Hi @cairo20, I'm tagging @kathrynmc@sandielegal@pameladstone, who are women with experience with bladder cancer. I'm not sure if any of them had neobladder surgery or if they have experience with incontinence to share.
I'm sorry that you're still dealing with significant incontinence. Daytime incontinence can take 6-12 months to improve. Were pelvic floor exercises suggested for you?
Yes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
Immune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
Yes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
Lest I sound to negative, I have few symptoms, otherwise good health, met a lot of terrific people in the cancer fight, and have not been unable to do things. I am not running the high hurdles, but then I never did😮
Hi @cairo20, I'm tagging @kathrynmc@sandielegal@pameladstone, who are women with experience with bladder cancer. I'm not sure if any of them had neobladder surgery or if they have experience with incontinence to share.
I'm sorry that you're still dealing with significant incontinence. Daytime incontinence can take 6-12 months to improve. Were pelvic floor exercises suggested for you?
Immune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
Surgery”blue light” biopsy on April 24. Good news: I get a two-fer. They will do some TURP work which is needed (again!) as well as cancer cell hunting. Best case: the dye lights up cells in situ, we do some more chemo. Worst case: they find nothing, yet bad cells still show up in urine and they determine I am a Martian.
Hi everyone. I was newly diagnosed with hi grade aggressive bladder cancer in August of 2022. It was noninvasive. I had a TURP removal of the tumor followed by 6 weeks of BCG treatments. Then a cystoscopy and another small cancerous bladder tumor. March 3, 2023 had surgery to remove the 2nd smaller tumor which was still noninvasive. I am currently waiting to undergo a 2nd round of BCG. If cancer returns Doctor wants me to go to Dana Farber in Boston for further treatment. I am an 80 year old female and never saw any of this coming my way. It was an incidental finding on a CT Scan for diverticulitis initially. I had no bladder symptoms. So that is where I am right now. Any comments I would greatly appreciate. My name is Leslee.
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How were the cancer cells detected?
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1 ReactionYes
Started them immediately after catheter was removed. Seeing a 2nd Physical Therapist who specializes in Pelvic Floor exercises.
I’m still hopeful but it’s been 6 months and it doesn’t seem to make any difference 😞
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Hug
1 ReactionImmune therapy did not work at all, been thru two years chemo, and that left me clear for only a year. Dye biopsy surgery will reveal if it’s still in situ, as it has always been thus far.
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1 Reaction6 years ago, blood in urine led to my discovery
Cancer is a journey; mine is in the 7th year.
Lest I sound to negative, I have few symptoms, otherwise good health, met a lot of terrific people in the cancer fight, and have not been unable to do things. I am not running the high hurdles, but then I never did😮
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1 ReactionI did not have bladder cancer personally, my sister did.
@bruceb, any update from the biopsy? How are you doing?
Surgery”blue light” biopsy on April 24. Good news: I get a two-fer. They will do some TURP work which is needed (again!) as well as cancer cell hunting. Best case: the dye lights up cells in situ, we do some more chemo. Worst case: they find nothing, yet bad cells still show up in urine and they determine I am a Martian.
-
Like -
Helpful -
Hug
2 ReactionsHi everyone. I was newly diagnosed with hi grade aggressive bladder cancer in August of 2022. It was noninvasive. I had a TURP removal of the tumor followed by 6 weeks of BCG treatments. Then a cystoscopy and another small cancerous bladder tumor. March 3, 2023 had surgery to remove the 2nd smaller tumor which was still noninvasive. I am currently waiting to undergo a 2nd round of BCG. If cancer returns Doctor wants me to go to Dana Farber in Boston for further treatment. I am an 80 year old female and never saw any of this coming my way. It was an incidental finding on a CT Scan for diverticulitis initially. I had no bladder symptoms. So that is where I am right now. Any comments I would greatly appreciate. My name is Leslee.
-
Like -
Helpful -
Hug
2 Reactions