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Bronchectasis And Chronic Pseudomonas
I have Bronchectasis and Chronic Psudomonas of the lungs. I am symptomatic all the time. The fatigue, loss of energy, and just mild malaise. The infection has been cleared up due to a pic line for three weeks. But there is still this residual effect. I can’t seem to get beyond it. I think I might just feel this way forever. I have a god infectious disease Doc and a good pulmongist. So i have confidence in each. I guess this is just all part of it.
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@renee53 Six years ago I was in your shoes. I had just finished the almost 2 years of the Big 3, with the last 6 months daily. Before that it was several rounds of treatment for pseudomonas. I cried because I couldn't even decorate my 4 foot Christmas tree.
Gradually over the next year I got 80% of my energy and 50% of my weight back. I continued to do things in 20 minute bites. 20 minutes of a chore, 20 minutes rest, 20 minutes enjoyable sedentary activity.
What helped me a lot was a high protein diet and daily walks - at first only 10 minutes, but eventually 1-2 hours a day. Fast wasn't the goal, slowly building endurance was. Also doing something I liked. (Don't look in the corners or at the wind at my house some things aren't important anymore)
The meds and infection took a big toll on your body and spirit. Hang in there and gently push onward. Let me know in a month how you are doing.
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1 ReactionThank you so much. All your words of wisdom are taken sseriously. I continue to exxcverisce. It’s difficult, but i push myself, I too, fought MAC and have been free of it for two years now. We all go through so much with this.,. Thank you again for your advice, i will take it! Sorry if there is lmisspeelliong. I have Macular degeneration and have lost a lot of vision. So i do wthe best i can.
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3 ReactionsI have been unable to knock the infection back with IV twice now. During treatment the Pseudo knocks back to very little and I feel so much better but that effect only lasts for one week after I stop the IV and my Pseudo builds back up to what it was before treatment. Did IV for 11 days and 14 days. Do you think doing 3 weeks made a difference and would you mind saying what IV antibiotic was used?
Irene. I can relate to your pseudo story. I can't do any oral antibiotics--allergic to them all now. I can no longer tolerate Tobramycin. I just finished 14 days IV Ceftazadime. Cough was gone before the end of the 14 days. Six days after PiCC line removed I'm coughing up some familiar sticky, yellow sputum. It's been seven years dealing with this and it is a struggle most days but I'm continuing to do what I can, when I can. Quality of life is my goal at this point. Having good support (my husband) makes a big difference. Blessing to all.