Mayo Clinic Connect
Has anyone used CBD oil or anything similar for use in relieving Neuropathy?
Liked by elained
@nkhan1958, @johnbishop, Good evening Nazir Kahn and welcome to our wonderful world of sharing experiences and supporting each other. I am very impressed with the care provided by Mayo Clinic Rochester and therefore I can only assume that your diagnosis of small fiber neuropathy was made after you had a skin test to measure the density of the small fibers in a small sample from your leg. If so, then we have the same condition, one in which our small nerves are starting to struggle to keep up the work they do for us. As I understand it, when that happens and they are unable to "communicate" or do their job well, the only thing they know how to do is send back pain signals. Since my diagnosis, my journey into the world of chronic pain has been rapid and intense. At this point, I am focused on controlling the level of pain and discomfort so that I may live my life without constant discomfort. Here is what I have found to be helpful, expressed in terms of my daily regimen. 1. Sleep in if you can and enjoy the morning's moments without pain.
2. Take a hot shower hitting all those suspect areas….hands, feet, and other muscles. 3. Turn on some beautiful music and do 20 minutes of gentle yoga stretches and strength building exercises followed by 10-15 minutes of meditation focusing on relaxation and awareness. 4. Ease into your day without a focus on productivity or anxiety-producing efforts. As I learned, anxiety produces pain which produces more anxiety and then more pain. Depending on where you are in the development of SFN, you may want to add medical marijuana to your coffee. A 2-1 level works for me the entire morning. (I can explain more if you choose.) . 5. Give your body permission to rest. If others are around, simply say, "My body needs to rest now." 20 minutes and you will feel stronger and have less anxiety. 6. Evening time, depending on how much activity you had during the day, should be a chance to prepare for sleeping. I again use my form of pain control. 7. After talking with your heath professionals, you may want to use a couple of medications or their equivalent, gabapentin, and nortriptyline. I take them only at night about one hour before bedtime. And finally, if the tingling in your hands and/or feet is intense, try getting a lidocaine cream compounded for you by a pharmacist. It is topical and yet it lasts just long enough for you to drift off into what should be good healing sleep. Don't give up……you can find the quality of life that you deserve. Best wishes, may you have pain free moments, hours, and days to enjoy. Chris
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I have neuropathy more advanced than anything yoga, showers, or resting could mitigate. It used to feel like tingles, now it's red hot fireworks shooting up my legs 8 or 10 times per second and it keep going until I take gaba or lyrica and wait for it to take effect. It gets worse when I rest, the pain subsides while I'm walking and running. It has worsened in a short amount of time, 6 months. Peggy
CBD doesn't work for me when my pain is severe. I use THC 70/CBD 30 ratio ointment at night.reduces pain, allows me to sleep.
Very interesting! I'm with you. !.had no luck with the CBD oil. My store did offer an ointment but it was way too weak to be of anything but limited help. That was alll they had. Any suggestions as to how to get my hands on the ratio ointment you use?
Where did you get yours from
I am living in Ontaruo , Canada
I get my THC/CBD from NanoBiologics out of CA.They are a new start up company.
I have diabetic Neuropathy. Anyone have experience with CBD oil for diabetic neuropathy?
The pain is in the balls of my feet and toes.
It came on after a 70 kilometer walk over 4 days. Both feet at the same time and started with pins and needles..3 years later now and it’s just pain.
Raw burning sensation and worse when I walk but OK when I sleep or feet up.
It hasn’t spread but I’m desperate. Tried everything..Lyrica has too many side effects..
Hi, @manassen1 – welcome to Mayo Clinic Connect. You'll notice I moved your message to this existing discussion, "CBD oil for Neuropathy." I did this so that you can connect with other members talking about this topic.
Click VIEW & REPLY in the email notification and you will be able to read through the past messages by members like @sherlock @pfbacon @artscaping @johnbishop @wendyl @magicweaver @flannelette @docnomore and others. Sounds like you've tried lots of remedies for this pain and raw burning sensation that get worse when you walk, and I trust these members will have some input on whether CBD oil might help with your diabetic neuropathy.
While awaiting responses from these members, you may be interested to read this Mayo Clinic information on diabetic neuropathy https://www.mayoclinic.org/diseases-conditions/diabetic-neuropathy/symptoms-causes/syc-20371580.
It sounds as though you've had a specialist diagnose your diabetic neuropathy and also prescribe the pregabalin (Lyrica) that you found to have too many side effects. What did your physician suggest trying next to manage this pain?
Liked by John, Volunteer Mentor
Cymbalta, only worse; ended up in hospital for 2 days.
Had horrible side effects from Lyrica. Quit in less than 24 hours. And this happened even with half dose of MD recommendation
Yes. Just started using CBD oil for idiopathic peripheral neuropathy, both feet. Have had PN for past 30 years, controlled somewhat with traditional meds, but a few months ago meds not working anymore. One thing I worry about is that the CBD market is like the wild west. We have to trust the producers completely about amount of CBD in bottle and where it comes from. There are no scientific studies that that I am aware of. You will read on lots of websites "its good for pain", but nothing documented. So..me sites say "Take 20-30 mg; once or twice per day. That means a range of 20-60. How useful is that? What would happen if Tylenol directions said "take 1/2 to full tablet once or twice/day?"Anyway, just started using CBD oil a few weeks ago. Some days seems to work, but other days not so good. Tip:keeping under tongue difficult for 90 seconds if sitting upright, because mouth filsl with saliva diluting CDB strength. I tip my head back, then insert the oil. Also smear on "Lidocaine 5% Topical ointment" Again, some days seems to work; others not. Even when it works feet still hurt if I walk just a few steps. Relieves the pain if just sitting down. There are no magic bullets.
Addendum: I live in Nevada where rec and med legal. Just started using something called: "Select CBD drops"made by "Cura Wellness" says 1,000 mg/dose of CBD.(one dropper is suggested dose/day) Today it's useless
Appreciate the feedback.
I live in Australia and have only just heard about cbd.
I’ve ordered some locally.
Keep you posted.
Manessen1, What side effects did you have with Lyrica? I'm taking it and I haven't noticed any so far … I want to pay attention. I read here that some people had side effects with gabapentin too. I didn't have any with that, I got to the maximum dose as condition got worse, then neurologist changed me to Lyrica. I didn't have any problem stopping gabapentin, no 'detox' or rebound. Peggy
3 years ago MD prescribed dose was 100mg. I took 50. Cant recall exactly what they were. But I had to stop first day
Took your suggestion and got a container. Got a very slight numbing of the pain. However, the relief lasts only for 25 to 30 minutes.
Keep the suggestions coming.
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