Breakthrough seizures after 16 yrs

Posted by lynette1975 @lynette1975, Fri, Nov 22 10:32pm

I had a breakthrough grand mal seizure on the 11th after being free of grand mals for 16 yrs. I've had absence seizures over the past 16 yrs every once in a while, maybe 1 per month at the most. After the grand mal on the 11th, I have been having 20 or more absence seizures everyday! I am so scared! Afraid that I will have another grand mal. I can't get to a neurologist until the end of December. They increased my dose but it hasn't helped the absence seizures. They gave me lorazepam to take if the absence seizure is too bad. I'm home alone all day and I'm so scared that something will happen to me while they're gone. Sorry for the long post, I just don't know who to talk to. My family doesn't really take it as seriously as they should. Thanks for listening 💜

Hey.
I know the feeling. It's scary as heck, not knowing when the next "Big One" will hit you.
Or, if you'll survive/ever be the same. HUGS.
It may seem so, but You aren't alone.

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@gimmegum

Hey.
I know the feeling. It's scary as heck, not knowing when the next "Big One" will hit you.
Or, if you'll survive/ever be the same. HUGS.
It may seem so, but You aren't alone.

Jump to this post

Thank you 💜

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I have a question

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In reply to @1964chevyz "I have a question" + (show)
@1964chevyz

I have a question

Jump to this post

What is your question?

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@lynette1975 – welcome to Mayo Clinic Connect and the Epilepsy & Seizure Disorders group. I can imagine it would be surprising to have a grand mal seizure after being free of them for 16 years.

@gimmegum – welcome to you, as well. It sounds as though you have some background with seizures. Do you have epilepsy or a seizure disorder? If so, what do you do to manage the scary feeling of not knowing when the next "big one" will hit or if you will ever be the same?

I wanted to be sure you both met other members here like @hopeful33250 @crstyday40 @jakedduck1 @dawn_giacabazi @chynex @debirwin. Hoping they can provide support as well as share some of their or their loved one's experiences. Guessing that some of them have experienced some fear of a significant seizure, as well.

Were you okay being home alone all day over the weekend, @lynette1975? Did you continue to have multiple absence seizures daily?

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Hello @lynette1975

I agree with @lisalucier that it must have been surprising and frightening to have a grand mal seizure after so many years. Have you been taking meds for seizures during the past 16 years?

I can also understand your concern if you cannot see your neurologist until the end of December. Did you explain to them about the grand mal seizure?

I would urge you to find some support for your seizures. Here is a website for the Epilepsy Foundation, https://www.epilepsy.com/connect. if you click on the link, you might find some helpful information.

Would you post again and let me know how you are doing?

Liked by Lisa Lucier

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So sorry, and hate you have to be alone. It does seem like Dr.'s Are overloaded and don't really know or have answers to many of our seizures and concerns. Hang in there and know you are not alone in wanting answers and quick fixes.

Liked by Lisa Lucier

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