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Brinsupri follow-up
It seems a bunch of us have started Brinsupri. Let's use this thread for discussion. If you are taking Brinsupri have you noticed anything different, including changes to bronchiectasis or side effects? How long have you been on it?
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I thought it might be helpful to share where I am after starting the third month on Brinsupri. I started on 8/29. Started feeling positive effects during that first month.(as reported by others on this site). I still have lots of germy Grandchildren who I love and share viruses with! I developed a fever on Oct 9 which progressed to increased mucus, lo grade fever and sore throat and coughing. Did not despair, kept doing the airway clearance (upped to 3x daily) with 7% NS nebs. Took tylenol. and on October 14 sent in a sputum and a note to my pulmonologist asking if I may have an exacerbation. October 16, sputum grew moraxella catarrhalis, pulmonologist prescribed 10 days of antibiotic. At the end of 10 days my mucus levels were back to pre-exacerbation with no cough. I must say, this is the fastest I have recovered from an exacerbation in the last 2 years. Still hopeful about brinsupri. Also got a "Save the date" note from TAF (the assistance fund), for 2026 reenrollment December 3-19 at 12pm ET. (and a Pin #). Hope everyone stays well and wears a mask.