Can anyone share their experience with this procedure? How much discomfort did you experience? Also, would appreciate any insights to Proton Beam Therapy for treating prostate cancer? I am about to got through this process….
Interested in more discussions like this? Go to the Prostate Cancer group.
Hello there cdcfbw.
I will be having the markers and spaceoar inserted the first week of October at Mayo Jacksonville. My urologist suggested I do IMRT which I was trying to avoid but the Jacksonville facility doesn’t have a proton treatment yet. I will be getting 20 treatments and no ADT. The radiologist told me I didn’t have to take the ADT. I was wondering if you had a choice of radiation where you had treatment? Was it at a Mayo hospital? I’m afraid of having side effects down the road. I hope the doctors know what they are doing as I’m putting my future in their hands. I hope you well.
Jump to this post
I didn't really have a choice as to the type of radiation (or I should say I didn't ASK for a choice). My urologist recommended a Dr. that runs the radiation dept. at Memorial Hermann hosp. here in Houston where I did mine. My urologist is also in the same hosp. system. I must say I was putting all my confidence in my urologist as to my best course of treatment so I hope I made the right choice. I finished the 2nd of July with 39 treatments and so far so good. You are lucky you will not need ADT as that stuff is rough on some people. Good luck with your journey and remember all treatments will have some side effects, I looked at my history with drugs I have taken over the yrs and I have had none to very few side effects so hopefully this will be the case with my radiation.
Thanks for your reply. I hope you well with your recovery. As with us all having to deal with it, we can only hope and pray the doctors are doing the best thing. I’ll post my progress as I move through the treatment.
Anyone who has had IMRT out there would you have any encouragement that I’m doing the right thing? I would like to know your experience and how your treatment worked out. Many thanks.
Has anyone experienced bleeding following the insertion of the SpaceOAR prior to Proton therapy and if so what was the source or area of bleeding from and how long did it last?
Hi @tmurphptown, welcome. You'll notice that I moved your question to this existing discussion about prostate cancer, SpaceOAR and proton beam therapy that @kansascityhusker started a couple of days ago. I did this so that you can connect with @cdcfbw @joenfl2017 @rcs @remoteman7 @wrig1jam who have experience with SpaceOAR hydrogel and/or proton beam therapy.
@tmurphptown have you already had the SpaceOAR gel inserted and are experiencing bleeding?
I had 44 proton beam treatments at Mayo in Phoenix and they went well. I am now in my 5 th month with no detectable PSA levels. I had the carbon fiduciary markers (4 of them) no problem here either.The ADT is where I have my issues. I had a six month Eligard injection in November 2020 and I still have hot flashes and fat accumulation around my abdomen. My testecals have shrunk to 1/3 there normal size. My current testosterone is 12ng/ml the normal is greater than 175ng/ml. My oncologist said I most likely will never have normal testosterone because of my age 79. If possible I would go without the ADT. good luck. Jim
Thank you, Jim for your candid feedback. You helped reinforce my prior decision to go without ADT. Wishing you the best as time moves forward….
I am scheduled to have it done this next week and I am apprehensive about possible bleeding or other side effects after the insertion.
I also have issues with the ADT (Lupron). Same as yours and from what I read we can expect no relief until around 1 yr from the last shot. I'm going to be 72 in Oct. and am hoping for relief at my age as well but my oncologist only told me I would be reducing my testosterone TEMPORARLY…….so what does that mean? Good luck with your recovery and maybe someday we will get back to somewhat normal conditions.
Three years ago when my radiation oncologist told me that we should include Lupron as part of my treatment, it was the first time I had heard of ADT. When I looked at the side effects, I asked him if it was necessary. He told me, my Gleason was 4+4, that with the stage of my cancer cells adding Lupron will increase my chances of survival by 20%. I decided to check it out and the research I found verified that use of ADT and radiation did increase my chances of beating this cancer upto 80 some percent. Now for guys with cancer cells of Gleason scores less then mine, ADT is not as necessary and I met a number of guys at Mayo who didn't have the ADT treatment, but their cancer was less serious. I was 73 when I started my treatment and now am 17 months from the end of the ADT treatment. Somethings remain like increased breast size and added 5 lbs, but others are coming back including muscle strength, energy level, bone density and even my libido. Would I have preferred not having the Lupron treatment? Yes I definitely would have preferred not going through it, but my wife and I discussed it and she wanted me around.
So, whether to use ADT or not comes down to the risk of not using it. The risk is tied up in the level of your cancer. Pretty serious stuff.
It will take some time but your life will return to normal.
None of us asked for this.
Had my procedure done this past week. No bleeding. Just a slight feeling of “fullness” for a day or two. This procedure was much easier for me to tolerate than the biopsy of my prostate…. Good luck. I believe you find this procedure to be a piece of cake.
Sounds very encouraging. Did they use Valium and lidocaine for the pain management? Thank you for your response. Much appreciated.
For the SpaceOAR and Carbon Fidicial Marker procedure that was done at Mayo Phoenix last week. There was zero pain and to my knowledge, I experienced no bleeding. I was placed under anesthesia (was asleep) for the procedure. All went very smoothly and I was back home feeling fine within a couple of hours. The entire procedure, I am told, took about 20 minutes. I was in the recovery room, waking up, for about an hour. Again, I felt no pain, had no bleeding and the only after effect that I experienced was a slight feeling of “fullness” for a day or two after the procedure. That slight “fullness” feeling has since gone away.
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In