Brinsupri follow-up

Posted by scoop @scoop, Sep 29, 2025

It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

myjourneybe | @myjourneybe | Apr 7 12:51pm

I have been on Brinsupri 25 mg for about a month. No side effects so far. I was also being treated for MAC but had to stop as they made me so sick. I will post a little later on my progress after the MAC drugs have left my body. I have a lot of hope for Brinsupri.

brody89 | @brody89 | Apr 7 9:09pm

Thats good to hear, gives me hope in the future.

nickraosr | @nickraosr | Apr 8 9:09am

It took 4 months to notice a difference using Brinsupri. Now my mucus is clear and reduced significantly in volume. In summary, my symptoms are significantly reduced. Hang in there!

blm1007blm1007 | @blm1007blm1007 | Apr 8 1:16pm

In reply to @nickraosr "It took 4 months to notice a difference using Brinsupri. Now my mucus is clear and..." + (show)

@nickraosr Wonder if you would mind going to the Thread: Brinsupri and related C Scans if you have time to answer those questions that are applicable to you and if you are comfortable answering.
I am trying to learn all that others have to say due to it not being suggested for me, as yet, to go on the Brinsupri.
Barbara

nickraosr | @nickraosr | Apr 8 2:01pm

I was able to get on Brinsupri due to the support of my pulmonologist. I participated in the brinsupri study prior to FDA approval. Medicare covered the lion share of the cost. I pay $2000 for the year which is my entire deductible, meaning I do not pay for my meds for the remaining of the year. Medicare has a program where you payoff the $2000 over 12 months.

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