size to 1.1cm .
My Dr advise to observe if the aneurysm grows further before considering surgical intervention. Surgery
I will appreciate if anyone could advise me on the above issue .
Thx
Wendy

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@andytheman

I never heard of using xarelto as a blood thinner and I’ve been on Coumadin for 10 years. Warfarin is the same thing pretty much and all I’ve been using is Coumadin.
Every Wednesday morning the lab comes to my house to draw blood and the results goes to my cardiologist and he determines my dose as it is up and down weekly.

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I have researched zarelto and it is a blood thinner. I thought it was either Coumadin or warfarin (same thing).
You learn something new every day

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@sharon255

Hoping all the best and you get it repaired.

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Agreeing with Sharon.
May God🌹be with you.🙏🙏

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I never heard of using xarelto as a blood thinner and I’ve been on Coumadin for 10 years. Warfarin is the same thing pretty much and all I’ve been using is Coumadin.
Every Wednesday morning the lab comes to my house to draw blood and the results goes to my cardiologist and he determines my dose as it is up and down weekly.

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In reply to @susangourdlady "It might have been me." + (show)
@susangourdlady

It might have been me.

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I have facto 5 Leiden and have had a pulmonary embolism…I’m on xarelto (blood thinner) now and I will be taking it for life.
Has anyone ever taken toridol with factor 5 Leiden?

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@hopeful33250

@jurney01 Hi Jen: I just saw your post regarding your health problem. I'm so sorry to hear about that, but I'm glad that you were able to have a procedure to help. While I've never been diagnosed with this, I also have a rare disorder, Neuroendocrine tumors, and I know how important it is to connect to others who are also going through something similar. Hopefully, someone on Mayo Connect will be able to relate with you and share their experiences. I see that you just recently joined Mayo Connect so let me welcome you to this very supportive, encouraging community. We are here for each other and learn from each other!

I "googled" the disorder and I see that is very rare. If you would like to share your experience, please let us know how your doctor found this aneurysm and if you were having specific symptoms or if it was just found incidentally. Best wishes to you as you share your experience and find help and support from others! Teresa

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If I can interject here. I had a cat scan done for a heart valve issue. The doctor said that I was going to be transferred to a trauma hospital because you have a torn celiac artery aneurysm. Like you said. It’s very rare.

When I got to the trauma hospital the cardiovascular surgeon acknowledged it but I forgot to ask him how big it was. He said that it wasn’t bleeding so they felt it was ok to discharge me with a torn but not bleeding celiac aneurysm.
He told me to see my own cardiovascular surgeon which I did. Well my cardiovascular surgeon said that he didn’t see anything even though he’s been monitoring yearly. He was annoyed and rushed out of the exam room. Last week I had 2 MRI’s, 2 cat scans and a few regular X-RAYS and said nothing but my ENT saw it and told me it was at 3.7 with a tear in it. I was seeing an ENT for a paralyzed right vocal cord.
He suggested I see my cardiovascular surgeon and that surgeon said that 10 years ago my aneurysm was at 1.7 and it’s still at 1.7. I said great. A few months go by and that’s how I found it to be at 3. 7 cm with a small tear in it. My ENT found it even though I was going to him for a paralyzed vocal cord. He found the torn Aneurysm looking for something else. He found it by accident. What now? One sends me to a trauma hospital and he said that since it wasn’t bleeding. I could be discharged and follow up with my annoyed doctor. Well there is a difference between a 1.7 torn aneurysm and a 3.7 torn aneurysm! I don’t know what to do other than find another surgeon.

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