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C Diff
I first got sick on May 1st thinking it was the stomach flu. I weight 157lbs and every er that I went to told me to sleep it off and that the longest it could last is two weeks. Two weeks later no difference. I finally saw a gastroenterolgist sometime in June. At that point it was 1 month of no appetite, nausea and diarrhea with tons of mucus(sorry to be so graphic). I did a stool test and he said I had inflammation somewhere and to eat bland and it would go away. It didn't so finally he said I could have Giardia due to having yellow poop since march 🙁 so he put me on flagyl and ciprofloxacin. I guess I put all my eggs in one basket and hoped and prayed that would be it. I started feeling better until one day after I ate I had the urge to throw up. No nausea or anything. Finally had a colonoscopy on June 19th. Got diagnosed with C. Diff colitis. He put me on flagyl three times a day for two weeks. I had my good days and bad days. Fourth of july came around I had a hot dog and pasta salad and that's the last day I ate something delicious. Since that day I've felt horrible. I finished my antibiotics that Saturday and I've become worse. All I taste is blood now. Anything I drink makes me want to throw up. I have to sleep sitting straight up :(. I'm miserable and I currently weight less than 120. So to go from 157-120 in a matter of two to three months is taking its toll on my body. I'm losing hope. I'm 22 years old and Monday April 30th was the last time I was actually happy. If anyone has information or anything to help me please respond. I know I could have something way worse but to go from being perfectly healthy to being labeled anorexic because you want to eat but you can't is really hard. I'd love to hear other peoples stories on this horrible infection.
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Hi Jamie. I use both. I had two days relief not long ago. My strategy:
One Table Spoon Honey/Cinnamon, 100 million Probiotics
Jamie, I am not comfortable sharing a lot of details about myself on here, because it is public. But, I don't mind sharing some details about me if that's OK. I am a mother of two boys, raised them on my own. I currently reside in my home state, KY. I work from home and have since 2001.
I currently relocated from another State, Michigan. During my stay there, I was trying to get help for my eldest son, who doctors said there was suffering from Crohns Disease. He kept getting worse. I moved back to my home state in Ky. and here we learned he had CDif. by the time we figured it out, I had been infected and started showing Signs of Cdif in Michigan. It was too late.
I was very angry, at this time, because I was told there are cures, but it's basically for rich people. Poor people who have been infected, thanks to Antibiotics and visits to some hospitals, are not able to get cured. We believe adamantly that my son contracted this condition after visiting a local hospital in Michigan. It was after his visit, the symptoms started.
So I am on a routine expenditure now to save my son's life as well as my own now. I fought for years to save his life prior to. Not only does he have cdif too, he also has diabetes and high-blood. So I am testing on my own a few ways to help.
I found relief after taking 100 million Probiotics, Cinnamon/Honey, and eating limited foods. Bananas helped too. Stay with nature's natural and finest is what I try to do.
My son and I ate Chinese food every single day for 2 months. That is all we could eat. Expensive. I ate mainly shrimp, not breaded, melons, fruits, and stayed away from most other types of foods. I did OK. But after a while, it started to affect me again, so I had to switch up. Now, I am working on eating mainly fruits, from natural sources only.
I've been struggling for a few months now, and had some success, even a few days without any symptoms at all!
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1 ReactionI had an FMT yesterday. I have had some diarrhea this afternoon. Not lots but it makes me anxious. I called the Dr & the nurse practitioner told me to take a lomoti. I know you aren’t supposed to with Cdiff, but since thus FMT they told me to. Anyone had this ?
@sandyabbey I read on one of the websites that it can take up to 4 days to feel better after an fmt. I am having an fmt on March 25 via colonoscopy. Did you have that also?
I had mine via endoscopy into the small intestine. He thought since my colon was so traumatized that I might be able to hold it in longer if it went through the whole digestive track. They do them both ways.
I have or I hope had cidiff for 4 months. I was treated everytime. Failed even Dificid. 2 weeks ago I had an FMT. The next day I had some diarrhea that my Dr said was normal. The next day a small amount. I went 4 days with nothing at all. I called my GI & they said take fibercon. I did & still nothing. I called back & they added miralax. Finally after 2 days I had a small amount about the size o a little finger. I will feel like I’m going to & just gas & maybe a tiny amount. It’s been 2 weeks today since my FMT. It’s been 10 days since a complete BM. I’m calling my Dr this morning, but would like to have any suggestions or could I be in trouble. I’m very upset about it. I don’t want a prep like clean out because it could wash out my new FMT stool.
@sandyabbey
I would call your doctor right away. You could have a blockage. Last June my son was in the hospital, part of his testing was a Colonoscopy. He had been on complete bed rest could only get up to sit on the commode beside his bed with the help of a nurse. Was on a liquid diet. They sent him home two days after his colonoscopy knowing he hadn’t moved his bowels. He went back in the hospital a day and a half latter. He was in the hospital for another week. His bowels were blocked. It took the surgeon coming in and going off on the hospital doctors before they finally gave him an eneima. He had just been diagnosed with Primary Sclerosing Cholengitis and Crohn’s disease. If you have constant pain this needs to be taken care of immediately.
@sandyabbey I wish more people would give us updates about FMT. And I'm so sorry to hear that Dificid didn't work for you. After taking Flagyl, Vancomycin (twice) and Dificid last October, I had decided doing the FMT would be my next step. So far, so good, after taking the Dificid. I hadn't heard about constipation after doing the FMT. Have you been able to put some weight back on? You're so right when you say Cdiff is a monster. Every time I've had a cold this winter, I was afraid it would turn in to another sinus infection. And I'll never take Clindamycin again.... or any other antibiotic... if I can help it. I usually get UTI's, at least one a year, and I've been so careful trying to avoid getting one. I've even changed my soap to a ph balanced one.
@pines @sandyabbey I had FMT on Feb 28. After a small accident the day of, I didn’t have stool for 3-4 days which I expected. Exactly a week later, I had diarrhea 10x one day and 2x the next. I wanted to scream “no this isn’t happening!” Well, no more diarrhea. I have been constipated. I am able to go some but I’m bloated and crampy. I’ll call my doc Monday to update. I feel that the cdiff is gone (things are definitely different) but I don’t feel well in a different way. I have Crohn’s as well as IBS and before C diff my usual had been constipation. So, I’m not sure if I’m normal again or not. FMT is still so new... I’m not sure the docs have all the answers. I know trials are being done to see if FMT will help Crohn’s and IBS. Time will tell. I hope you all get answers!
I also still have lots of gas.
I had Cdiff caused by antibiotics ( clindamycin ) for a sinus infection. I relapsed 4 times after 4 tries on meds. I was down to 85 pounds. I then had an FMT last February 28th. I’m in remission now but lots of foods still hurt me. Sometimes for it seems like no reason , I have severe cramps. They go away fairly quickly, but at the time I can barely stand it. I get constipated too. I then have to take miralax. It seems to work somewhat, but just small amounts several times a day. Also when I’m constipated my bladder feels like I have a UTI. I went ti my urologist & the culture was somewhat normal, just a few leukocytes. I just took AZO & that helped. As soon as I had a good BM it stopped. I’m now getting that bladder feeling again & I’m not Having good BMs I going e everyday but not enough. I sent to my GI also because I can’t take antibiotics unless life or death. It will mostly cause Cdiff again. I can’t take that again. I almost died. Any input about this appreciated.