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Celiac Artery Aneurysm: Anyone else with same illness?

Posted by Jen @jurney01, Jul 23, 2016

Hello! I was recently diagnosis with a celiac artery aneurysm in June 2016. I underwent a embolization w/ coils procedure since the aneurysm had grown while in the hospital. I was trying to reach out to someone who suffered the same illness but have not been lucky. I would like to locate someone with my same illness. I would appreciate any help. Thank you

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

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andytheman | @andytheman | Oct 24 7:19pm
In reply to @andytheman "If I can interject here. I had a cat scan done for a heart valve issue...." + (show)
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If I can interject here. I had a cat scan done for a heart valve issue. The doctor said that I was going to be transferred to a trauma hospital because you have a torn celiac artery aneurysm. Like you said. It’s very rare.

When I got to the trauma hospital the cardiovascular surgeon acknowledged it but I forgot to ask him how big it was. He said that it wasn’t bleeding so they felt it was ok to discharge me with a torn but not bleeding celiac aneurysm.
He told me to see my own cardiovascular surgeon which I did. Well my cardiovascular surgeon said that he didn’t see anything even though he’s been monitoring yearly. He was annoyed and rushed out of the exam room. Last week I had 2 MRI’s, 2 cat scans and a few regular X-RAYS and said nothing but my ENT saw it and told me it was at 3.7 with a tear in it. I was seeing an ENT for a paralyzed right vocal cord.
He suggested I see my cardiovascular surgeon and that surgeon said that 10 years ago my aneurysm was at 1.7 and it’s still at 1.7. I said great. A few months go by and that’s how I found it to be at 3. 7 cm with a small tear in it. My ENT found it even though I was going to him for a paralyzed vocal cord. He found the torn Aneurysm looking for something else. He found it by accident. What now? One sends me to a trauma hospital and he said that since it wasn’t bleeding. I could be discharged and follow up with my annoyed doctor. Well there is a difference between a 1.7 torn aneurysm and a 3.7 torn aneurysm! I don’t know what to do other than find another surgeon.

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@andytheman update:
I had my cardiovascular surgeon appointment last week in October and he did a complete aortic artery sonogram and he said the aneurysm grew a little bit and it’s now 3.9. He’s doing another sonogram next month but he didn’t mention that the aneurysm grew, the radiologist did and she was the one to tell me it’s 3.9 with a tear in it probably why it’s being done next month again with a follow up on December 3rd. Maybe he’s decided to put a stent to hold it together. I’m concerned because I’m on a blood thinner for my mechanical aortic valve so I could bleed easily if my blood gets too thin. It could burst and then I’m in danger.

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ppiper | @ppiper | Jul 26 10:20pm

I was recently diagnosed with a 4.6 ascending thoracic aneurysm and an additional aneurysm was found in the celiac artery measuring 1.2 cm. My cardiologist at MGH believes that suggests a congenital vasculopathy. I will keep you informed. Presently, my surgery for the triple A is awaiting a re-examine in December. No action on the celiac aneurysm was recommended at this time.

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pamelasnell51458 | @pamelasnell51458 | Jun 25 10:10pm
In reply to @lisalucier "Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never..." + (show)
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Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

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what are they doing for yours i was pretty upset today when i found out tried to call my doctor or talk to a nurse to make my self feel better no one got ahold of me i found out on my portal the test results i had the test done in march and just finding out today

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pamelasnell51458 | @pamelasnell51458 | Jun 25 10:03pm
In reply to @pamelasnell51458 "hi my name is pam i have the same it was found accidentally it really upset..." + (show)
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hi my name is pam i have the same it was found accidentally it really upset me do you have any suggestions on this

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no i didn’t blood pressure is elevated

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pamelasnell51458 | @pamelasnell51458 | Jun 25 10:01pm
In reply to @kariulrich "I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?" + (show)
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I am wondering if anyone diagnosed with celiac artery aneurysm have an underlying disease?

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hi my name is pam i have the same it was found accidentally it really upset me do you have any suggestions on this

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patvr | @patvr | Jun 20 7:36pm
In reply to @lisalucier "Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

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Can confirm that it was 2.3cm in Jan and I just went back for another CT to see if it has gotten bigger. The nausea ramps up when I stand up and after a bit of activity, I just 'crash'. I would suspect that an ultrasound would be next to test this standing up and supine to measure blood speeds in these different positions. At least that's what the research says.

Amazed that this happens in only 4% of VAAs. Or maybe new imaging techniques are catching more now.

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Moderator
Lisa Lucier, Moderator | @lisalucier | Jun 20 5:23pm
In reply to @patvr "I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack..." + (show)
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I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack where I subsequently had my gall bladder removed. It's currently 2.3cm and I was just wondering about symptoms. When laying down, supine or prone. I have no discomfort. When I stand, within minutes I get nauseous and this does not stop until I lay down again. Is this due to the left gastric artery being impeded somehow due to gravity?

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Hi @patvr, and welcome to Mayo Clinic Connect. I've had my gallbladder out, but I've never had a pancreatitis attack or a celiac artery aneurysm. Hoping members here such as @stuffy @dream1649 @andytheman @wendywong2020 may have ideas for you on why you get nauseous within minutes when standing .

Confirming it's the celiac artery aneurysm that is 2.3 cm? What testing did you fave to go through to get your celiac artery aneurysm diagnosis?!

REPLY
2 replies
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patvr | @patvr | Jun 20 12:10pm
In reply to @nicothegreek1 "i found out the same way (CT) after a bilateral hernia surgery , mine is 1.5..." + (show)
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i found out the same way (CT) after a bilateral hernia surgery , mine is 1.5 cm , i was very healthy 68 years old , anyway how are you doing today? is your celiac artery aneurysm got bigger?

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Mine is at 2.3cm and I get nauseous when I stand up. Working with the doctors now to see if it's this or my recent lap choly that is causing these symptoms

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patvr | @patvr | Jun 20 12:08pm
In reply to @muddytoes "I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct..." + (show)
Profile picture for muddytoes @muddytoes

I was just diagnosed with a celiac artery aneurysm. It was found incidentally during a ct scan. It’s 1.5 cm and fusiform. My cardiologist doesn’t seem too concerned but my internet searches are terrifying. He ordered an angiogram which my insurance denied. I don’t go back to the dr for a couple of weeks. Is there anyone out there who can have a conversation about this? Are there things I should and shouldn’t be doing? I feel like I’m walking around with a live hand grenade in my gut.

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Has anyone here with this experienced nausea, only when standing up? I am fine if I lay down but minutes after standing up I start to feel ill. If i lay down, it guess away again. Mine celiac artery aneurysm is currently at 2.3cm and have just had my 2nd CT. I would suspect ultrasound is next.

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patvr | @patvr | Jun 20 11:58am

I have been diagnosed recently with a celiac artery ameurysm during diagnostics for a pacreatitis attack where I subsequently had my gall bladder removed. It's currently 2.3cm and I was just wondering about symptoms. When laying down, supine or prone. I have no discomfort. When I stand, within minutes I get nauseous and this does not stop until I lay down again. Is this due to the left gastric artery being impeded somehow due to gravity?

REPLY
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