Mayo Clinic Connect
Has anyone used CBD oil or anything similar for use in relieving Neuropathy?
Liked by elained
Manessen1, What side effects did you have with Lyrica? I'm taking it and I haven't noticed any so far … I want to pay attention. I read here that some people had side effects with gabapentin too. I didn't have any with that, I got to the maximum dose as condition got worse, then neurologist changed me to Lyrica. I didn't have any problem stopping gabapentin, no 'detox' or rebound. Peggy
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I took it for several months.
Side effects were a dull headspace. Didn't feel like I had any clear thoughts. Pain was helped 15-20%.
Decided to live with the pain and have a clear head.
I understand Gabapentin is a very similar drug.
Thanks ! It doesn't make me dull, but then, everyone seems to have different reactions to this condition and the various meds for it – it's complex.
I am a "newbie" from down under, G'day all. I got CIPN about 18 months ago after chemo-therapy which had left me with painful hand cramps and virtually crippled my fingers. I recently imported a small quantity of CBD Isolate powder from outside Australia. I have been conducting a very nonclinical trial by dipping a party-pick in honey and then into the isolate once per day. (50-150mg) The result has been amazing. Not a single cramp since I started. There is definitely no THC component which is banned in the exporting country. I will report progress.
Liked by John, Volunteer Mentor
Hi, @arismac, and welcome to Mayo Clinic Connect. If you click on VIEW & REPLY in your email notification, you will see the whole discussion best.
Thanks for sharing your experiences with chemotherapy-induced peripheral neuropathy (CIPN) and what is helping your painful hand cramps and virtually crippled fingers.
@arismac – did you also try other therapies prior to the CBD isolate powder? If so, did you see any results from them?
Happy New Year, Lisa and all in the community. I was offered Lyrica® (pregabalin) but after a previous adverse experience I rejected the drug. Oncologists in Australia seem to be of the opinion that a six month course 13 treatments of Fluorouracil and folinic acid are standard procedure with colorectal cancer. I was not aware that I may have a bad reaction but the CIPN symptoms were minor until about treatment 11 and then they got worse very rapidly.
Australia is just getting started on clinical trials of CBD after lengthy legal delays. I have volunteered to participate but the costs of prescription CBD are very high. So acting on a lead in this forum I obtained the CBD and so far the results are positive. I perhaps should repeat that I am taking CBD Isolate powder orally not using the oil topically. I currently do not have access to oil.
I will also mention that my carcinoma journey is a little different with it's origions in me being subjected to several exposures of around 100 MsV of non-iodising radiation in my late teens and early twenties for the treatment of acne vulgaris while a member of the defense forces in Australia
@manassen1 – a couple of other discussions in which you may be interested include:
@arismac – you may also be interested in participating in our Colorectal Cancer group https://connect.mayoclinic.org/group/colorectal-cancer. Are you still planning to participate in the CBD trial you'd mentioned you volunteered for, or are you planning on maintaining the isolate powder instead?
Liked by sore_debbie64
Hi everyone. I too suffer from osteoarthritis. Fibromyalgia & peripheral neuropathy and was wondering how or where does one find trials for CBD? I live in Los Angeles. I've even tried signing up for OA trials _ told I don't qualify because I've had hip replacement surgery however my knees & feet are gone
Can barely walk some days-like today for instance. Any thoughts?
Hi, @sore_debbie64 This might be a good place to start looking for CBD trials, at the NIH Finding a Clinical Trial page https://www.nih.gov/health-information/nih-clinical-research-trials-you/finding-clinical-trial.
My GP (General Practitioner – Family Doctor) and Oncologist needs to recommend me to the THC/CBD trials which they have done. So I will be delighted to report progress here or in whichever forum conversation would be interested.
My colorectal (sigmoid) cancer is likely to attract some interest as I am the complainant in a court case in which the Australian Government is the respondent. My claim is that my colorectal cancer is in consequence of medically approved but completely inappropriate and excessive use of non-ionising radiation by a Registered Dermatolgist in the service of the government of the day. Again I am most willing to report progress if the interest exists.
I have been using CBD from hemp for a month. It helps with the burning in my hands. I am 63 yrs old and I have mono Neuritis multiplex. It also works excellent on constipation from my pharma drugs. Àt night I also have 3 puffs of concentrated THC oil which calms the neuropathy and helps me sleep. To strong for daytime use for me. I don't want to be high all day.
Where have you been purchasing the THC oil and how much is it? Thanks
G'day Margot, I have been using CBD powder not THC oil. Both can be obtained on prescription in Australia, but are very expensive. I have sourced my CBD Isolate powder in SE Asia for a much lower price.
Where do you purchase this oil? I have nerve pain and the narcotics arent working…
Depends on which state you live in. Here in Nevada it is legal. But this is a cottage industry. You have to trust your supplier 100%, because there are no standards, no government testing, no way to independently verify what you are getting. It may say 1,000 mg per ounce (which mine does), from Cura Wellness in Oregon. But so what? Nevertheless less I use CBD tincture (oil) orally for my idiopathic peripheral neuropathy. Some days it seems to help, but on other days no benefit
Yes CBD oil works wonders on neuropathy, carpal tunnel, arthritis, nerve pain, muscle pain, back pain, knee pain. I know because I purchased some online for severe pain. It WORKS.
Could you give me the link to order this CBD oil ease?
I have been using CBD made here from cannabis and am told that it is much better than CBD made from hemp. This CBD contains about 5% THC, not enough to notice. Its relieves the pins/needles feeling in my feet.
thanks. I have been using CBD tincture (oral) 100 % CBD: useless. This may be because I have had it for 30 years. I read somewhere that it's more effective in early stages, not later like mine
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