1. < Gynecologic Cancers

Uterine clear-cell carcinoma, chemo treatment unknowns

Posted by vika @vika, Mar 20, 2021

Hi there! My mum has been diagnosed with Carcinoma of uterine body pT3bN1aM1 (Metastases of clear cell carcinoma in one of the ovaries, uterine tube, the greater omentum, lymph nodes). On 1st of March she had surgery: radical hysterectomy, lymph node dissection along the iliac blood vessels, omentectomy (Kyiv, Ukraine). She was discharged from the hospital and recommended chemotherapy. In different clinics in Kyiv we were offered 4 or 6 rounds of Carboplatin + Paclitaxel. Is it a right (internationally proved) schema?

One complication for choosing treatment is deep vein thrombosis (DVT) in her legs. In one clinic we were told to wait 2 weeks taking Rivaroxaban 20 mg until starting the chemo. In another clinic, we were told to start chemo next week because it’s dangerous to wait in the long term. I’m very concerned about different suggestions, considering and thinking about the long term and short term risks...
I'll really appreciate it if you could share any useful info/share your experience... Thanks!!

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | Oct 19, 2022
In reply to @sm22 "Yes I agree. I am probably sensitive to this because I feel let down by my..." + (show)
@sm22

Yes I agree. I am probably sensitive to this because I feel let down by my hometown doctor
who ignored my concerns for several months before finally diagnosing me with stage III cancer. I fee if she had done her job my story would have been very different. I’m also mad at myself for not being a better advocate for myself and blindly trusting my local doctor who obviously didn’t care about me or my symptoms.

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For a different issue my hometown doctors were not helpful either. This was menopause-related and I received very poor and outdated information from my home town doctors that affected my quality of life. However, I didn't know where to go or who to ask and it wasn't until I went to Mayo Clinic for endometrial cancer that I then got a referral to the Women's Sexual Health and Menopause Clinic that provided up-to-date and helpful information.

My advice is not to blame yourself for what you didn't know. You trusted your local doctor because that's what we do. You cannot change the past but you now know to advocate for yourself going forward. I'm now doing the same and I figure if a doctor or other medical provider gets arrogant or snippy with me (and that happened around the menopause issues) I'm not putting up with that and will find another doctor.

You've been through something very difficult that not many people go through. Please remind yourself to be compassionate with yourself and forgive yourself for what you didn't know in the past.

Does this help?

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