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Bronchectasis And Chronic Pseudomonas

Posted by renee53 @renee53, Nov 13 3:04pm

I have Bronchectasis and Chronic Psudomonas of the lungs. I am symptomatic all the time. The fatigue, loss of energy, and just mild malaise. The infection has been cleared up due to a pic line for three weeks. But there is still this residual effect. I can’t seem to get beyond it. I think I might just feel this way forever. I have a god infectious disease Doc and a good pulmongist. So i have confidence in each. I guess this is just all part of it.

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renee53 | @renee53 | Nov 16 11:55am
In reply to @irenea8 "@renee53 Thank you Renee. This is helpful. It was probably Piperacillin/tazobactam that you had. Does that..." + (show)
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@renee53
Thank you Renee. This is helpful. It was probably Piperacillin/tazobactam that you had. Does that ring a bell? And three weeks is a long time but may be more effective than 2 weeks. My Pulmo has mentioned wanting to give me that combination a couple of times. But when I read up on side effects I was afraid to. Did you have side effects in those three weeks? Did they ever try other IV antibiotics on you in the past?

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@irenea8

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renee53 | @renee53 | Nov 16 11:56am

Sorry about the typos, by vision is low due to macular degeneration. Texting is proving more and more difficult with the amount of vision I lose.

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irenea8 | @irenea8 | Nov 16 12:44pm
In reply to @renee53 "@irenea8 I had no side effects from the pic line meds. And yes, that second drug..." + (show)
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@irenea8 I had no side effects from the pic line meds. And yes, that second drug does sound familiar. I was on Leo Quinn but got retinitis in both elbows. I went through a litney of antibiotics c. Now my only hope is the pic line as the other drugs were not smart enough to outsmart the psuedomonas. Three infections last year. Buy I am really excited braces my pulmonagist is starting me on a brand new drug for the bronchectasis which should indirectly help with the pusidomonas. The drug is called Brinsupri. You have to quality’s for the drug with a diagnosis of bronchectasis and two ore more infections a year. Sounds like you could blear that easily. Log this new drug is supposed to reduce your flare ups by about 60 percent. That is so promising. Pleases check into this. The drug has only been out since august of this year. Good luck

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@renee53
There is a forum topic called Brinsupri follow up. People report what they notice after starting it. Some have improved, some with side effects. You might post your results once you have been taking Brinsupri for some time. Yes I knew about it. Thank you Renee. My question was whether they had tried any other IV antibiotics for your Pseudomonas other than the Piperacillin/tazobactam? OR was that your first IV treatment for it? Good to hear you had no side effects. You might be younger than me? My chronic pseudo is quite severe and very difficult to knock back thus far and I have other health issues. Only tried Meropenem which is supposed to be the strongest and for more severe infections and yet not bad for side effects.

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renee53 | @renee53 | Nov 16 5:40pm
In reply to @irenea8 "@renee53 There is a forum topic called Brinsupri follow up. People report what they notice after..." + (show)
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@renee53
There is a forum topic called Brinsupri follow up. People report what they notice after starting it. Some have improved, some with side effects. You might post your results once you have been taking Brinsupri for some time. Yes I knew about it. Thank you Renee. My question was whether they had tried any other IV antibiotics for your Pseudomonas other than the Piperacillin/tazobactam? OR was that your first IV treatment for it? Good to hear you had no side effects. You might be younger than me? My chronic pseudo is quite severe and very difficult to knock back thus far and I have other health issues. Only tried Meropenem which is supposed to be the strongest and for more severe infections and yet not bad for side effects.

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@irenea8 I WAS FIRST GIVEN LEVONQUIN for my psudomonas. When that no longer worked, I was put on arikayce, 3 days a week, a month on and a month off. When that didin’t work, I was put on the levonquinn again, but this time I got tentinits of the elbows. . So now I’m of that drug permanently. Finally, I was put on the pic line. After I completed three weeks, I told my ID doc I still felt symptomatic. We did a sputum sample and that came back with only a sparse mounts of psuedomonas. So the doc put me on the Arikayce 3 times a week continuously and that seems to be than answer. For now anyway. You know how that goes. I don’t have trouble with airkayce, so it’s a good antibiotic for me. I hope this helps. I am 72 and have been fighting this battle for quite a few yers. But thankfully, I am NTM free for l2 years now~

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