Can Neuropathy be cured?

Posted by catstx @catstx, Sep 8, 2021

I’ve had P. neuropathy for 30 years. Just recently I’ve better controlled my blood sugar. So, I’m wondering if Neuropathy ever goes away, Or, if once the nerves are dead they’re just dead

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I have to jump in here. I've been to Mayo in Rochester, MN and I went to Johns Hopkins and in late 2021, I went to the University of PA and I've seen some great neurologists. All tests conclude in my case sensorimotor polyneuropathy (idiopathic). The answer is ... no cause....and I feel it is as frustrating on docs as it is on us. Doctors spend years in school to learn how to treat people with medical problems and little can be done for those of us with PN. I have lots of numbness and poor balance but I try to remain optimistic. I feel like many of us there will be no cure but perhaps the best we can do is figure out how to live our lives with it. Ed

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Thanks for this update; at least, now we know; saves a lot of time and trouble and frustration searching for the cure; I am fortunate , so far, of it not being an overwhelming problem, troublesome, sometines painful, but manageable. Good luck to you and I appreciate your being candid with us all.

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I don't know if this information will be of any use to you, but, just in case it might, here goes; Many years ago I had a friend that had to undergo back surgery, unfortunately things did not go well for her; she was unable to walk her feet were so numb, with no feeling at all in them. She was obstinate though and every day she would be taken to a pool with also a hot tub. She would get into the cold pool water then get out and get diretly into the hot tub, over a period of a few months, enough feeling came back into her feet that she could walk again albeit very slowly but limping as well. The cold/hot treatment stimulated the nerves enough to allow her to walk again. I found this quite remarkable.

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@rozbee

I don't know if this information will be of any use to you, but, just in case it might, here goes; Many years ago I had a friend that had to undergo back surgery, unfortunately things did not go well for her; she was unable to walk her feet were so numb, with no feeling at all in them. She was obstinate though and every day she would be taken to a pool with also a hot tub. She would get into the cold pool water then get out and get diretly into the hot tub, over a period of a few months, enough feeling came back into her feet that she could walk again albeit very slowly but limping as well. The cold/hot treatment stimulated the nerves enough to allow her to walk again. I found this quite remarkable.

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Rozbee - I agree with you, it is extraordinary that over a few months, the felling came back to the point she could walk, even slowly is a start. I believe this could help some people but it likely depends on the extent of the nerve damage and which nerves are being impacted. Could be the blood flow helped in her case gain some feeling. Wish her continued improvement - Ed

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@njed

Rozbee - I agree with you, it is extraordinary that over a few months, the felling came back to the point she could walk, even slowly is a start. I believe this could help some people but it likely depends on the extent of the nerve damage and which nerves are being impacted. Could be the blood flow helped in her case gain some feeling. Wish her continued improvement - Ed

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Yes, very fortunate for her; of course, this procedure may not help; the good thing is, if it is tried and it fails, there is no harm done whatsoever. This story of my friend happpened probably over 30 years ago; she is no longer alive; But, it is a good thing when any kind of relief can come without taking meds that many times come with side effects that are as bad as, if not worse, that the malady itself.

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@njed

I have to jump in here. I've been to Mayo in Rochester, MN and I went to Johns Hopkins and in late 2021, I went to the University of PA and I've seen some great neurologists. All tests conclude in my case sensorimotor polyneuropathy (idiopathic). The answer is ... no cause....and I feel it is as frustrating on docs as it is on us. Doctors spend years in school to learn how to treat people with medical problems and little can be done for those of us with PN. I have lots of numbness and poor balance but I try to remain optimistic. I feel like many of us there will be no cure but perhaps the best we can do is figure out how to live our lives with it. Ed

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Have you ever tried a supplement, Lion’s Mane. My chiro just recommended I try it for the neuropathy swelling in my feet?

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@jchet

Have you ever tried a supplement, Lion’s Mane. My chiro just recommended I try it for the neuropathy swelling in my feet?

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@jchet - There is a discussion where members have posted about Lion's Mane - https://connect.mayoclinic.org/discussion/lions-mane/

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@jchet

Have you ever tried a supplement, Lion’s Mane. My chiro just recommended I try it for the neuropathy swelling in my feet?

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I have not tried Lion's Mane. I do take other supplements such as Alpha Lipoic Acid but I will check into it. I also see John B posted a link which I will review. This is why this shared info is vital because I think we tend to learn from one another who have PN and perhaps tried various options. Thanks! Ed

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@jchet

Have you ever tried a supplement, Lion’s Mane. My chiro just recommended I try it for the neuropathy swelling in my feet?

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I have. I get mine from a company called Primal Herb. I believe it is helping. I also use infared light & vibration plate.
FYI. I do not have any financial interest in Primal Herb inc

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Has anyone in the group had any luck with the "Sanexas Treatment.. Electric cell signaling

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