Hello everyone, maybe I'm just here to talk to someone, so excuse me if the story is long Twelve years ago, my husband was diagnosed with bladder cancer in his home country, Syria. It's in the Middle East. He didn't know a cancer patient because his brother had kept that secret from him. On the basis that it is a normal mass, even the doctor did not inform him under his brother’s instructions. After the diagnosis, he traveled to Canada a Year After , symptoms appeared, and he went to the doctor, and he was treated first with chemotherapy, and then a Dr. decide removing the bladder with the prostate, but now, after ten years, appearing in the body during the examinations, a lump appeared in the ureter and decided The doctors removed the ureters because the mass made a blockage of the kidneys, so they decided to remove them, and there is no spread in the body. My question is, is it possible that it will spread soon, or what is this stage for him? Because I searched for a case similar to his, and I did not find it. Thank you, even if you could not answer me, I just need some support
Hi everyone. I was newly diagnosed with hi grade aggressive bladder cancer in August of 2022. It was noninvasive. I had a TURP removal of the tumor followed by 6 weeks of BCG treatments. Then a cystoscopy and another small cancerous bladder tumor. March 3, 2023 had surgery to remove the 2nd smaller tumor which was still noninvasive. I am currently waiting to undergo a 2nd round of BCG. If cancer returns Doctor wants me to go to Dana Farber in Boston for further treatment. I am an 80 year old female and never saw any of this coming my way. It was an incidental finding on a CT Scan for diverticulitis initially. I had no bladder symptoms. So that is where I am right now. Any comments I would greatly appreciate. My name is Leslee.
You might want to check on Natera. They take a DNA test on your previous cancer biopsy and after that, you can do a simple blood test to determine recurrance. FDA approved. Far less invasive than surgery. These DNA tests are becoming more common. MAYO has the Galleri test which looks for up to 50 different cancers.
Cancer cells have a way of hiding and may become resistant to chemotherapy only to appear again later.
You might want to look at taking 95% standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day. It is know to reduce side effects of treatment. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277549/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.
My husband had multiple TUR procedures over a two year time period and at every recheck there was another spot to either watch or biopsy. While I know of others who have done this for over 10 years as an acceptable method of controlling their bladder cancer, that was not how my husband wanted to live his life....hence the neobladder surgery. Perhaps with a low grade tumor they would not reappear with such frequency? When tumors returned while on BCG maintenance therapy, he was considered a BCG failure so no more. Good luck to you and your husband.
While your husbands surgery was his choice, I believe it was a wise choice. My husband had a TUR procedure, and one year of BCG treatments. After treatments were complete, he had only 1 maintenance BCG before a very large mass was found into the wall and muscle. At that point, his only option was bladder removal and there's a chance it was a step taken too late. From what I've experienced, those with bladder cancer, especially if an aggressive type, should head right to removal unless the surgery itself is too risky due to other health concerns. Early action would remove the risk of cancer spreading from the bladder, which can happen in a very, very short time. The surgery is a major one, but easier recovery for a healthy person than a person who is ill, and it removes the threat of spreading. We changed doctors since BCG treatments; at some point I intend to discuss this our current urologist. Although I'm not a dr, it was something I pondered earlier and now wish I had questioned. Maybe it's a choice others could benefit from.
After cancer cells detected in bladder was urine, I underwent biopsy surgery PLUS needED TURP. They washed kidneys, ureters, etc. Found nothing. So now science has NO more detecting procedures. I am simply waiting for something unknown. This is at top urology dept. in the midwest. Cells were real, present, double checked. Yes, did BCG, chemo. No symptoms, feel fine. Good news? Define “good.”
After cancer cells detected in bladder was urine, I underwent biopsy surgery PLUS needED TURP. They washed kidneys, ureters, etc. Found nothing. So now science has NO more detecting procedures. I am simply waiting for something unknown. This is at top urology dept. in the midwest. Cells were real, present, double checked. Yes, did BCG, chemo. No symptoms, feel fine. Good news? Define “good.”
My husband is going for cystoscopy after 2nd TURBT and 2nd round of BCG(12 total). If he is clear, would he likely be advised to have maintenance BCG started? Thanks.
Connect
Connect
Like
Helpful
Hug
Hello everyone, maybe I'm just here to talk to someone, so excuse me if the story is long Twelve years ago, my husband was diagnosed with bladder cancer in his home country, Syria. It's in the Middle East. He didn't know a cancer patient because his brother had kept that secret from him. On the basis that it is a normal mass, even the doctor did not inform him under his brother’s instructions. After the diagnosis, he traveled to Canada a Year After , symptoms appeared, and he went to the doctor, and he was treated first with chemotherapy, and then a Dr. decide removing the bladder with the prostate, but now, after ten years, appearing in the body during the examinations, a lump appeared in the ureter and decided The doctors removed the ureters because the mass made a blockage of the kidneys, so they decided to remove them, and there is no spread in the body. My question is, is it possible that it will spread soon, or what is this stage for him? Because I searched for a case similar to his, and I did not find it. Thank you, even if you could not answer me, I just need some support
-
Like -
Helpful -
Hug
3 ReactionsHang in there. Monday I have biopsy surgery scheduled for recurrance. They do not know where cells are coming from. Hoping for a clear path ahead.
-
Like -
Helpful -
Hug
2 ReactionsYou might want to check on Natera. They take a DNA test on your previous cancer biopsy and after that, you can do a simple blood test to determine recurrance. FDA approved. Far less invasive than surgery. These DNA tests are becoming more common. MAYO has the Galleri test which looks for up to 50 different cancers.
-
Like -
Helpful -
Hug
1 ReactionUniversity Of Iowa. Investigate and ask about GemDoce chemo bladder infusions. Research Dr. Mike O'Donnel research on Gem Doce treatment.
Cancer cells have a way of hiding and may become resistant to chemotherapy only to appear again later.
You might want to look at taking 95% standardized curcumin wit black pepper extract to both help recovery and possibly inhibit reccurrance, I would reccomend 1000 mg doses posssibly more than once a day. It is know to reduce side effects of treatment.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6277549/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5840955/
Also "timed release" vitamin C is helpful for building the immune system.
While your husbands surgery was his choice, I believe it was a wise choice. My husband had a TUR procedure, and one year of BCG treatments. After treatments were complete, he had only 1 maintenance BCG before a very large mass was found into the wall and muscle. At that point, his only option was bladder removal and there's a chance it was a step taken too late. From what I've experienced, those with bladder cancer, especially if an aggressive type, should head right to removal unless the surgery itself is too risky due to other health concerns. Early action would remove the risk of cancer spreading from the bladder, which can happen in a very, very short time. The surgery is a major one, but easier recovery for a healthy person than a person who is ill, and it removes the threat of spreading. We changed doctors since BCG treatments; at some point I intend to discuss this our current urologist. Although I'm not a dr, it was something I pondered earlier and now wish I had questioned. Maybe it's a choice others could benefit from.
-
Like -
Helpful -
Hug
3 ReactionsAfter cancer cells detected in bladder was urine, I underwent biopsy surgery PLUS needED TURP. They washed kidneys, ureters, etc. Found nothing. So now science has NO more detecting procedures. I am simply waiting for something unknown. This is at top urology dept. in the midwest. Cells were real, present, double checked. Yes, did BCG, chemo. No symptoms, feel fine. Good news? Define “good.”
bladder wash, that is.
Surgery used state of art blue light detection using dye.
My husband is going for cystoscopy after 2nd TURBT and 2nd round of BCG(12 total). If he is clear, would he likely be advised to have maintenance BCG started? Thanks.
-
Like -
Helpful -
Hug
1 Reaction