1. < Neuropathy

Can Neuropathy be cured?

Posted by catstx @catstx, Sep 8, 2021

I’ve had P. neuropathy for 30 years. Just recently I’ve better controlled my blood sugar. So, I’m wondering if Neuropathy ever goes away, Or, if once the nerves are dead they’re just dead

Interested in more discussions like this? Go to the Neuropathy Support Group.

Debbie | @dbeshears1 | Sep 4, 2022
In reply to @njed "Yes, I have balance issues. My last EMG in 2/2020 was not normal and although difficult..." + (show)
@njed

Yes, I have balance issues. My last EMG in 2/2020 was not normal and although difficult to pinpoint, I'd say my balance issues because more serious in my 4th year of having PN. The first several years was numbness related, now both.
When I first stand, I concentrate for about 5 seconds and try to find my best position for balance.

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Once again you make me feel “normal” in my new PN life. I too need to stand for several seconds for balance, pray I can make my first step, and celebrate (in my head) when I discover my walking is still “normal “. Though I haven’t taken a fall in 4 years now, there’s still a fear, especially given the setbacks we don’t need from incidental injuries. Do you ever massage your feet or legs before standing? I’ve just now started doing that, so I’m not yet sure if it’s helping.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 4, 2022
In reply to @artscaping "Hi there @ancopau1998, that was a quick response. @johnbishop will automatically receive my post in which..." + (show)
@artscaping

Hi there @ancopau1998, that was a quick response. @johnbishop will automatically receive my post in which I mentioned him and will post back to you promptly. Or, if you like you can just direct a post to him. Just use @johnbisohp as the "address".

Let me know if you need more help.
Chris

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Tada! -- Hi Angie @ancopau1998, I am easy to find when you tag me using my member name @johnbishop 🙃 I had replied to you back in December of last year but never heard back. My bad for not reaching out sooner to see how you were doing. Here was my post in the first discussion you found -- Neuropathy: Numbness only, no pain: https://connect.mayoclinic.org/comment/661491/.

I haven't really found any lotions that helped with the numbness but I have found a few that made the feet and legs feel better. I think because it helps to keep your skin moisturized and the peripheral nerves are close to the skin. I really like Life-Flo Magnesium lotion but any lotion that is a good moisturizer helps to keep your skin from drying out and would help any healing process if there is to be one.

Your first post mentioned you were taking chemo pills for Multiple Myeloma. I didn't think of it at the time, but there is a good video that you might helpful on chemo induced peripheral neuropathy. I posted the Webinar: Chemo-Induced Peripheral Neuropathy video in another discussion here – What helps the symptoms of Small Fiber Neuropathy?: https://connect.mayoclinic.org/comment/666818/.

How are you doing with your Multiple Myeloma?

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1 reply
ken82 | @ken82 | Sep 4, 2022
In reply to @windsorchris "There is a biotech company in San Diego, CA WinSanTor which is conducting trials on a..." + (show)
@windsorchris

There is a biotech company in San Diego, CA WinSanTor which is conducting trials on a "Cure" using a topical medication featuring Pirenzepine. They have recently completed Stage II Trials and state that the results, soon to be published, show significant nerve regeneration including improved quality of life and are now seeking massive numbers of State III Trials participants.

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https://www.ninds.nih.gov/health-information/disorders/peripheral-neuropathy
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Carlos Sierra | @carlossierra1287 | Sep 4, 2022
In reply to @carlossierra1287 "Hi friends in pain. Let’s keep praying for each of us. Prayers will heal our souls..." + (show)
@carlossierra1287

Hi friends in pain.
Let’s keep praying for each of us. Prayers will heal our souls and keep us focused.

Look,
Most us, have Bengay or alike ointments. Add
Add PURE ( a pepper lotion.) cayenne pepper base ointment. MIX IN YOUR HANDS.
APPLY 2 -3 x a day: I STARTED 3x
NOW 2 x for sure 1 at night on Ft. or hands.

CVS, WALMART WILL HAVE.

Hope it helps

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Agree.
The pepper opens our skin pores to allow flow into our bloodstream.
Keep doing till the improvements are felt.

We want IMMEDIATE ACTION. LET US NOT forget pain is one of the most difficult AND COMPLEX HUMAN ELEMENT/ ill mental issues THE BODY SYSTEMS HAS TO TREAT.

LETS ALSO PRAY FOR EACH

Let’s enjoy our the fruits on and off Labor Day.

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NJ Ed | @njed | Sep 5, 2022
In reply to @dbeshears1 "Once again you make me feel “normal” in my new PN life. I too need to..." + (show)
@dbeshears1

Once again you make me feel “normal” in my new PN life. I too need to stand for several seconds for balance, pray I can make my first step, and celebrate (in my head) when I discover my walking is still “normal “. Though I haven’t taken a fall in 4 years now, there’s still a fear, especially given the setbacks we don’t need from incidental injuries. Do you ever massage your feet or legs before standing? I’ve just now started doing that, so I’m not yet sure if it’s helping.

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Deb - In the past year, I've looked at this sensory-motor PN as a new normal and not my old normal. You are fortunate that you have not fallen for several years. I did fall about a year ago, stood up and the left foot didn't move. Right away....uh oh. So, you reach out to grab something to fall into, so you don't land on the floor. A year ago, I landed on the floor, no injuries. Over the last 3 years, I've become more prepared for a fall. On those "off days", I use a cane. I will try leg messages as you have and see if it helps. Prior messages have not helped but I never tried to stand up afterwards. Will let you know if I see any improvement. By the way, I've found that when I stand up from a sitting position, if I lean forward as I stand up, then bring upper body upward after standing, my balance is better. Just works for me. Ed

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kid2thdr | @kid2thdr | Sep 6, 2022

I also have sensorimotor PN and last night when discussing it with dear friend as my “new normal”. I also take a “pause” whenever I go from sitting to standing. I must be careful when leaning forward as my vertigo is apt to “sound off” and I can go nose/head first to the ground.
I’m in PT primarily to strengthen my muscles and core to helpfully engage should I start listing one way or the other before my brain picks up on it. That has been most helpful.
Yes, new normal IS what it IS. Just a different kind of day in “paradise”. Blessings to all in this new season.

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1 reply
tarheel22 | @tarheel22 | Sep 6, 2022
In reply to @windsorchris "There is a biotech company in San Diego, CA WinSanTor which is conducting trials on a..." + (show)
@windsorchris

There is a biotech company in San Diego, CA WinSanTor which is conducting trials on a "Cure" using a topical medication featuring Pirenzepine. They have recently completed Stage II Trials and state that the results, soon to be published, show significant nerve regeneration including improved quality of life and are now seeking massive numbers of State III Trials participants.

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How do I find out about participating in this trial?

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1 reply
NJ Ed | @njed | Sep 6, 2022
In reply to @kid2thdr "I also have sensorimotor PN and last night when discussing it with dear friend as my..." + (show)
@kid2thdr

I also have sensorimotor PN and last night when discussing it with dear friend as my “new normal”. I also take a “pause” whenever I go from sitting to standing. I must be careful when leaning forward as my vertigo is apt to “sound off” and I can go nose/head first to the ground.
I’m in PT primarily to strengthen my muscles and core to helpfully engage should I start listing one way or the other before my brain picks up on it. That has been most helpful.
Yes, new normal IS what it IS. Just a different kind of day in “paradise”. Blessings to all in this new season.

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When my PN started, I was in PT 3 days a week and core strengthening is something my therapist worked on. Wish you the best in continuing with PT. I had to step out for now.

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Mentor
John, Volunteer Mentor | @johnbishop | Sep 6, 2022
In reply to @tarheel22 "How do I find out about participating in this trial?" + (show)
@tarheel22

How do I find out about participating in this trial?

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Here's the WinSanTor clinical trials list
-- https://clinicaltrials.gov/ct2/results?cond=&term=winsantor&cntry=&state=&city=&dist=

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marvininhouston | @marvininhouston | Sep 6, 2022
In reply to @logman1 "Has anyone had an EMG and it determined normal nerve and muscle function, so if that..." + (show)
@logman1

Has anyone had an EMG and it determined normal nerve and muscle function, so if that was true why was I determined to have or it must be neuropathy ???? And had anyone lost their balance ????

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I had an EMG last week. Despite my MRI stating mild spinal stenosis, Doctor said my nerves in my lumbar area were not causing my neuropathy and I know this is BS. I know the progression how I got neuropathy in my feet, dealt with a very recent herniated disc, and, I know my lumbar area is causing this pinched nerve, stenosis, whatever you want to call it. EMG was wrong …

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