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kariulrich

Brain Aneurysm

Posted by @kariulrich in Brain & Nervous System, Aug 15, 2011

Dr. Robert Brown, Jr., M.D., Chair of Neurology, Mayo Clinic discusses "Brain Aneurysm Awareness Day" with the Minnesota Twins and the Joe Niekro Foundation on August 21, 2011.

http://youtu.be/6iudFrZ2QA8

Tags: ehlers danlos, Brain Aneurysm, stroke

8 Times likes this
deedee1224

Posted by @deedee1224, Nov 4, 2011

We really need a better way to diagnose brain aneurysms. I suffered for 6 weeks with a slow bleed, 4 trips to the ER and nobody could diagnose me. I also had all the signs for a stroke but nobody could help me until I passed out in the ER and had seizures in front of them.

kariulrich

Posted by @kariulrich, Nov 4, 2011

Agree!!!

deedee1224

Posted by @deedee1224, Nov 4, 2011

Thank you Kari, I guess I have so many questions that are not answered it gets very frustrating. Thankful to be alive but it's the not knowing part that drives me crazy, Dr.s can't even give me answers or outcomes.

kariulrich

Posted by @kariulrich, Nov 4, 2011

Yes, I totally understand. I have small aneurysms that are being monitored. I can deal with that- but I have so many questions about genetics, how my children are going to be affected. More research is needed. Are you on Twitter at all? If you are interested we are doing a brain aneurysm twitter chat Sunday, November 6th from 7pm-8pm CST http://tweetchat.com/room/Niekro

kariulrich

Posted by @kariulrich, Nov 4, 2011

DeeDee1224- you may want to check out this link: http://www.joeniekrofoundation.org

Posted by Anonymous-ad3dfc02, Jun 13, 2012

My sister had an aneurysm rupture in her brain. She survived the surgery - thanks to the doctors and the good Lord - with no known complications. Now we are starting to notice changes in her behavior, strong use of alcohol, and saying things sometimes that just don't make any sense. I'm not very sympathetic or understanding with this, but then I wonder if there could be some type of problem going on within her brain that we are not aware of? Could an aneurysm disrupt her normal way of thinking? I am so angry with her and I just don't want to be angry if she really can't help it. Any advice? Thanks!

prissygarzyahoocom

Posted by @prissygarzyahoocom, Nov 26, 2012

My mother has been diagnosed with a small aneurysm. I was hoping to hear personal experiences after the surgery. Recovery time? Additional developments? Reaccurances? Normal lifestyle?

my mother is 62 and was not sure if we would need a physical therapist for walking,talking, etc...

I look forward to any advice you are willing to share.

soledadandrade

Posted by @soledadandrade, Dec 3, 2012

Hi Prissygarz,
I do not have a personal experience for you however Mayo Clinic does have some information available online.
Please go to:

http://www.mayoclinic.com/health/brain-aneurysm/DS00582/DSECTION=lifestyle-and-home-remedies.

You will find some Lifestyle and home remedies.
Also on the left hand side of that webpage you will see additional information on tests and diagnosis, available treatments etc.
There is also some information relevant for your interest on: http://www.youtube.com/watch?v=guHK0G6yK4c.

Be well, Soledad

prissygarzyahoocom

Posted by @prissygarzyahoocom, Dec 5, 2012

Thank you Soledad for sharing. The video was very informative. To bad decisions aren't always easy.

Take Care, Priss

dannyreed

Posted by @dannyreed, Feb 13, 2013

I was in an accident a few months ago and struck my head on the concrete left a couple of large welts to my forehead and left-side. During my three day hospital stay, an aneurysm was detected. Since this time; I have dizzy spells, vomiting, disorientation, vertigo and headaches. Is an aneurysm, which is caused from the blow to the head, more or less dangerous than other brain aneurysms. Quality of life has not been the same as before the accident? I am very concerned in regards to the future and frantically searching for answers.

useless

Posted by @useless, Feb 18, 2013

I had a brain aneurysm that was not caused by an accident but just found due to having headaches. I had brain surgery a short time after diagnosis. You need to see a neurosurgeon ASAP

sunshine44

Posted by @sunshine44, Jul 14, 2013

Are your headaches gone since you had your surgery?

sunshine44

Posted by @sunshine44, Jul 14, 2013

How have things turned out for you? Has your aneurysm been removed? Are you doing ok?
I had a stoke, which led them to find my aneurysm. The doctors that I have been dealing with are not sure if the symptoms I have are from my aneurysm, or the stroke. It is a struggle to make it though every day. My quality of life has went down tremendously, to the point that I have felt like giving up. (& that's definitely not me!)

sunshine44

Posted by @sunshine44, Jul 14, 2013

I recently have had a stroke(s), they found a brain aneurysm in the center of my brain. I'm 44 years old.
I struggle everyday just to make it through the day. Between the pain in my head, the loss of half my vision in my left eye, confusion, half of my face being partially numb, and some loss of finding the right words to say.
This has been going on since early June. The doctors & neurologists that I have been dealing with, don't seem to be real clear on things. They have sent me back to work, and told me that it was ok to drive, even though I can't see things to my left!! I just had my angiogram last Tuesday, they are going to use the coil technique in middle of or end of Aug.
Shouldn't this be done right away, to prevent further damage, or worse yet, death?

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