C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

I had c diff In January. I isolated myself from my kids and grandkids for fear of infecting them. Finally I saw an infectious disease specialist
At NYPresbyterian Hospital. She said you are only contagious when you have
Active
Diarrhea. She also said that c diff spores are in many places though of course most
In hospitals and in people with active c diff diarrhea. She said many babies before the age of one year carry it but do not
Get it. Bottom line message was that most people can cope with regular density of c diff spores unless they have the 3 risk factors for c diff. This was very comforting to me.
But everyone needs to be protected
From high density of spores
As
In hospitals and person with active c diff diarrhea.

REPLY
@annapocono

I had c diff In January. I isolated myself from my kids and grandkids for fear of infecting them. Finally I saw an infectious disease specialist
At NYPresbyterian Hospital. She said you are only contagious when you have
Active
Diarrhea. She also said that c diff spores are in many places though of course most
In hospitals and in people with active c diff diarrhea. She said many babies before the age of one year carry it but do not
Get it. Bottom line message was that most people can cope with regular density of c diff spores unless they have the 3 risk factors for c diff. This was very comforting to me.
But everyone needs to be protected
From high density of spores
As
In hospitals and person with active c diff diarrhea.

Jump to this post

@annapocono If you don't mind me asking, what are the 3 risk factors of cdiff?

REPLY
@annapocono

I had c diff In January. I isolated myself from my kids and grandkids for fear of infecting them. Finally I saw an infectious disease specialist
At NYPresbyterian Hospital. She said you are only contagious when you have
Active
Diarrhea. She also said that c diff spores are in many places though of course most
In hospitals and in people with active c diff diarrhea. She said many babies before the age of one year carry it but do not
Get it. Bottom line message was that most people can cope with regular density of c diff spores unless they have the 3 risk factors for c diff. This was very comforting to me.
But everyone needs to be protected
From high density of spores
As
In hospitals and person with active c diff diarrhea.

Jump to this post

If you have c.dif and you and those around you wash your hands after using the toilet and wash your hands regularly you're not going to spread c.dif..

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@ngorman25

@annapocono If you don't mind me asking, what are the 3 risk factors of cdiff?

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1. Being old like I think over 65 or so
2. Having been in hospital which is headquarters for the c. Diff spores.
3. Having recently taken an antibiotic particularly one of the high risk ones but all of them increase risk.
Best wishes to you

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I too had cdiff in 2015 after taking clindamyacin. Tried different probiotics and the only one that worked for me was one by Advocare. Not in stores so I had to find a rep on the internet who I could buy it from. Cdiff is not fun. I have been back to normal after taking it. Cannot remember how long I took it. 1-2 months?

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@mmja

I too had cdiff in 2015 after taking clindamyacin. Tried different probiotics and the only one that worked for me was one by Advocare. Not in stores so I had to find a rep on the internet who I could buy it from. Cdiff is not fun. I have been back to normal after taking it. Cannot remember how long I took it. 1-2 months?

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can I recommend and strongly suggest to aid your recovery from CDifficule you have a low sugar diet , because the bacteria thrives and loves the high sugar western diet and it will return

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@patts

Wanted to lay my woes at the feet of people who understood. I was felled with a severe case of colitis. I was sent to ER ON 7/16. I tested negative for C. Diff. at that time. However m they said I had sepsis along with the colitis, so was put IV antibiotics for almost 3 days and sent home with 2 weeks of cipro and flagyl.

This whole colitis attack came out of the blue. I had felt fine up until that point. I was having some bowel issues but nothing serious, so I guess that was the start of colitis.

Now I have c. Diff. from the massive amounts of antibiotics I’ve been on. My gastro doc sent me in for quite a few fecal exams and the only thing that showed up was the c. diff. She immediately put me on 2 weeks of vancomycin.

My doc is telling me how contagious this is. I’ve been sleeping n our guest bedroom, using the guest bathroom, I have my own dinnerware and utensils, I’ve e been wearing gloves and walking around with Clorox wipes. I have one more week of the vancomycin. My hands are pretty raw from the constant washing and using the Clorox wipes.

I am missing a trip to IN for my oldest grandsons birthday. Doctor gave me a “absolutely not” on that one.

I haven’t lost weight and thankfully I feel okay and no pains. Thankfully, I’m retired so it’s no hardship staying at home.

I follow up with my doc on 9/3.

From what I’ve read, I’m really afraid of relapse because this quarantine is driving me crazy and I’m depressed. I don’t want to think this is going to keep interfering with my life!

Thanks for listening to my “oh, woe is me” tale.

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@patts I know how it feels being scared of relapse. i had to take two courses of vanco back to back. I was very very scared of relapse. I am 75 and my c. diff like yours felt like it came out of the blue, but also like you i had previously taken a bunch of antibiotics. In any case I was otherwise in pretty good health. I lost 9 lbs and like i said I was scared of relapse. A good friend who was a nurse practitioner kept reassuring me that my constitution was basically strong and so I wouldn't relapse. And i haven't and it's been 7 months. good luck to you. I think it is very promising that you haven't lost eight and feel okay and no pain.

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@annapocono

@patts I know how it feels being scared of relapse. i had to take two courses of vanco back to back. I was very very scared of relapse. I am 75 and my c. diff like yours felt like it came out of the blue, but also like you i had previously taken a bunch of antibiotics. In any case I was otherwise in pretty good health. I lost 9 lbs and like i said I was scared of relapse. A good friend who was a nurse practitioner kept reassuring me that my constitution was basically strong and so I wouldn't relapse. And i haven't and it's been 7 months. good luck to you. I think it is very promising that you haven't lost eight and feel okay and no pain.

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Thank you, Anna. I’m just a few days in to my second round of Vancomycin (this time a higher dose). I had another set of tests and should see results end of week. This has really cramped my style, lol. I hope I follow your record of no relapse!

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@patts

Thank you, Anna. I’m just a few days in to my second round of Vancomycin (this time a higher dose). I had another set of tests and should see results end of week. This has really cramped my style, lol. I hope I follow your record of no relapse!

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@patts From what my doctor said and what I have read on line, people who are pretty much recovered from c. Diff can continue to test positive for c. Diff at least for a while;
and so,as I understand it, one should not be tested for c Diff unless one has active diarrhea. Otherwise they can keep giving you vanco
When you don’t need it and when it is better to let the body do the finishing up job on it’s own. again good luck to you.

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I am over the diarrhea but I have painful constipation. I bloat so badly I look 9 months pregnant and it’s like thumping a watermelon. Anyone else?

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@nettecook

I am over the diarrhea but I have painful constipation. I bloat so badly I look 9 months pregnant and it’s like thumping a watermelon. Anyone else?

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Me too i had cdiff in june but took untill now for my belly and bloating to decrease. Its not completely gone but ive lost about 3 in across my belly button circumference. I still get some pain low on my belly like near the belly button after eating but per dr suggestion i am eating small meals every couple of hours rather than big ones. He says to much food at once irritates the gut and slows down healing.

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@nettecook

I am over the diarrhea but I have painful constipation. I bloat so badly I look 9 months pregnant and it’s like thumping a watermelon. Anyone else?

Jump to this post

I suffered with C-diff almost a whole year before finally being diagnosed. It took one round of vanco and one round of dificid. I finished that in February and have tested negative since. However, some days I'm sure it is back, then after several days, I feel better. It's been a constant roller coaster. I still bloat awful, it doesn't seem to matter what I eat, not eat or exercise. I am one of the few that gained over 15 pounds while suffering with it. I'm not sure why…I'm still lacking in energy and motivation…I'm wondering if something else is going on. I am 47 and have been very active and healthy up until this hit me.

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