Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Posted by Patrick Cotter @patrickcotter, Mar 19, 2012

Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.

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@needahelp

Be careful if you’re on heart meds-it can interfere.

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Thanks- no heart meds- I only take the Lexapro for partial relief of the itching – so if the PIT injections work, I could be medicine- free.

I think when people get on do many medications, it becomes difficult to discern what is triggering what:(

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@bobbiellen

Thanks- no heart meds- I only take the Lexapro for partial relief of the itching – so if the PIT injections work, I could be medicine- free.

I think when people get on do many medications, it becomes difficult to discern what is triggering what:(

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That’s great! Please keep us posted! How can I find a doctor who knows about the PET injections? What state are you in?

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@needahelp

That’s great! Please keep us posted! How can I find a doctor who knows about the PET injections? What state are you in?

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You can google Lyftogt and there is a list there. You also want to choose one who has experience and success using this.

I live in MD; I will see this one next week and he does have quite a bit of experience and success with this. I know there is a very good one in Orlando, FL.

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@bobbiellen

You can google Lyftogt and there is a list there. You also want to choose one who has experience and success using this.

I live in MD; I will see this one next week and he does have quite a bit of experience and success with this. I know there is a very good one in Orlando, FL.

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I’m in Texas! Any suggestions on how to find a knowledgeable doctor? My new dermatologist asked right away if I have problems with my cervical spine. I had an MRI on Friday, but haven’t heard the results. I’m taking Gabapentin & it seems to help. I’m still having burning after my nightly shower. I think that I have dry skin, but putting lotion on my upper arms starts the burning. My legs haven’t been a problem for for 4 months! When the burning gets too uncomfortable, I take a sleeping pill! Is Lyftogy the Injection?

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@needahelp

I’m in Texas! Any suggestions on how to find a knowledgeable doctor? My new dermatologist asked right away if I have problems with my cervical spine. I had an MRI on Friday, but haven’t heard the results. I’m taking Gabapentin & it seems to help. I’m still having burning after my nightly shower. I think that I have dry skin, but putting lotion on my upper arms starts the burning. My legs haven’t been a problem for for 4 months! When the burning gets too uncomfortable, I take a sleeping pill! Is Lyftogy the Injection?

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I don't know if you saw my post about using CBD cream. I have had NO itching and have slept thru the night now with no medication for 3 days. Prior to that I have only been using 1 zyrtek in the morning and Benadryl at night. But most nights I would wake up and have to apply ice. Sadly after reading the posts, I don't think I have the right docs either. No one has asked if I had any cervical issues and that seems to be a common issue with this as well.

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@enoughalready

I don't know if you saw my post about using CBD cream. I have had NO itching and have slept thru the night now with no medication for 3 days. Prior to that I have only been using 1 zyrtek in the morning and Benadryl at night. But most nights I would wake up and have to apply ice. Sadly after reading the posts, I don't think I have the right docs either. No one has asked if I had any cervical issues and that seems to be a common issue with this as well.

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I’m on heart meds & I saw a column by a dr saying that the CBD oil affects the heart meds, so that’s out for me! I’ve heard good things about it-I hope that it continues to work for you.

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@needahelp

I’m in Texas! Any suggestions on how to find a knowledgeable doctor? My new dermatologist asked right away if I have problems with my cervical spine. I had an MRI on Friday, but haven’t heard the results. I’m taking Gabapentin & it seems to help. I’m still having burning after my nightly shower. I think that I have dry skin, but putting lotion on my upper arms starts the burning. My legs haven’t been a problem for for 4 months! When the burning gets too uncomfortable, I take a sleeping pill! Is Lyftogy the Injection?

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Yes Lyftogt is the doctor from New Zealand who came up with the peri neural injection treatments. He now trains doctors to learn how to do this. There are now about 2,000 doctors world-wide that have been trained. Google his name and there you will find the list of trained physicians. From there you will need to ask around or call directly and inquire about his/her years of experience, the cost, etc. Usually I talk with a nurse that works with the doc or someone on the staff. I have been able to determine rather quickly if want to go to that office, based upon those initial conversations.

Also I use a specially compounded cream from a pharmacy, a script provided by a doctor, for evenings. It has gabapentin, amitryptaline and lidocaine in a lipoderm base. It works very well but it expensive. If you google on you tube for the "itch" doctor, you can find an excellent presentation from November 2018 by a very experienced MD dermatologist named Gil Yosipovitch, MD, who talks about treatments for neurogenic itch and he talks about this cream, only he uses ketamine instead of gabapentin. (NOTE: My first script had the ketamine, but I talked with the doc and pharmacist to lower the cost by trying it with gabapentin. Works just as well for me.(

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@bobbiellen

Yes Lyftogt is the doctor from New Zealand who came up with the peri neural injection treatments. He now trains doctors to learn how to do this. There are now about 2,000 doctors world-wide that have been trained. Google his name and there you will find the list of trained physicians. From there you will need to ask around or call directly and inquire about his/her years of experience, the cost, etc. Usually I talk with a nurse that works with the doc or someone on the staff. I have been able to determine rather quickly if want to go to that office, based upon those initial conversations.

Also I use a specially compounded cream from a pharmacy, a script provided by a doctor, for evenings. It has gabapentin, amitryptaline and lidocaine in a lipoderm base. It works very well but it expensive. If you google on you tube for the "itch" doctor, you can find an excellent presentation from November 2018 by a very experienced MD dermatologist named Gil Yosipovitch, MD, who talks about treatments for neurogenic itch and he talks about this cream, only he uses ketamine instead of gabapentin. (NOTE: My first script had the ketamine, but I talked with the doc and pharmacist to lower the cost by trying it with gabapentin. Works just as well for me.(

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I’m very happy to report that I am on day 7 of no medication, only using CDB lotion. I am sleeping g then the night and no itching during the day.
Hallelujah!

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@enoughalready

I’m very happy to report that I am on day 7 of no medication, only using CDB lotion. I am sleeping g then the night and no itching during the day.
Hallelujah!

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Yea🎉What good news!

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3 mos with BRP. Pretty sure it’s neck and guessing my kettleball workout tweaked my arthritis. On compound amitriptyline and ketamine topical 3x a day for 1 mo with limited results but find ‘scrubbing’ area with OTC alcohol on cottonball then applying cream then ice works ok, better than nothing. One session into PT including traction and needling with limited result so far but hopeful. 600 Ibuprofen 3x a day works best. Even a 2x a mo Xanax when all else fails. Ice is my best Rx though! Trying to avoid traditional medical providers since there is limited clinical research but unlimited provider guesses (and we pay by the guess!) If this routine fails in 1 no I will find PIT provider. Many thanks to all of you for your ideas. Hang in there!!

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@montana_mom8

3 mos with BRP. Pretty sure it’s neck and guessing my kettleball workout tweaked my arthritis. On compound amitriptyline and ketamine topical 3x a day for 1 mo with limited results but find ‘scrubbing’ area with OTC alcohol on cottonball then applying cream then ice works ok, better than nothing. One session into PT including traction and needling with limited result so far but hopeful. 600 Ibuprofen 3x a day works best. Even a 2x a mo Xanax when all else fails. Ice is my best Rx though! Trying to avoid traditional medical providers since there is limited clinical research but unlimited provider guesses (and we pay by the guess!) If this routine fails in 1 no I will find PIT provider. Many thanks to all of you for your ideas. Hang in there!!

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I’m 3 weeks with VERY little itching and spleeping thru the night thanks to CBD lotion and a fantastic chiropractor. NO ice needed

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Been to two dermatologist who think I have brachioradial pruritus because I told them I think I have it after doing research.,they cannot help me they did not know anything about it. I have an appointment scheduled for February with a neurologist. I have been waiting for this appointment since October. I call every day to try to get in sooner. I am going mad. I get maybe 3 hours of total sleep. I actually took a knife to my arm and made a cut. I was thinking cutting it off , but woke up and realized not a good idea. I am going crazy. I thought about going to ER , but they will not be able to help me. I know I will need MRI etc. My question is will it ever subside? Can they burn the nerves? I tried gabapentin, but made me too foggy so I stopped. I called the dr's crying . I believe the really do not care. I need help

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