Mayo Clinic Connect
Has anyone used CBD oil or anything similar for use in relieving Neuropathy?
I have been using CBD made here from cannabis and am told that it is much better than CBD made from hemp. This CBD contains about 5% THC, not enough to notice. Its relieves the pins/needles feeling in my feet.
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Use only CBD from hemp isolate and as the supplier to provide a Certificate of Analysis to be sure you are getting a quality brand such as Isospectra.
Clinical trial run by Dr. John Hall in San Antonio, he chose 50 patients on opioids and substituted CBD. He has a 75% success ratio on converting the patients off of opioids and onto CBD therapy.
Liked by ajtill
Didn't help me but I've heard other people say good things about it. Peggy
I use cbd oil for some neuropathy in my feet and also PLantar fasciitis. It helps me greatly but isn’t a cure by any means. But I’ll take it because th ain’t from my planta fasciitis was great in my heels and now it’s tolerable.
@brendareid I don’t know if you are experiencing pain from plantar fasciitis but I wanted to tell you about my experience, I was having horrible unbearable pain because of plantar fasciitis. I started walking with the help of a Cain then it was so bad I was going to therapy and got custom made orthopedic shoes and orthotics sleeping with a stretcher then I needed crutches after I was getting steroid shots 1-2 a week because of the pain, the last thing I could not walk anymore soon I was in a wheelchair the doctor had given me a date for surgery then someone told me about the good feet store, I went, I had tried everything so what was one more thing, right? The inserts are very thin and I bought them I was really desperate! Within two weeks I was walking again, and within 3 weeks I had no pain. I have been wearing them for 7 years and no pain anymore. It sounds like a miracle but it really works. They are expensive but worth it. I never had the surgery and I really did not think it would work but just give it a chance. There’s a lot of insoles that say they help with PF but I had had only the same pair for the 7 years and they are still good. Maybe it sounds too good to be true but I can say they do work.
Liked by barbarn
I went to the good feet store last week. I was surprise that when I took their inserts out of my shoes I could tell the difference but I didn’t purchase it because I just didn’t know if it was my imagination. They are expensive that would be worth the price because I can hardly walk anymore can’t even make it to the grocery store so I order everything online and my husband buys all the fresh food at the store. What I wanted to ask also has anyone tried the Vital vision hummingbird machine for their leg feet pain
It’s suppose to help with Fibro pain. That’s what I’m trying to figure out if I have fibromyalgia or whatever the source of this pain is. The doctors tell me I don’t have it because it be sensitive to touch but I sure have chronic pain all on my body. And walking is horrible.
Also. I’ve been using CBD oil and so far it’s not helping. Does it take time to take effect or is there immediate relief. It’s a high-quality expensive CBD oil it was purchased at a Compound Pharmacy. With a very good reputation How many milligrams did you have to take in order to get relief
I ave tried all RX med for autoimmune neuropathy cidp, in hands and feet. Was in wheelchair 2 years. Prior to that was an active healthy healthcare provider 25 yrs. Broke my ankle had surgery and within 6 mos I could not walk or use my hands. get IVIG every 2 weeks. Got me out of wheelchair but pins and needles persisting to the point of no life at all. Desperate, I tried CBD oil, researched brands, for quality control, independent lab tests, etc. I am taking the 1000mg form of oil 1/2 dropper, 2 times a day for a month. I definitely feel the pins and needles diminishing. It has no THC, or te least that can be as it is not sold a medical marijuana oil, which I am looking into now. Try it if nothing else works. Dont feel anything from it but slightly relaxed and sleep at night better.
What brand of inserts ?
Find all the information you can about Rick Simpson OIL. RSO. IT WAS WORKING BUT SINCE LEGALIZATION I CAN'T GET IT ANYMORE AND AM UNABLE TO GET THE PRODUCT TO MAKE MY OWN. YIPEE LEGALIZATION. YA LEGALIZATION FOR RECREATIONAL USE BUT ALL MEDICINALS REMOVED. BOO CANADA.
Liked by John, Volunteer Mentor, Chris Trout
@confused1955 Good morning. We just went through this confusing mess in California when recreational was legalized last year. I was very distressed because I totally depend on medical marijuana for pain control. I would call 4 or 5 dispensarys in San Diego with no success. Must admit I was quite alarmed. Part of the issue is the packaging which had to be redone to meet new regulations. I was afraid that my favorite dispensary was giving up on its medical clientele. It took several months to sort it all out. Now, even though they carry the products I need, they sell out quickly. Best thing is, I can order on line because the inventory is updated daily. Then even my daughter can pick it up for me. So, my advice…… hang in there. Ask to receive a text when the product you want arrives. My dispensary sometimes calls me to make sure I know that what I need has arrived and they simply bag it and put my name on the package. I have also found it best to stick with one dispensary so that they get to know you. I can call and ask for James and he always does whatever it takes to support me. Give it some time. Good news…..the new medical products are much better quality.
Liked by John, Volunteer Mentor, barbarn
Make sure that it is CBD isolate as that is 99.9% pure CBD. There is much confusion and you may be taking a full spectrum with only a small amount of CBD.
Yes yes yes! I have horrible diabetic neuropathy that 1200 mg of gabapentin a day could not touch. I have a friend who produces a pain cream that consists of full extract canabis oil, 100% cbd isolate, amongst a variety of other natural ingredients. I no longer take gabapentin! I rub tgis on my feet in the morning to get me through the day and then before bed to get me through the night. Unbelievable. I honestly never thought i would be a believer
posted by nkhan@sarah_leanne
My name is Nazir Khan. I am working for the UN as an international civil servant and am currently based in Harare, Zimbabwe.
In August 2017, I began to experience gradual onset bilateral symmetrical discomfort of my feet, which could be described as a heavy feeling. Gradually this progressed to a burning sensation along with numbness and pins and needles. My feet are very sensitive to touch. Since then the symptoms have been constant, and they have affected my ability to mobilize freely. I am no longer able to exercise. It is now 18 months later and my symptoms have not resolved. The symptoms of burning/tingling pain and altered sensation are rapidly progressing.
Since the onset of my symptoms, I have seen a large number of doctors in countries all over the world and have had a very large number of tests performed. My most recent assessment was done by Mayo Clinic Rochester.
There has been some conflict in opinion. I was initially told that my symptoms were possibly the result of spinal stenosis caused by degenerative disc disease. To fix the problem, I initially considered stem cell treatment, but ultimately a decision was made to undergo a course of two rounds of spinal platelet lysate injections in a clinic in Colorado.
However, according to the aforementioned more recent assessment in Mayo Clinic, my diagnosis appears to be a small fibre neuropathy.
I have not tried any medication yet but my symptoms are deteriorating rapidly. I am finding it increasingly difficult to walk because of the constant burning sensation, severe numbness and pain.
I am wondering whether my condition can benefit from the pain cream you mentioned in your post on Mayo Clinic Connect and if so how can I get it in Zimbabwe.
Liked by John, Volunteer Mentor
Hello Nazir @nkhan1958, I see you are a new member this year. Welcome to Connect. I was also diagnosed with small fiber peripheral neuropathy at Rochester Mayo Clinic. It is in both legs, mostly in the ankles and feet. I have no pain with mine. I only have numbness and some tingling. It's been with me for well over 20+ years but I never bothered to have it diagnosed because my primary care doctor told me it was probably nerve damage and when I asked them how they could tell, he told me they could run some tests. My next question was if they find it's nerve damage what can they do to fix it. I was told nothing would fix it so I stopped asking until it seemed to be getting worse a few years ago which is when I had some tests including an EMG and saw a neurologist at Mayo Clinic. He told me if there was pain he could give me medications to address the pain but there was nothing that can help with the numbness. That started my search and was how I found Connect. You can read my complete story here if you want: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
I am tagging other members who have posted about CBD and other treatment methods that may be helpful for you. @artscaping and @jenniferhunter would you have any suggestions for Nazir?
Liked by Lisa Lucier, Connect Moderator
I have similar symptoms: my skin feels numb while the inside of my feet are burning like they are on fire — all the time except a few hours twice a day when the meds are working … I don't yet have it down to a fine science what to take when to stop the burning and stay stopped. Perhaps that is not possible. So far, my neurologist thinks Neuropathy, and Restless Leg Syndrome (this is on top of several other conditions I have that cause pain in feet and legs: bunions, arthritis, missing cartilage in feet. When the pain is very bad I figure out which 'ism' is causing it and take appropriate medicine. If I've already take medicine for one, I can't take more medicine until the first is wearing off … so, I'm between a rock and a hard place with this condition. Then I just have to suffer for awhile — it's wearing me out. Peggy
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