Long-term Antibiotics for Bronchiectasis & MAC

Posted by pejohnston @pejohnston, Feb 26, 2018

Diagnosed w/Bronchiectasis in 2008, MAC in 2011 and have been on many medications since then. Under control for several years, but reinfected a couple of years ago while on antibiotics. My body became somewhat immune to some of meds I was on. I am now taking several more drugs that have pretty significant side affects. Fortunately, I’ve been okay with them. Anyone else been on antibiotics for this length of time?

@jkiemen

Which antibiotics are they? Have your CT's been stable?

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Yes and yes! We are both retired educators! 

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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Terri : Look at my responses to Irene. In your cousin's case I wonder if anyone mentioned Achalasia? On the eve of my mother's wake, I suddenly got up, felt like I was going to roll over and faint. I was taken to hospital, admitted and then diagnosed with Achalasia. My doctor at home told me repeated I has Irritable Bowel Syndrome. He was not correct. The bottom muscle area of the esophagus fails to function so surgery is a necessity. The esophagus is cut inserted into the stomach area so food can pass into the digestive system. It was not accepted here by my gastro doctor until he did very extensive testing. I saw it on the x-rays in CT and it was explained that Achalasia is often misdiagnosed as IBS.

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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Does anyone else have similar issues but possibly misdiagnosed? My brother is a cardiologist who was puzzled by lack of care. He mentioned sarcoid and he was right.

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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There were a lot of ventilation issues in many of the buildings! And we were not in the same school. And I was that idiot teacher who literally lived at school! I would even go in on weekends! My family played in the gym while I worked in my classroom! I had chronic bronchitis, pneumonia once, and chronic sinus issues. Wish I could press the rewind on the remote!

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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It is something that is often diagnosed in the mid-West

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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Good morning. I spent 80 plus hours a week volunteering during Desert Storm in this horrific building. Years before I was there, it was discovered that no one cleaned the filter system for 17 years. The dirt on the filtration system were painted over. It was after this that the sarcoid flared. And years later, the MAC was diagnosed.

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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@irene5, I went to an incredibly old school myself. Two of my teachers have since passed away from serious lung issues. One had mesothelioma, the other ended up with a double lung transplant and has subsequently died. They both had a life-long career there. It gives me pause.

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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@macjane, my cousin did not have symptoms of IBS. She did have possitive biopsies proving granular tumors.

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

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@irene5, Sending you and your hubby cyber hugs. XOXxO

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@macjane, Thank you so much for the kudos. It is nice to get those.

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

Jump to this post

I know! My daughter’s Godmother and I shared the same classroom ( Not at the same time). She died of lung cancer two years ago. She never smoked.:( Gives me pause too!

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@jkiemen

Which antibiotics are they? Have your CT's been stable?

Jump to this post

@macjane, I have never heard of 'achalasia', but I will def look it up!

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