C. diff relapse?

Posted by patts @patts, Sun, Sep 1 11:36am

How many have had a relapse. I finished my two weeks of vancomycin and believe I still have it. Did a stool sample Friday, so I guess I’ll see. Tired of isolation, Clorox and mood.

Hi @patts, that must be frustrating to feel you have relapsed after finishing your prescribed medication.

@sue6408 @annapocono and @danab have all mentioned c. diff in the past and may be able to offer you support.

Back to you @patts, how long did you have c. diff the first time?

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Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me a month to finally get over the symptoms. I had finished the meds but still needed frequent bathroom visits. Them finally after a month my bowels started acting a bit more normal.

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@danab

Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me a month to finally get over the symptoms. I had finished the meds but still needed frequent bathroom visits. Them finally after a month my bowels started acting a bit more normal.

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Thank you. I finished 2 weeks of vancomycin last Thursday and things aren’t back to normal bowel-wise yet. Encouraging to know it may be done or leaving. I still feel I should use gloves and Clorox wipes for awhile tho!

Liked by danab

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@danab

Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me a month to finally get over the symptoms. I had finished the meds but still needed frequent bathroom visits. Them finally after a month my bowels started acting a bit more normal.

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Well, I went full-blown waterfall diarrhea during the middle of the night, 🙁. My gastro appointment this Tuesday was cancelled since we had hurricane threat. Just called for a reschedule and they can’t get me in until the 18th. . Spoke with the nurse and she was going to talk to the doctor to see what should be done, not happy.

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@patts

Well, I went full-blown waterfall diarrhea during the middle of the night, 🙁. My gastro appointment this Tuesday was cancelled since we had hurricane threat. Just called for a reschedule and they can’t get me in until the 18th. . Spoke with the nurse and she was going to talk to the doctor to see what should be done, not happy.

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Im so sorry, i pray they find a solution quick.

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@patts. I’ve had 4 relapses & then an FMT on February 28th. I’m finally in remission, but my tummy still isn’t right. Lots of foods still hurt me. I either have not enough stool or too much, but not diarrhea. I’m thankful to be alive though. I pray that you are ok. I had a wonderful GI that would see me anytime I called. Good luck,,,PRAYERS.

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Thank you! My doc decided to have me do some more tests and put me on a round of a higher dosage of Vancomycin for two weeks, then a tapering off period after that.

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Hi @patts @danab @sandyabbey,

I thought you might like to view this video about C. Difficile Care at Mayo Clinic
https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/c-difficile-care-at-mayo-clinic/
If you follow the "Gastroenterology & GI Surgery Page" on Connect – https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/
you can browse through newsfeed posts from Mayo Clinic experts, learn about clinical trials and up-to-date research, and find resources for all your gastroenterology needs.

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Just saw an article with no video?

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Okay, all my c diff people, lol. Doc says I’m cleared to go out now, etc., since my bowels have pretty much righted themselves. I finish off my Vancomycin prescription midday tomorrow.

I’m going to bleach mop the bathroom and fixtures and continue with the Clorox wipes at least another week. I’ve an appointment to see her in three weeks. But IF I start having sympathy again, to call her immediately.

She will then prescribe a 6-week taper program and/or go with a FMT. Funny, being a gastro doc, she’s freaked out by the thought of FMT. I told her if it works, I’m all for it.

I told her my concern with multiple relapses and how I’m afraid I’ll telapse right before our dream British Isles cruise next August. She said she’d give me a prophylactic Vancomycin prescription to keep me “clear.”

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@patts

Okay, all my c diff people, lol. Doc says I’m cleared to go out now, etc., since my bowels have pretty much righted themselves. I finish off my Vancomycin prescription midday tomorrow.

I’m going to bleach mop the bathroom and fixtures and continue with the Clorox wipes at least another week. I’ve an appointment to see her in three weeks. But IF I start having sympathy again, to call her immediately.

She will then prescribe a 6-week taper program and/or go with a FMT. Funny, being a gastro doc, she’s freaked out by the thought of FMT. I told her if it works, I’m all for it.

I told her my concern with multiple relapses and how I’m afraid I’ll telapse right before our dream British Isles cruise next August. She said she’d give me a prophylactic Vancomycin prescription to keep me “clear.”

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And I have relapsed. 🙁. Will be starting a taper for 6 weeks tomorrow (CVS had to order it). So, I’ll miss 2 trips in those 6 weeks. Staying home for 6 more weeks isn’t gong to be fun.

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@danab

Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me a month to finally get over the symptoms. I had finished the meds but still needed frequent bathroom visits. Them finally after a month my bowels started acting a bit more normal.

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Can you tell me more about your experience? I have had Cdiff that went undiagnosed for 7 months. I am on my last day of 10 day dificid and but still have between 1-3 watery diarrhea episodes most days. But I can tell it’s definitely working, all my other symptoms are less also. Did you do retesting and did you still have diarrhea after your antibiotic treatment for the c diff? I’m worried I’m still contagious

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I would think if you’re still having diarrhea you may still have it, but I’m not a doctor. After my first dose of Vancomycin and still having issues, I was tested and it came out positive. The second time turned out to not be c diff. I asked my doctor about how I could tell and she reminded e that c diff has a certain odor.

Voice your concerns with your doctor

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While I have never experienced a relapse, I did contract it three separate times. Then that was the last of it.

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@patts

I would think if you’re still having diarrhea you may still have it, but I’m not a doctor. After my first dose of Vancomycin and still having issues, I was tested and it came out positive. The second time turned out to not be c diff. I asked my doctor about how I could tell and she reminded e that c diff has a certain odor.

Voice your concerns with your doctor

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Will you do FMT?

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