1. < Neuropathy

Can Neuropathy be cured?

Posted by catstx @catstx, Sep 8, 2021

I’ve had P. neuropathy for 30 years. Just recently I’ve better controlled my blood sugar. So, I’m wondering if Neuropathy ever goes away, Or, if once the nerves are dead they’re just dead

Interested in more discussions like this? Go to the Neuropathy Support Group.

bonniethompson1234 | @bonniethompson1234 | Sep 11, 2021

Thanks for your reply, Chris. I was only told I had peripheral neuropathy as a result of a bad case of shingles in my sciatic nerve. This site has made me aware of the term small fiber neuropathy. As I have so much pain throughout my body and had a very bad experience with knee surgery in my right knee, I’m wondering how to go about defining what I actually have. But I will find out. After my cataract surgery which is next on the agenda. Best always, Chris! Bonnie

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Moderator
Amanda Roe | @amandajro | Sep 11, 2021
In reply to @lisette43 "Thanks for your suggestion. I just emailed the PT that I have been going to and..." + (show)
@lisette43

Thanks for your suggestion. I just emailed the PT that I have been going to and asked if he could either do this technique or recommend someone who does. I actually think he has used it before with me but I didn't know it was called that.

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Hello and welcome, @lisette43. I see you found a suggestion from @artscaping's post that you feel you may benefit from with your PT.

Will you share what you learn?

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retired123 | @retired123 | Sep 12, 2021
In reply to @barbb "No MD has ever said I have neuropathy (peripheral). When I talked to my internist about..." + (show)
@barbb

No MD has ever said I have neuropathy (peripheral). When I talked to my internist about how going barefoot doesn't feel good, she explained that the fat in your soles leaves and so I don't have "cushions" anymore and that it is not uncommon with older people. That's the extent of dialogue I've had with an MD about my symptoms. If I want to talk more with a doctor about what I have, is there any particular type of MD e.g. neurologist, that would seem appropriate? Perhaps it was at Mayo that I recently read that you can get injections of fat in your feet to feel better there. Know anything about that?

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Go to either a podiatrist or a neurologist and ask to be tested for small fiber neuropathy. If you don't ask they will not mention it. It took me 2 years to get diagnosed. Meanwhile symptoms progressed. It starts in the feet.

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2 replies
windsorchris | @windsorchris | Sep 12, 2021

There is a San Diego Biotech Co. (WinSanTor) conducting trials in Canada on a "Cure" using a topical Pirenzepine based formula. Claimed that Pirenzepine causes peripheral nerves to regenerate if damaged. This if it works, is a cure although it is time sensitive as you must have nerves that are not totally destroyed for Pirenzepine to work. So...there is Hope.

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Sep 12, 2021
In reply to @windsorchris "There is a San Diego Biotech Co. (WinSanTor) conducting trials in Canada on a "Cure" using..." + (show)
@windsorchris

There is a San Diego Biotech Co. (WinSanTor) conducting trials in Canada on a "Cure" using a topical Pirenzepine based formula. Claimed that Pirenzepine causes peripheral nerves to regenerate if damaged. This if it works, is a cure although it is time sensitive as you must have nerves that are not totally destroyed for Pirenzepine to work. So...there is Hope.

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Thank you @windsorchris for putting a name to the company and the efforts with Pirenzepine. You are right.....many solutions have come from efforts just like this managed by courageous and brilliant folks. Please keep us updated.

May you be happy and healthy.
Chris

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cameron2020 | @cameron2020 | Sep 13, 2021
In reply to @retired123 "Go to either a podiatrist or a neurologist and ask to be tested for small fiber..." + (show)
@retired123

Go to either a podiatrist or a neurologist and ask to be tested for small fiber neuropathy. If you don't ask they will not mention it. It took me 2 years to get diagnosed. Meanwhile symptoms progressed. It starts in the feet.

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I'm beginning to think that no one knows very much about PN, and that Drs. shy away from discussing it., & rather not deal with the symptoms. i find the discussion with this group, more informative. Are PAD & PN the same disease? I could not get medical insurance from a company because I listed PN. My agent thought they were the same.

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2 replies
razzle50 | @razzle50 | Sep 13, 2021
In reply to @cameron2020 "I'm beginning to think that no one knows very much about PN, and that Drs. shy..." + (show)
@cameron2020

I'm beginning to think that no one knows very much about PN, and that Drs. shy away from discussing it., & rather not deal with the symptoms. i find the discussion with this group, more informative. Are PAD & PN the same disease? I could not get medical insurance from a company because I listed PN. My agent thought they were the same.

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Please what do u use on your feet , mine are burnng and tingling so bad

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1 reply
razzle50 | @razzle50 | Sep 13, 2021

Please help what do you all use for the pain and burning

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Sep 13, 2021
In reply to @cameron2020 "I'm beginning to think that no one knows very much about PN, and that Drs. shy..." + (show)
@cameron2020

I'm beginning to think that no one knows very much about PN, and that Drs. shy away from discussing it., & rather not deal with the symptoms. i find the discussion with this group, more informative. Are PAD & PN the same disease? I could not get medical insurance from a company because I listed PN. My agent thought they were the same.

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Hi @cameron2020 -- Hopefully this will help with explaining the difference.

"Are PAD and neuropathy related?
These results demonstrate that PAD can be associated with the development of a multifocal predominantly motor neuropathy, which is most likely ischemic in etiology. Furthermore, exercise training does not pose an additional risk for the development of neuropathy in patients with moderately severe PAD." -- Is it Neuropathy or Peripheral Artery Disease?: Progression of neuropathy in peripheral arterial disease - PubMed: https://pubmed.ncbi.nlm.nih.gov/7715622/

Diagnosing and Treating Peripheral Arterial Disease: https://www.hopkinsmedicine.org/health/conditions-and-diseases/diagnosing-and-treating-peripheral-arterial-disease

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Mentor
John, Volunteer Mentor | @johnbishop | Sep 13, 2021
In reply to @razzle50 "Please help what do you all use for the pain and burning" + (show)
@razzle50

Please help what do you all use for the pain and burning

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Hello @razzle50, Sorry to hear you haven't found anything that helps with your pain and burning in your feet. You may find some help by reading through the posts in the following discussion to learn what other members have shared.

Burning feet and legs: https://connect.mayoclinic.org/discussion/burning-feet-and-legs/

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