Burning after total knee replacement

Posted by jetter @jetter, Feb 12, 2019

why does it burn after total replacement?

@jmjlove

Ive had TKR on both legs. Second was 14 years after first at age 42. First surgery caused so much pain I cried for days. Pain was off the charts. Dr got mad at me thinking I was just being a baby. Yelled at me. The knee, to this day still hurts every day, 14 years later. I am no baby. I thought I'd lose my mind. Scared to leave hospital. Doctor wrote in my records that my knee felt better and I was happy. Lies. I was in agony, which lasted a month. Insufficient pain control. The horrible pain subsided, but the knee has never been comfortable or without pain.

Second knee replacement still hurts after 4 years, but healing process was much less torture than first. A better experience. I don't have the burning but i experience sharp pains in both knees every day. Like pinching inside the joints. Despite the discomfort, I do not regret having it done because I'd be in a wheelchair. Both knees were that far gone. Yep. They hurt, but I can walk. Thank God.

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The doctors have so much pressure from above not to prescribe anything for pain so they don't believe their patients, say we're being a baby or a drug seeker. They no longer stand up for their patients. They would know right away if someone was a drug seeker if they were educated to know what that behavior looks like. But no one is teaching that properly in medical school. It as obvious as the nose on your face if you've been trained in it or if you've seen drug-seeking behaviors in your own family. And there's a huge difference between what that looks like and what being in pain and needing help looks like. There's no excuse for a medical professional not listen to their patient. It's basically torture. There's no excuse for under treating a patient in pain or not believing your patient. Why would you go into the medical profession unless you had compassion and empathy? Didn't you do it because you care about helping people? If you don't have empathy you have no business being in healthcare. I'm sorry for what you're going through with your pain. I believe you 100%. There are people everywhere this is happening to; you are not alone. It's so sad the way things have gotten these days. I found a group on Facebook that rallies and speaks with our legislators about mistreatment of chronic pain patients. I'm praying that the government will start listening to us. Addicts get handed anything they want on a silver platter. Chronic pain patients get treated like an animal up for slaughter.

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I had TKA Dec 18, 2019. Now 2 months , my ROM has gone abit, I have constant swelling, burning and nerve pain. The Dr stopped my pain meds Jan 6th, still have a lot of pain, throbbing, swelling and now burning. He’s more concerned with numbers, the PT I went to was cruel. I missed about 6 days due to either the weather or being sick/ vomiting or diarrhea. I go to PT twice a week, she says I’m doing great, that it’s a long process, and not to give up. I see his PA this week to get something for the pain, I was only taking 1 Norco a day. None of this was discussed with me, either by his office or the Dr. I try to take one day at a time but it’s very difficult with the pain and swelling. Thanks for listening !!

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@constantpain13

The doctors have so much pressure from above not to prescribe anything for pain so they don't believe their patients, say we're being a baby or a drug seeker. They no longer stand up for their patients. They would know right away if someone was a drug seeker if they were educated to know what that behavior looks like. But no one is teaching that properly in medical school. It as obvious as the nose on your face if you've been trained in it or if you've seen drug-seeking behaviors in your own family. And there's a huge difference between what that looks like and what being in pain and needing help looks like. There's no excuse for a medical professional not listen to their patient. It's basically torture. There's no excuse for under treating a patient in pain or not believing your patient. Why would you go into the medical profession unless you had compassion and empathy? Didn't you do it because you care about helping people? If you don't have empathy you have no business being in healthcare. I'm sorry for what you're going through with your pain. I believe you 100%. There are people everywhere this is happening to; you are not alone. It's so sad the way things have gotten these days. I found a group on Facebook that rallies and speaks with our legislators about mistreatment of chronic pain patients. I'm praying that the government will start listening to us. Addicts get handed anything they want on a silver platter. Chronic pain patients get treated like an animal up for slaughter.

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@constantpain13 I don’t think the doctors are to blame. Not only are they under pressure to limit opioids, but they have seen or been told that some people can get addicted in an extremely short time. My doctor knows me pretty well and used to be more forthcoming in prescribing something when I needed it, but not any more.
I have been on oxycodone, OxyContin, hydrocodone, dilaudid, and one other and never had a problem just stopping. These were due to two knee replacements, severe pain after an ablation to destroy malignant lesions in my liver, and a liver transplant, all very legitimate reasons for needing pain relief, particularly since the only OTC pain reliever I can take is acetaminophen.
Listening to a doctor friend I think he’s been sort of brainwashed into thinking that addiction happens very quickly, but maybe it does for some people. If it can happen that quickly and easily they can’t risk it.
JK

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@mamalena60

I had TKA Dec 18, 2019. Now 2 months , my ROM has gone abit, I have constant swelling, burning and nerve pain. The Dr stopped my pain meds Jan 6th, still have a lot of pain, throbbing, swelling and now burning. He’s more concerned with numbers, the PT I went to was cruel. I missed about 6 days due to either the weather or being sick/ vomiting or diarrhea. I go to PT twice a week, she says I’m doing great, that it’s a long process, and not to give up. I see his PA this week to get something for the pain, I was only taking 1 Norco a day. None of this was discussed with me, either by his office or the Dr. I try to take one day at a time but it’s very difficult with the pain and swelling. Thanks for listening !!

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I am almost an exact copy of your issues. My ROM is 120 and 0 so I'm good there.The burning and what I call "zingers" from the nerve pain is awful. No more pain meds and I can only take tylenol because of kidney issues. Ice, heat, ecercise, nothing ever helps much. Only twice since the surgery have I had about 10 minutes where there wasn't some kind of pain.

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@debbraw

Hi @jetter – Welcome to Connect! I just had a TKR two weeks ago (thankfully w/o the burning sensation you describe). @connie1559 is right that there's a wealth of knowledge on TKR's in this forum. And @contentandwell is spot-on regarding the fact that every single TKR is different – not just every person but every surgery. I've been fortunate with my recovery, but my right knee was much slower than my left in almost every aspect of recuperation. Can I ask when you had your surgery? Also, aside from the burning sensation, how are you doing with range of motion and strength in your knee – and with pain management? I find that if I can control the pain and inflammation, I don't have as much swelling so I do better at my PT exercises.

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I had my TKR on November 14, 20 19 and I have had quite a bit of pain mostly at night. The burning pain did not start until December. It does it burn all the time but when it hits it feels like five wasp are stinging me. I can’t sleep at night, it’s usually 3 o’clock or 4 o’clock before I can go to sleep at night. I have been back to the surgeon and he re-X-rayed my Knee and said it was okay. I just wish the surgeons would tell you what to expect, even though I know everyone is not the same

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@pat20

I had my TKR on November 14, 20 19 and I have had quite a bit of pain mostly at night. The burning pain did not start until December. It does it burn all the time but when it hits it feels like five wasp are stinging me. I can’t sleep at night, it’s usually 3 o’clock or 4 o’clock before I can go to sleep at night. I have been back to the surgeon and he re-X-rayed my Knee and said it was okay. I just wish the surgeons would tell you what to expect, even though I know everyone is not the same

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@pat20 I had a lot of pain after my last TKR in October 2017. Like yours, it was not immediate but shortly after. It lasted somewhere between 4 to 6 weeks and then got better very quickly. During that time my surgeon took xrays and was seeing me regularly. He was concerned also. We were both very happy when I was suddenly virtually pain-free. I hope yours will lift as mine did. If not then I hope your surgeon will see you again and try to figure out the problem.
JK

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@connie1559

When did you have your TKR? Is there a specific area that burns? Do you feel the burning all the time? Have you felt it from the beginning or has the burning feeling developed over a few days? Is your discomfort from the burning relieved by pain meds, if you’re taking pain meds? Is the burning relieved by icing?

For the first 1-1/2 weeks after my recent right TKR, I felt a lot of a burning type pain each time I lowered my leg after having it elevated. I assumed it was a circulation issue. I now experience a burning, tingling feeling in the patella area. It lasts from a couple of seconds to a couple of minutes. It’s bearable but it definitely gets my attention each time it happens.

There are lots of supportive TKR folks here with countless experiences going through the TKR process. I hope someone can answer your question. Good luck!

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I had tkr only 3 days ago and tonight the burning pain has been really. Screamed, cried iced did all I know to do and it still hurts so bad.. what can I do..

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@alyndianne

I had tkr only 3 days ago and tonight the burning pain has been really. Screamed, cried iced did all I know to do and it still hurts so bad.. what can I do..

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@alyndianne I never had a burning pain, but I did have plain old, regular pain. As I commented above, mine was not immediate but started a little while later. There were times it brought me to tears and I was very upset because my first TKR was not that painful. After the pain abated though that knee was much better than the other it and never causes me any discomfort at all.
It's still very early for you. Try to bear it and it should get better. If not then call your surgeon and he will probably want to see you as mine did, and perhaps take an Xray.
JK

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At 11 months after tkr and if sit more than 30 minutes, it starts to pain when and continuously pop very loud when walking. My knee hurts 24/7. I ice all day long. My yearly followup is 4/16/2020 but I have seen my doctor or his PA about 5 times and texted. They keep saying I am doing great, no infection. But I am wondering if piece has loosen.

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@maxy

At 11 months after tkr and if sit more than 30 minutes, it starts to pain when and continuously pop very loud when walking. My knee hurts 24/7. I ice all day long. My yearly followup is 4/16/2020 but I have seen my doctor or his PA about 5 times and texted. They keep saying I am doing great, no infection. But I am wondering if piece has loosen.

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@maxy That's a long time for your knee to be bothering you still. Has your doctor had any Xrays done? In the early days of being post-TKR I had a lot of pain and my doctor was seeing me frequently and had Xrays done. They showed nothing, but for me the pain resolved at about six weeks TKR so we have no idea what caused it. If he has not had an Xray done perhaps you should suggest it. If you still do not get any resolution from that doctor you may want to consider changing to a different doctor, someone who is definitely highly regarded. From what I have heard on here if you want to see a different doctor most will not see you if you are within a year of the TKR but you are almost there. You should not have to live in pain.
JK

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@gator1965

I still have burning pain 10 months after total knee replacement. I think this is quite common

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It’s been almost six months since my TKR and I have terrible burning on the right side of my knee. My doctor prescribed Voltairen gel but it doesn’t really help much. Dr. wants to prescribe Gabapentin, but I am afraid of the side effects. Has anyone been prescribed Gabapentin. Does it work?

Liked by coaltrain

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I had similar issues but 6 months seems a little early (to me) as total recovery is thought to be 9-12 months out. I tried the gel and gabapentine but this was at the 1 1/2 – 2 years out. I also tried Lyracia. For me nothing worked which was disappointing as many co workers got some relief. And I was taking 600 mg 3x day. It takes a period of time to get to the max dose (About 2 weeks) but then you need to taper back down to discontinue. This is important to not stop cold turkey. The biggest issue with these two meds is the drowsiness- which is how they work to calm the pain down. I would wait to take one dose when I got to work as to not be drowsy with driving.
Have you tried other options or any Techniques to desensitize that area, TENS? Massage or other manual techniques? Weight/pressure on your knee- This is one way to desensitize. Acupuncture?
I hope you can get some relief. I plan to follow to see what others suggest. It’s very frustrating to say the least.

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Thank you. Tried massage. It seems to be worse after exercise. I guess I need to be more patient. I had a problem with the ligaments in my knee; they were stretched out, so I also had to have intramedullary rods in my femur and tibia when I had TKR. Icing helps somewhat. I am trying to avoid taking Tramadol.

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@angviv

Thank you. Tried massage. It seems to be worse after exercise. I guess I need to be more patient. I had a problem with the ligaments in my knee; they were stretched out, so I also had to have intramedullary rods in my femur and tibia when I had TKR. Icing helps somewhat. I am trying to avoid taking Tramadol.

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May God Bless all of you that think your burning painful knees will ever go away. I had both knees replaced eight years ago and have been living with the burning and aching ever since. I have been on everything from Gabapentin to Oxycontin. Nothing helps. Doctors dont know why. I finally decided this is the way it is so live with it. Oh ya. I am very depressed but when its over. Its over. May God Bless. Charlie

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@coaltrain

May God Bless all of you that think your burning painful knees will ever go away. I had both knees replaced eight years ago and have been living with the burning and aching ever since. I have been on everything from Gabapentin to Oxycontin. Nothing helps. Doctors dont know why. I finally decided this is the way it is so live with it. Oh ya. I am very depressed but when its over. Its over. May God Bless. Charlie

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So sorry you are experiencing such pain. I am praying mine will go away in the next six months. Doctors don’t tell you this could happen when you have your consultation. I know 5 people who have had TKR and they tell me the burning went away after one year, so I hope this happens in my case too. This was not the outcome I expected and would not ever do my other knee, no matter how painful it is to walk. Six months in and I am back to how I was before the operation in terms of stiffness and pain. I would not ever recommend this operation.
God Bless you too Charlie.

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