C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@ngorman25

So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?

Jump to this post

Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

REPLY

He is correct. Probiotics are meant to for short term use only. They help to fill you gut with new microbe that were taken away by antiobics and other germs that are nasty to your good bacteria. Probiotics live only for a short while and eventually are gotten rid by your body's defense mechanisms. What you want to do is fill you GI tract with good clean fruits and vegetables that have the prebiotic nutrients on them and in them so that you gut can fill up on them and use them to fight off the germs/bad bacteria that fill your GI tract on a constant basis. Only occassionally, do you need to have a good and expensive probiotic (refrigerated kind) that will help you when you have a GI Distress. This will help with the GERD, diarrhea, wrong food you ate that caused an upset stomach. Physicians are now giving probiotics along side antibiotics because they know that one helps the other in the gut. This should be the cardinal rule. It wasn't always that way years ago.

REPLY
@annapocono

Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

Jump to this post

Correct – because these are the foods that have the prebiotics in them – they help put down the microbe that your gut needs. That is why the Cdiff has difficulty implanting itself into your GI Tract where it usually lives.

REPLY
@nurseheadakes

Correct – because these are the foods that have the prebiotics in them – they help put down the microbe that your gut needs. That is why the Cdiff has difficulty implanting itself into your GI Tract where it usually lives.

Jump to this post

I have mild rheumatoid arthritis in addition to having had C. Diff. When I reported to RA doctor that I had some constipation and was leery of taking any of the usual laxative type stuff because of what was in them, she suggested instead Prebiotics. i bought the "hyperbiotics" brand and it totally took care of the problem.

REPLY

since having C. Diff i have become ANEMIC. Has that happened to any of you? the GI doctor says that while the colon heals itself within two weeks, the intestinal flora takes a long time to restore and I think what he was saying is that I am not able to get all the nutrition from my food yet. I also have had a really HARD TIME PUTTING WEIGHT BACK ON despite eating huge amounts. has that happened to any of you?

REPLY
@annapocono

since having C. Diff i have become ANEMIC. Has that happened to any of you? the GI doctor says that while the colon heals itself within two weeks, the intestinal flora takes a long time to restore and I think what he was saying is that I am not able to get all the nutrition from my food yet. I also have had a really HARD TIME PUTTING WEIGHT BACK ON despite eating huge amounts. has that happened to any of you?

Jump to this post

@annapocono I, too, have not been able to gain any weight since I got sick last September. I worry cause I only weigh 89lbs. and if I get sick, I will be in big trouble!

REPLY
@annapocono

Three of the doctors I have seen recommended from the start eating probiotic foods (kefir, kombucha, sauerkraut, pickles, tempeh, pickled fish etc) rather than taking the pills which are very strong the infectious disease specialist told me. So Have not taken the pills but I plan to continue eating probiotic foods forever. They are supposed to be very good for the gut and help to keep C Diff at bay. I recovered from my first but very intense episode of C. Diff in early January. I have had no relapse.

Jump to this post

@annapocono Also, all the probiotic foods you have mentioned, I do not eat! Not yogurt. So, I really don't know what to do about the probiotic I have been taking.

REPLY

Yep…you all will be skinny – lose weight because the Cdiff is taking away all of your good bacteria from your gut and you have little to defend yourself and help you build yourself up. If you go to a Health Food Store – they can give you some suggestions of good Prebiotics that you might like to eat. Change to a different Probiotic – one that is refrigerated and has the highest number of the biotics.
These foods will also help you get rid of this super bug: papayas, aloe vera, any of the raw fruits and veggies and also oregano, rosemary, sage and thyme. These suggestions are from Anthony William's Medical Medium Life-Changing Foods. I follow his books for my own health and it works.

REPLY
@nurseheadakes

He is correct. Probiotics are meant to for short term use only. They help to fill you gut with new microbe that were taken away by antiobics and other germs that are nasty to your good bacteria. Probiotics live only for a short while and eventually are gotten rid by your body's defense mechanisms. What you want to do is fill you GI tract with good clean fruits and vegetables that have the prebiotic nutrients on them and in them so that you gut can fill up on them and use them to fight off the germs/bad bacteria that fill your GI tract on a constant basis. Only occassionally, do you need to have a good and expensive probiotic (refrigerated kind) that will help you when you have a GI Distress. This will help with the GERD, diarrhea, wrong food you ate that caused an upset stomach. Physicians are now giving probiotics along side antibiotics because they know that one helps the other in the gut. This should be the cardinal rule. It wasn't always that way years ago.

Jump to this post

I was told by my GI Dr not to take probiotics while on the antibiotics. The antibiotics kill the good with the bad bacteria and you're trying to replenish something that the antibiotic is killing. If you take the probiotics while taking the antibiotic you're stopping the antibiotic from doing it's job. He always told me to take the probiotics after i'm done with the antibiotic to build good bacteria.

REPLY
@ngorman25

@annapocono Also, all the probiotic foods you have mentioned, I do not eat! Not yogurt. So, I really don't know what to do about the probiotic I have been taking.

Jump to this post

Bananas are a good prebiotic.

REPLY
@claytamos

I was told by my GI Dr not to take probiotics while on the antibiotics. The antibiotics kill the good with the bad bacteria and you're trying to replenish something that the antibiotic is killing. If you take the probiotics while taking the antibiotic you're stopping the antibiotic from doing it's job. He always told me to take the probiotics after i'm done with the antibiotic to build good bacteria.

Jump to this post

Some docs do it both ways – depending on what part of the country you come from….

REPLY
@claytamos

Bananas are a good prebiotic.

Jump to this post

Indeed they are …

REPLY

@ngorman25 I'm still taking the probiotic but I must admit there are days that I forget and I'm not near as faithful as I was during the winter months. My GI had me on Floratsor because it was the one with S. Boulardii. I probably take it 3 or 4 times a week now. My chiropractor also believes that probiotics are good for the entire body and even helps with UTI's. I was concerned all winter that I might get another sinus infection or UTI. The clindamycin I took for the sinus infection is what started my Cdiff. But I stayed healthy all winter…. praise the Lord. I've gained back all the weight I lost with Cdiff. I wish I hadn't. I lost 10 pounds in two weeks with the last (4th) and final bout last October. My heart goes out to all the people fighting Cdiff. I'm happy to hear that you are doing well since your FMT.

REPLY

Thank you all for the input. I can definitely do bananas! I think I will take your advice, nurseheadakes, and visit a health food store! You all rock! Stay well!

Liked by pines

REPLY
@ngorman25

So, I have a question for everyone. My gastro doctor had told me on more than one occasion that it wasn't necessary to continue taking probiotics. I'm on the fence about this. I am doing ok (so far) since my fmt on March 22. Are any of you still taking probiotics?

Jump to this post

My son suffers from ulcerative colitis and we have found that as long as he takes the probiotics, his flare ups have gone away. It’s been 10 years now. They are the refrigerated ones – VSL#3

Liked by pines

REPLY
Please login or register to post a reply.