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C Diff
I first got sick on May 1st thinking it was the stomach flu. I weight 157lbs and every er that I went to told me to sleep it off and that the longest it could last is two weeks. Two weeks later no difference. I finally saw a gastroenterolgist sometime in June. At that point it was 1 month of no appetite, nausea and diarrhea with tons of mucus(sorry to be so graphic). I did a stool test and he said I had inflammation somewhere and to eat bland and it would go away. It didn't so finally he said I could have Giardia due to having yellow poop since march 🙁 so he put me on flagyl and ciprofloxacin. I guess I put all my eggs in one basket and hoped and prayed that would be it. I started feeling better until one day after I ate I had the urge to throw up. No nausea or anything. Finally had a colonoscopy on June 19th. Got diagnosed with C. Diff colitis. He put me on flagyl three times a day for two weeks. I had my good days and bad days. Fourth of july came around I had a hot dog and pasta salad and that's the last day I ate something delicious. Since that day I've felt horrible. I finished my antibiotics that Saturday and I've become worse. All I taste is blood now. Anything I drink makes me want to throw up. I have to sleep sitting straight up :(. I'm miserable and I currently weight less than 120. So to go from 157-120 in a matter of two to three months is taking its toll on my body. I'm losing hope. I'm 22 years old and Monday April 30th was the last time I was actually happy. If anyone has information or anything to help me please respond. I know I could have something way worse but to go from being perfectly healthy to being labeled anorexic because you want to eat but you can't is really hard. I'd love to hear other peoples stories on this horrible infection.
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Doctor doesn’t help me any and rarely returns calls. Trying to make my way with all the helpful advice from fellow cdiff community as we understand what it’s like to deal with it daily.
PCR is the regular stool test but Durant test for toxins.
Yes, still experiencing some nausea (especially in the mornings) and the appetite is like you said, hit or miss. But when I eat, I become super full (but I do indeed eat when the hunger hits). I was able to go from 96lbs to 99/100 in 2 weeks time.
*doesnt test for toxins
What antimicrobials did you supplement if you don’t mind?
It was from designs for Heath GI microbx but even this kill good gut bacteria because it is antimicrobial so I wouldn’t suggest it since you are already 7 weeks post antibiotic. I took this when I was only two weeks post antibiotic. It took me good 4 month to stop experiencing the nausea in the morning it woke me up at 5 am. And even until now I experience it sometimes and the loss of appetite. Feeling full it is all the inflammation in your stomach caused by the cdiff infection. the slippery elm and marshmallow root you are taking will help it is like a powder I took called GI revive. I know what you mean about doctors I had to do everything on my own and with the help of asking people. Naturopathic helped me a lot. Seems your stool is not bad and this is a good indication. If you had an active infection you would be going more to the bathroom. But all what you are feeling I felt for good 4 month and now still not feeling great still dealing with it. Give it time. Heard from others it would take several months until your body adjust. Please keep me posted what you decide to do.
Gaining the weight as well is a good sign means your body is absorbing the nutrients. I am still not able to gain all my weight that I lost back. Only gained 4 pounds and stopped.
How long did it take you to gain the 4 and how long has it been that it’s stopped? Do you take digestive enzymes? That one I added to the mix. I also just started today with my super greens again hoping to get a bit of extra nutrients in the mix beings my diet is far from good at the moment.
It took me about 6 weeks to be able to gain 4 pounds and now stopped gaining stable since mid November not being able to gain anymore. I am like you always worried about the weight and ensuring I am getting enough calories. Your diet from what you listed before seems healthy. I tried digestive enzymes but caused me upset stomach and one of the specialist doctor told me he doesn’t like them so I didn’t continue with them only tried them for couple days. I am now eating raw vegetables and salads and just started 85% dark chocolate that’s the only sugar I eat. I eliminated all added sugar and no fats in my diet and eating very clean and that’s probably why I cannot gain more weight. What super greens you are having? Juices?
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1 ReactionHello to all of you who are dealing with C-diff. I had it several years ago and my doc misdiagnosed it and had it not been for a doctor friend I hate to think what would have happened. She had me send a stool sample to the lab and called me within 12 hours to say that it definitely was C-diff and she prescribed meds to help clear it up and told me to eat yogurt, drink buttermilk if I could, and keep hydrated with gatorade or Pedialite that children drink. I surely thought I was going.to die and might have, had I not called her and told her how sick and scared I was. It took at least 6 months to really get strength back normal. Hang in there all of you and if your doc isn't helpful, find another one! Best wishes~~Baz10
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1 ReactionSuper clean diet I’m sure will make it hard to gain. I hate that I’m eating such high carbs but I need the weight. I find the enzymes did give me upset stomach but they also resulted in an end to undigested food in stools.
Super greens are just the fun of the mill Country Farms ( sure it’s not the best).
Two protein smoothies a day with about 7-800 calories due to putting banana, avocado, almond butter, potato starch, kefir. In a week or so I will try coconut milk and possibly a small but if coconut oil.
Looks like you are on the way to recovery but it will take time. Again I am still dealing with it myself upset stomach and nausea and the fun stuff. It will take time to heal. I have been using avocado oil to cook with and olive oil on salads. Keep me posted with your progress!
Original gi said I need to treat positive pcr, second opinion gi said no treatment for positive pcr due to no diarrhea or stomach cramping. I’m so confused at the moment.