Mayo Clinic Connect
Are they compatible, I.e. taking CO while having immunotherapy? Any experience from anybody who use bothv
Liked by Merry, Volunteer Mentor, B &PopKorhn
@cheung – Good afternoon and welcome to Mayo Connect! I'd love for you to tell me more about your history. Will you be starting immunotherapy soon? Have you discussed this with your doctor? What type of cancer is the immunotherapy For?
I will start my immunotherapy (Keytruda) tomorrow. I was diagnosed with mesothelioma biphasic in July 17. Had 2 chemo, both didn't work. I had 1 Keytruda cycle in September 18, but had to stop due to lung infection and inflammation. Started taking the oil in Oct 18, but does not seem helping. One nodule is already 65mm in Jan 19. This is my last chance to help my body now.
Liked by Merry, Volunteer Mentor
@cheung – thank you for sharing this with me. I am a 21+ yearlung cancer survivor. I've had a lot of treatments but never immunotherapy. If have had SBRT though. I am truly sorry that you are going through this. I wish you all the best with immunotherapy. But you still should check with your doctor. Please keep me updated on you treatments. How are you feeling? How is your breathing?
I add my welcome @cheung. You may be interested in reading these discussions on Connect:
– Immunotherapy and chemo; Keytruda side effects https://connect.mayoclinic.org/discussion/immunotherapy-and-chemo/
– Using CBD/THC Oil to fight metastatic lung cancer https://connect.mayoclinic.org/discussion/using-cbdthc-oil-to-fight-metastatic-lung-cancer/
As with any complementary therapy, you should always talk with your oncologist. Complementary therapies can interact negatively with immunotherapy or chemotherapies and/or reduce their effectiveness.
May I ask why are you taking cannabis oil? What are hoping it will help? Were you hoping it would help the infection and inflammation?
I take CBD/THC for 1. Pain control, 2. Hopefully a cure. I discussed with my oncologist. He mentioned about the Isreal reported that CO can interfered with Keytruda and making it less effective. I am also PD-L1 negative. So the effectively of the treatment is unsure. But there is no better immunotherapy option? Is there any?
@cheung– Wishing you the best today with your immunotherapy. As far as CBD/THC there has not been a connection yet that it cures anything. Your doctors would know the best therapy for you, so you need to ask them. Since CBD/THC can interfere with Keytruda I would advise you to stop it. You want to give this medicine a chance to work! Let me know how you do today! Are you nervous?
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Thanks for the advice. The treatment went OK yesterday. No any noticeable change in the body.
@cheung– Great news. Were you awake? How soon should there be a change?
No idea. Anybody had the Keytruda experience?
@cheung, please join other members talking about Keytruda and lung cancer in this discussion:
> Immunotherapy and chemo; Keytruda side effects https://connect.mayoclinic.org/discussion/immunotherapy-and-chemo/
> Pembrolizumab (Keytruda), Cannabis and Cannabinoids https://connect.mayoclinic.org/discussion/nivolumabkeytruda-cannabis-and-cannabinoids/
I was diagnosed with stage IV metastatic lung cancer in August, 2018. I had radiation treatment on my brain tumors that resulted in 1 tumor now barely detectable and the other 2 reduced by 75% – I was also being treated with 2 chemos (alimta and cisplatin) as well as keytruda. After 4 treatments of this combo, I am now on ongoing maintenance and receiving only alimta and keytruda. I have no side affects with the exception of sensitive/weepy eyes and a drippy nose in week 3 of every treatment. My MD says she has not heard of this before but I find it odd that it is always in week 3, the same week I will receive the next treatment. I have recently read about CBD oil and its possible anti-tumor effectiveness so started taking it just a week ago. I had no idea that it may reduce the effectiveness of the keytruda so plan to speak to my chemo pharmacist this Friday when I go in for my next treatment. There is so much conflicting information on the web, we must all be careful. My oncologist says of there is not a study on it, she will not recommend it. No alternative treatment advice from her, but so far I am responding well to treatment so we are doing something right. I hope to win this battle, that's for sure. Dies, exercise and meditation are so very good for us too!
Liked by Colleen Young, Connect Director, Merry, Volunteer Mentor, bluelagoon
@jgatti60– Good morning. It's always such wonderful news to hear that a treatment is working for a cancer patient. It brings hope and some peace to us all. I am a lung cancer survivor of 22 years. And I had cisplatin as part of my chemo. That is rough stuff, especially on the stomach. How are you doing with that? What kind of lung cancer do you have? I have NSCLC.
Please make sure that you do ask your doctor about CBD oil and immunotherapy. But also ask, at this time, since my cancer is being killed by the treatment I am having, with great success, do I really want to rock the boat?
Liked by bluelagoon
@jgatti60 Thank you sharing yout story. My dad has the same diagnoses and he is doing the same treatement now. He will do his second cycle of Alimta and Cisplatin in 2 weeks and it will be 4th cycle of Keytruda. He is planning to do PET end of March to see the tesults. Nice to hear that the treatment worked for you. I do hope that doctors will stop Cisplatin after the second one since he is having neuropathy problems in his legs. He has no other side effects. I was also hoping to get CBD oil but worry about the interaction with Keytruda. If you find out anything, please let me know .
What do doctors say, how long you should continue keytruda?
Keep us posted. Ina
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