Celiac Artery Aneurysm: Anyone else with same illness?

Oh yes! Especially on the legs... I found I had Factor 5 when I had a knee replacement and my entire leg was clotted. This was in 2000, right after the Genome Project was completed, and several specialists were consulted on my case. One sent off a blood sample to Mayo after my telling him my mother and my cousin had serious blood clots and my cousin died of one after knee surgery. Sure enough, Factor 5. I have since had another knee replaced and a broken femur which require having a rod placed inside the bone. These were all fine, but they were carefully watching me.
After I'd been on Xarelto for a couple of years, I had a shunt to drain fluid from my eye inserted. Two different hematologists told me to stay off Xarelto for two days. I had a bleed during the surgery and then about a month later, on the day I was having my stitches out, I had a massive bleed in the eye - the eye actually collapsed at one point. Two surgeries later, we waited for improvement but the optic nerve was damaged. The retina specialist told me later that I should have off Xarelto for TEN days, not two - I had actually taken off four days, just because Xarelto can be scary. This is because there are a huge number of teeny blood vessels and they are all weak, he said. Also my hematologist told me later that Factor 5 makes a particularly hard clot that's very difficult to dissolve. I can see light and dim shapes with that eye but it's not really useful and I am old enough that I haven't managed to adapt my brain to the new situation. No depth perception, mixed dominance. So pay attention to what your doctor says, especially when it involves your eyes...

I fell off a cliff in the jungles of Costa Rica. I cracked my sternum and they found a celiac artery aneurysm that is 1.5cm in size. I was told that so long as it is stable they will monitor every two years. I was told that I would know if the aneurysm ruptures is by back pain. I have several disc's out in my back and have chronic back pain. I am nervous that I won't recognize the correct symptoms and end up bleeding out. The UW ER doea nothing for back pain so I would never go into the ER for back pain. Are there other symptoms that a person would recognize?

I read in one of the comments that one of the members on Mayo Clinic Connect had a celiac artery aneurysm repaired by an embolization w/ coils procedure back in 2016. My husband has a celiac artery aneurysm that is 1.5 cm in size, and I have read on this site that usually these aneurysms are repaired when they reach 2 cm in size. We are very interested in a less invasive approach and are wondering if Mayo Clinic's Vascular Surgery department repairs celiac artery aneurysms with this less invasive endovascular approach or if this is an endovascular procedure repaired by interventional radiology. Any information regarding this issue would be most helpful. Thank you all and best wishes for good health.

Hi - I am in Australia too. Let us know how you are doing with your surgery plan - or how did you go? PM me if you want to chat.

Hang in there. The fact that you're under a doctor's care and monitoring it means you're better off than 99% of the people out there who do not know that they have this condition. Peace.

My celac artery dissected recently. The doctors think it could fix itself. I have a new scan in 6 months to see how I am doing. It is a lot to digest, but I've worked as a medical professional for over 30 years. It has helped my own understanding of everything.

Hello-please see my post at the celiac artery dissection thread as celiac aneurysm can occur with this issue. Hope this helps. Also, there are two types of celiac aneurysms-true and false which determines how they are treated. My personal advice is to always seek a second opinion for serious medical issues like this with a specialist (like a vascular surgeon) at a tertiary care center where these rarer problems are treated more frequently. Hard to balance anxiety of the risks and concerns of monitoring vs the risks of treatment.

Would love any additional updates from anyone my husband also just had this and they have done nothing, and basic just a wait and see. That does not really sit well with me, feel like we should be more proactive?

Dear All
Thank you for sharing the information as above.
I was diagnosed with a celiac artery Aneurism in 2020 and the size was 1.cm . Last year due to my abdominal pain after CT scans the result show an increase of the size to 1.1cm .
My Dr advise to observe if the aneurysm grows further before considering surgical intervention. Surgery
I will appreciate if anyone could advise me on the above issue .
Thx
Wendy

I have researched zarelto and it is a blood thinner. I thought it was either Coumadin or warfarin (same thing).
You learn something new every day