Uterine clear-cell carcinoma, chemo treatment unknowns

Posted by vika @vika, Mar 20 8:01am

Hi there! My mum has been diagnosed with Carcinoma of uterine body pT3bN1aM1 (Metastases of clear cell carcinoma in one of the ovaries, uterine tube, the greater omentum, lymph nodes). On 1st of March she had surgery: radical hysterectomy, lymph node dissection along the iliac blood vessels, omentectomy (Kyiv, Ukraine). She was discharged from the hospital and recommended chemotherapy. In different clinics in Kyiv we were offered 4 or 6 rounds of Carboplatin + Paclitaxel. Is it a right (internationally proved) schema?

One complication for choosing treatment is deep vein thrombosis (DVT) in her legs. In one clinic we were told to wait 2 weeks taking Rivaroxaban 20 mg until starting the chemo. In another clinic, we were told to start chemo next week because it’s dangerous to wait in the long term. I’m very concerned about different suggestions, considering and thinking about the long term and short term risks…
I’ll really appreciate it if you could share any useful info/share your experience… Thanks!!

@bruges

Hello, I am new here.
Beginning of the year I received my uterine clear cell carcinoma diagnosis. It is a very rare cancer and I was wondering if there were other women here who have the same diagnosis.

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I have just had a total hysterctomy and dr is now recommending radiation now What are pros and cons How does that affect the pelvis bone, bladder and colon?

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@bruges

Hello, I am new here.
Beginning of the year I received my uterine clear cell carcinoma diagnosis. It is a very rare cancer and I was wondering if there were other women here who have the same diagnosis.

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Hi @ejohn and @cichocki06, I'm wondering if you decided to have radiation and have you started?

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@bruges

Hello, I am new here.
Beginning of the year I received my uterine clear cell carcinoma diagnosis. It is a very rare cancer and I was wondering if there were other women here who have the same diagnosis.

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I am having 3 radiation treatments the end of the month. Any recommendations?

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@colleenyoung

Hi @ejohn and @cichocki06, I'm wondering if you decided to have radiation and have you started?

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I have my consult with the radiologist tomorrow. Would love to hear others experiences.

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@bruges

Hello, I am new here.
Beginning of the year I received my uterine clear cell carcinoma diagnosis. It is a very rare cancer and I was wondering if there were other women here who have the same diagnosis.

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@ejohn and @cichocki06, I invite you to join the Zoom support group tonight facilitated by Mayo Clinic oncology social worker, @michellewalsh. I'll be there too and we can hopefully connect you with others who have had radiation.

Here are the meeting details.
Women of S-Teal Jax: Candid Conversations about Gynecological Cancers

Zoom Support Group Meeting
Monday, March 8, 2021
5:30 to 6:30 p.m. EST (find your timezone https://www.timeanddate.com/worldclock/converter.html)

Topic:
“Resources and Support” with Michelle Walsh, LCSW and Colleen Young with Mayo Connect

Register in advance:
https://mchealth.zoom.us/meeting/register/v5Erf-qprjooihuuDnHMnXBRD6IxvLlgJA
After registering, you will receive a confirmation email containing information about joining the meeting.

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@colleenyoung

@ejohn and @cichocki06, I invite you to join the Zoom support group tonight facilitated by Mayo Clinic oncology social worker, @michellewalsh. I'll be there too and we can hopefully connect you with others who have had radiation.

Here are the meeting details.
Women of S-Teal Jax: Candid Conversations about Gynecological Cancers

Zoom Support Group Meeting
Monday, March 8, 2021
5:30 to 6:30 p.m. EST (find your timezone https://www.timeanddate.com/worldclock/converter.html)

Topic:
“Resources and Support” with Michelle Walsh, LCSW and Colleen Young with Mayo Connect

Register in advance:
https://mchealth.zoom.us/meeting/register/v5Erf-qprjooihuuDnHMnXBRD6IxvLlgJA
After registering, you will receive a confirmation email containing information about joining the meeting.

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Colleen Thank YOU –
Group was very informative.
Will you send me a Zoom link for April meeting I think I heard it meets
every month ??

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@cichocki06

Colleen Thank YOU –
Group was very informative.
Will you send me a Zoom link for April meeting I think I heard it meets
every month ??

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@cichocki06, I recommend that you follow the Gynecologic Cancer group. Here's how:
1. Go to https://connect.mayoclinic.org/group/gynecologic-cancer/
2. Click +FOLLOW.
3. Choose whether you want to receive an email for every new post or just one email daily with a summary of the posts.
4. Click UPDATE.

You can also specifically follow the Gynecologic Cancer Support Group event listing and receive a notice each month when Michelle posts the upcoming guest and topic. Here's how:
1. Go to https://connect.mayoclinic.org/event/gynecological-cancer-support-group/
2. Click +Follow below the event description.
3. Click UPDATE.

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@cichocki06

I am having 3 radiation treatments the end of the month. Any recommendations?

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Hi
Just finished 4 brain radiation treatments. Brain cancer was the result of ovarian cancer spreading to the brain – unusual occurrence! Be prepared to feel fatigued and out of sorts – tipsy!
Don't drive, be careful walking – you might be off balance. Also, I lost some hair. The good news is that radiation did not hurt! Soon it will be over!

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@starko

Hi
Just finished 4 brain radiation treatments. Brain cancer was the result of ovarian cancer spreading to the brain – unusual occurrence! Be prepared to feel fatigued and out of sorts – tipsy!
Don't drive, be careful walking – you might be off balance. Also, I lost some hair. The good news is that radiation did not hurt! Soon it will be over!

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So glad this is in the past. Hoping you will recover quickly! Take good care… And thank you for letting us know how you are doing.

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@starko

Hi
Just finished 4 brain radiation treatments. Brain cancer was the result of ovarian cancer spreading to the brain – unusual occurrence! Be prepared to feel fatigued and out of sorts – tipsy!
Don't drive, be careful walking – you might be off balance. Also, I lost some hair. The good news is that radiation did not hurt! Soon it will be over!

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@starko, how often did you have the treatments? In other words, how were they spaced out? Are you starting to recover your balance and energy again or is it too soon to ask?

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@colleenyoung

@starko, how often did you have the treatments? In other words, how were they spaced out? Are you starting to recover your balance and energy again or is it too soon to ask?

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Colleen,
My radiation treatments were spaced two per week. I had another option of receiving all the treatments during one session, but because it involved my cerebellum, we decided it would be too risky. It has been a week since my last treatment and the side effects are diminished, not so foggy, better balance, more alert!
I am guessing radiation in other parts of the body would be less.severe.

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@starko

Colleen,
My radiation treatments were spaced two per week. I had another option of receiving all the treatments during one session, but because it involved my cerebellum, we decided it would be too risky. It has been a week since my last treatment and the side effects are diminished, not so foggy, better balance, more alert!
I am guessing radiation in other parts of the body would be less.severe.

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Sounds like a challenge but you are accepting well! thank you for sharing!! I saw some older posts here. I will be having 25 pelvic radiation treatments and 2 brachy starting in the next week or so. Seems like the right plan for clear cell that was in one lymph node. I am worried most about fatigue. I am really worn out right now after my 6th chemo 2 1/2 weeks ago. most of my chemo was just not that bad but maybe catching up with me now! Thank you Colleen for soliciting posts. everyone's story is helpful. Eileen

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