Celebrating an antibiotic-free year

Posted by thumperguy @thumperguy, Oct 10, 2020

And I’m convinced 7% nebulized saline did the trick. (Accompanied by percussion vest vibration) And this forum is the place I learned of “The 7% Solution.“ “Don the indebted.”

@alleycatkate

@macjane Hi Jane…I hope that you have found something to help for depression. I know that being blue is difficult. Sometimes I just go for a long walk and that picks me up but long term I am not sure that will cut it. Have you gotten the acid reflux under control? Kate.

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Thanks Kate. I am so out of shape physically so long walks are hard. I fell last year and destroyed right hip. They needed to put in very unusual replacement. This meant too much pain reliever that took a year to come off. Have a Safe holiday season. I take Vitamin D but need to come off Klonopin.

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@migizii

In reply to gej53…..May I ask how much you pay for the solution on Amazon as Pt. D doesn’t cover this and so far, I haven’t had any luck with getting it covered. Your situation sounds so much like mine….do you have MAC? I initially had some very strange bacteria that my pulmonologist did not treat and no other “bugs” have shown up, although he rarely has me do a sputum test as my bronchiectasis is not progressing very much on yearly CAT scans…..my energy levels fluctuate and my weight isn’t that easy to hold on to (many people feel jealous, but not when one wants some weight). Otherwise, I’ve been pretty good king health wise. Twice daily nebulizing must really be key! This is a valuable site. Stay safe and may you have a nice day😊

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Morning! I experienced unrelenting coughing. They tried treating me as if I were experiencing allergies. My medical doc ordered a cxr and sent me to a pulmonologist. He did a CT and felt strongly I had MAC from the presentation of the CT. I had a bronchoscopy and he did biopsies and washings and they all returned no growth so he is treating the bronchiectasis. I still worry about the MAC. The nebulizing with a vest it the only thing that helps me clear my lungs. When I asked about 7% he felt it would give me bronchospasm. I am going to ask him again in January. It was around $40 for 60 vials. I am alternating it with my 3% to make it last longer. Since I did well with it I hope it will give me a script for it. I guess this is a lengthy response for asking the price :). I also have lymphocytic colitis so am scared to death to think about taking the ATB necessary to treat MAC. So far my CT scan has been stable from the previous year. Guess a little tiring to neb but am thankful that so far it seems to keep my chest stable. I still cough but nothing compared to my initial presentation. Sorry so wordy. You have a great day too!!!

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@macjane

Thanks Kate. I am so out of shape physically so long walks are hard. I fell last year and destroyed right hip. They needed to put in very unusual replacement. This meant too much pain reliever that took a year to come off. Have a Safe holiday season. I take Vitamin D but need to come off Klonopin.

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@macjane …Wow, Jane. It sounds like a very difficult year. I hope things continue to improve and that you have a safe and happy holiday also.

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@alleycatkate

@macjane …Wow, Jane. It sounds like a very difficult year. I hope things continue to improve and that you have a safe and happy holiday also.

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Thanks

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@dolson0730

How does a person get a percussion vest? Covered by Medicare?

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Yes, the vest is covered by Medicare.

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@gej53

Morning! I experienced unrelenting coughing. They tried treating me as if I were experiencing allergies. My medical doc ordered a cxr and sent me to a pulmonologist. He did a CT and felt strongly I had MAC from the presentation of the CT. I had a bronchoscopy and he did biopsies and washings and they all returned no growth so he is treating the bronchiectasis. I still worry about the MAC. The nebulizing with a vest it the only thing that helps me clear my lungs. When I asked about 7% he felt it would give me bronchospasm. I am going to ask him again in January. It was around $40 for 60 vials. I am alternating it with my 3% to make it last longer. Since I did well with it I hope it will give me a script for it. I guess this is a lengthy response for asking the price :). I also have lymphocytic colitis so am scared to death to think about taking the ATB necessary to treat MAC. So far my CT scan has been stable from the previous year. Guess a little tiring to neb but am thankful that so far it seems to keep my chest stable. I still cough but nothing compared to my initial presentation. Sorry so wordy. You have a great day too!!!

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Hi! Thanks for the information. Once again, I find myself having another medical condition in common with you-lymphocytic colitis….it’s seemingly uncanny how we have these similarities. Also, I have have not yet faced any infections requiring long term treatments, yet. I hope we can stay well😊. Have a nice evening!

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@kathyhg

How big is the incline on the wedge? I got one that was about 5 inches at the head of the bed and 1 inch at the foot. It is under the mattress and covers the whole area.

My doctor recommended a steeper incline but I felt like I was always slipping down the bed. I have wondered if I should have gotten a steeper incline but sleeping well is a priority for me too! He also recommended no eating or drinking for 3 hours prior to going to bed but I sometimes get sloppy about that, especially if I’m thirsty. The gastro guy I saw similarly wanted me to go on meds but the pulmonologist said not to take them.

This test is to confirm whether or not I have reflux, since it wasn’t checked at the time he gave me the above direction ( I’m assuming that I do but it would be a pleasant surprise if I don’t).

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Kathy, I have that same wedge between my mattress and box springs tapering from 5" to 1", it works fine for me. The wedges that only go to your waist can potentially make things worse by putting a kink in your GI tract, not to mention possibly being hard on your back. I also try not to eat anything 2-3 hrs before bedtime.

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Oh my gosh….it is uncanny. Dealing with handling a diet can be challenging too. Makes travelling a worry at times. Thanks for sharing. Have wonderful holidays.

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@poodledoc

Kathy, I have that same wedge between my mattress and box springs tapering from 5" to 1", it works fine for me. The wedges that only go to your waist can potentially make things worse by putting a kink in your GI tract, not to mention possibly being hard on your back. I also try not to eat anything 2-3 hrs before bedtime.

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Poodledoc, I found the same thing with a wedge when I tried one and, actually, it ended up in the floor most nights. I find that it also makes a difference what I eat and drink (as well as the volume) even 2-3 hours before I go to bed.

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@irene5

@macjane Vitamin D is a very good help for depression. I am sure the time change is a catalyst for a depressive mood. Plus, the holidays coming with no real end in sight for Covid can complicate one’s mental health. irene5

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Thanks Irene! Your vitamin D comment made me start taking my vitamins again.

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@poodledoc

Kathy, I have that same wedge between my mattress and box springs tapering from 5" to 1", it works fine for me. The wedges that only go to your waist can potentially make things worse by putting a kink in your GI tract, not to mention possibly being hard on your back. I also try not to eat anything 2-3 hrs before bedtime.

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I agree. I had the half wedge and it was very uncomfortable! I was beginning to have a constant pain in my hip from sleepy on my side. The full I e is so comfortable I wonder if it’s actually working.

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@migizii

In reply to gej53…..May I ask how much you pay for the solution on Amazon as Pt. D doesn’t cover this and so far, I haven’t had any luck with getting it covered. Your situation sounds so much like mine….do you have MAC? I initially had some very strange bacteria that my pulmonologist did not treat and no other “bugs” have shown up, although he rarely has me do a sputum test as my bronchiectasis is not progressing very much on yearly CAT scans…..my energy levels fluctuate and my weight isn’t that easy to hold on to (many people feel jealous, but not when one wants some weight). Otherwise, I’ve been pretty good king health wise. Twice daily nebulizing must really be key! This is a valuable site. Stay safe and may you have a nice day😊

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migizii, please read through each of these links to see if K2MK4 is a stone unturned that may offer relief for your bronchiectasis. Notice at the end of the westonprice link the stress is on food sources mentioned not supplements. That is where your money is best spent.
https://www.westonaprice.org/health-topics/in-defense-of-vitamin-k2-mk-4-dr-prices-activator-x/
https://www.sciencedirect.com/science/article/pii/S0306987716309884

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