Brinsupri follow-up

@sdugan001 What a bummer you are experiencing these symptoms. Although Brinsupri has not caused any issues in me so far, stomach issues and/or headache can occur when you first start it according to my doctor. That said, moxifloxacin alone can cause stomach discomfort, as can any antibiotic. I agree with @pacathy that a sputum culture is critical. Personally, I would not start another antibiotic until I dropped off a sputum sample for culture. I hope you feel better soon!

FYI – so far my experience with Brinsupri has been positive. I’m entering my 4th week and my previous random hacking cough jags are now rare, with mucus lighter in color and less of it, and clearance time seems quicker than before starting Brinsupri. I've just now come from a dental appointment (a restoration, which was at least 2 hours in a supine position) and did not cough once!

@scoop My situation is a little tricky in that my pulmonologist is in Indianapolis, but I am in Chicago for pharmacy school. Therefore, it is not as easy for me to get a sputum culture done but I usually always have “emergency” antibiotics on hand in case of infection and I take azithromycin 3x a week for prevention purposes. I do know that antibiotics can cause an upset stomach, and try to take all the necessary precautions.

I am feeling like giving up and very discouraged as my condition only worsens and I am only 23. I fear what the rest of my life will look like. It is nice to hear about your positive experience and makes me a little more hopeful. Thank you and @pacathy for getting back to me. It is nice to talk to others dealing with this, I have felt so alone.

@sdugan001 Have you ever been and is it possible for you to go to National Jewish Hospital in Denver, Colorado......or the Center @scoop has mentioned. I know a lot depends upon insurance, finances and time but it might be very beneficial for you if you can. Are you familiar with National Jewish Hospital? If you have time it might help to research it to understand why I am mentioning it and why I, myself, immediately took myself up there when I realized I needed their help vs the local pulmonologist who wasn't fully knowledgeable of all possible problems that come along with Bronchiectasis and what to have me start doing for myself to help myself.
We want for you to keep trying and finding your way to feeling better and getting the best help you can. We understand how you feel....this isn't easy and it is so much work.
Hope you have been having a better day of it today.
Barbara

@blm1007blm1007 Hi, this is actually something my pulmonologist has wanted me to do for quite some time. I even had an intro appointment over the phone with NJH a few months ago, but have not moved forward with it due to insurance/financial reasons. Ideally, going to NJH would be the goal. It is also difficult for me to find time to take off to go given my graduate school program. So I am sort of just stuck in this in between stage for now :/ I have a tentative appointment to get a chest CT tomorrow but it depends if it gets authorized in time/if I can even find a way home to make it.

@blm1007blm1007 Hi, this is actually something my pulmonologist has wanted me to do for quite some time. I even had an intro appointment over the phone with NJH a few months ago, but have not moved forward with it due to insurance/financial reasons. Ideally, going to NJH would be the goal. It is also difficult for me to find time to take off to go given my graduate school program. So I am sort of just stuck in this in between stage for now :/ I have a tentative appointment to get a chest CT tomorrow but it depends if it gets authorized in time/if I can even find a way home to make it.

I’m on day 15 of starting Brinsupri. Yesterday I thought I might be improving and today I definitely see an improvement! Not coughing nearly as much and I had my first good nights sleep in a while. I was having quite a few excerbations and at the end of one when I started. Even the mucus from Mac has lessened. Had my regular tooth cleaning and dentist went over how to help prevent gingivitis. So we’ll see what happens from here on. Marilyn K

I’m on day 15 of starting Brinsupri. Yesterday I thought I might be improving and today I definitely see an improvement! Not coughing nearly as much and I had my first good nights sleep in a while. I was having quite a few excerbations and at the end of one when I started. Even the mucus from Mac has lessened. Had my regular tooth cleaning and dentist went over how to help prevent gingivitis. So we’ll see what happens from here on. Marilyn K