Mayo Clinic Connect
Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.
@justmiserable – I have found that CBD oil/cream has given me complete relief. I also have seen a chiropractor and the adjustment that he did in my upper back/neck are may have helped. Not sure which, but I will say I am grateful. Best of luck. This is a maddening condition!!
Jump to this post
I'm past the Chiropractor been going to them for as long as I can remember. Sometimes it makes it worse temporarily. The only place I have found and it's not every night to sleep for at least 5 hrs is my adjustable recliner like I mentioned. Back to the neurologist and see what else I can do in a couple more weeks for a recheck of the nerve block that didn't work. Or so far it hasn't shown me any improvement. Oh yea that nerve block in the neck, I'd rather do other things than that although I will live on. Big old sissy I am.
Anybody ever does a study on this I am up for it. Raise my hand first. Not gonna play test pilot though.
I WILL BE THE NEXT ONE ☝️ ON THE LIST IT IS DRIVING ME IN SANE
Does anyone have a rash with their itching? I get a rash on my forearms and little bumps on my triceps that pop up when the itch gets bad. Besides ice and essential oils I have been taking gabapentin that has gone from 300 to 1200 mg in about two months because it only works for a few weeks at one dose and needs to go up. I have read that this doesn’t cause a rash but I have one and I have cervical stenosis, which is probably the cause.
pfm I don't get a rash but when the itching gets really bad sometimes on the forearms I get bumps you can feel with small white heads like a pimple that needs popped
I had that nerve block in my neck a few days ago and the past 3 nights I have been able to sleep in the recliner without the itching. I adjust the recliner all the way back to the stop position and then raise it back up a little. Last 3 nights no itching woke me up but it's a new day, who knows about tonight. I know if I go sleep flat in the bed that's the wrong thing to do but I might try it in a couple of nights to see if I can make it through the night
It will be 2 weeks tomorrow that I had the nerve block done in my neck. So now the itching is gone and I can sleep in the bed again, at least I have for the last 3 nights. I don't sit around in the evenings anymore and scratch at my arms, so I guess the discomfort for 10 minutes that having the nerve block done is worth it. Now I wonder how long the block will last. It just covers up the symptoms it doesn't get rid of the real problem still. So when you have the nerve block done in your neck I guess it just takes it a week or so to do it's job. But I had it really bad. Last 3 nights I have gotten to sleep at least 7 hrs without waking up once. Knock on wood it continues.
Have that nerve block done in your neck. It's not really a fun 10 minutes but the problem has been resolved at least temporary for me having this done. I seem to have a normal life again. Thank goodness
So I had the nerve block in my neck done about 3 weeks ago and it seems it still is working. For how long I don't know and neither does the doctor. He said that they just put a mild block in there to see if it would work and there is more aggressive things they can inject. He told me to try cutting back 300mg a day and see how it is. I tried it for 2 days and the symptoms of the minor itching started again. Not quite as bad. So if I stay on the 2700 mg a day with the block they did, I have my normal life back again. No itching, or ice whatsoever. The Neurologist said they can do the block every 3-4 months if it's needed again.
Now it use to be the only time it bothered me at all was it would start in November and go till March. So since were in those months we will see if it comes back because the last year I have had it constant it never went away at all. I hope other people get the same outcome I have. At least so far, what a relief I have gotten from the block and this doesn't mean it's going to work on everyone. The Neurologist said he was learning from me because he only has had a couple people come to him with the issue.
Hello, I have suffered from this condition for over 2 years, and it is ruining my life! I have tried many medications, acupuncture, chiropractors, dermatologists, neurologists and even doctors who have told me it is all in my head! Lyrica and Cymbalta mostly keep it at bay, but every so often it flares up, and then I need to basically shut down. I could do that with Benadryl, ice packs and an occasional glass of wine and cancelling whatever plans or work I had to do. Unfortunately, I have plateaued out on Benadryl, so all I can depend on are my ice packs. I am at my wits end! I live near Boston, home of some of the best hospitals in the world – you'd think they would be able to help me! I'd be happy to hear from anyone. Mannix
Mannix, They have found with me it's caused by the nerves in your neck. They have done a nerve block in my neck. If you will read on down in the comments you will see the explinations of the procedures they have done to me to relieve my symptoms
Ive been using wintergreen rubbing alcohol. It makes it stop temporarily. It drives me crazy in the night & I need relief.
Have you tried a cbd cream. Worked great for me
So I had the nerve block done around March 15th and I got a sunburn on the upper area of the arms and it seemed to slightly trigger the symptoms again in that area. I still get to sleep in the bed but woke up the other morning where I had scratched sometime in the night and caused a lot of bleeding again. Since he sunburn has gone so has the itching again gone. Next dose of the block can't be done till mid June by what the Dr told me.
Hi all, thank you for sharing your stories in this discussion, including what has or hasn't worked to treat your brachioradial pruritus. I thought it would be a great time to check in with everyone and see how they are doing.
@justmiserable, how are you doing nearly 90 days after your nerve block? Are your symptoms still decreased?
@quiteachiver75 with the temperature increasing as we get deeper into summer how are you feeling? Has the itching continued to get worse?
@enoughalready are your visits to the chiropractor still successful in stopping the itch?
@needahelp how are you doing with the cymbalta and PT? Still working?
I’m taking cooler showers & Cymbalta (30mg) daily. The only time that I’ve had trouble is from too warm showers or putting lotion & sometimes sunscreen. Zyrtec seems to help when the itching starts .
I eliminated ice packs last December after resuming Lexapro, but continued with a compounded cream recommended by itch specialists at Hopkins. After getting saturated with the right kind and dose of liquid magnesium, and some PIT injections, I cut back to 10 mg. of Lexapro and no longer need the cream. Last stage will be eliminating the Lexapro all together, which I am going to try this summer.
I also started a ketogenic diet in February – mainly reducing carbs – I have always eaten whole foods. I don’t take any meds and only a few supplements. I mostly listen to Dr. Carolyn Dean, MD for the best advice on nutrition and good health.
There is a way to beat this problem!!
version 18.104.22.168.2.1Page loaded in 1.538 seconds