Bladder Cancer Group: Introduce yourself and connect with others

Welcome to the Bladder Cancer support group on Mayo Clinic Connect.

This is a welcoming, safe place where you can meet people living with bladder cancer or caring for someone with bladder cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

Feel free to browse the topics, use the group search to find answers to your questions or start a new discussion.

Pull up a chair. Let’s start with introductions.

What type of bladder cancer were you diagnosed with? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

No. BCG has a finite duration.

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Profile picture for charlessomervill @charlessomervill

@talltxlady
What month intervals for BCG follow-ups?

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Hello @charlessomervill after induction (first 6 weeks) mine were always once a week for 3 weeks, every 3 months. At the very end one time I got a 6 month break, but otherwise it was quarterly for 3 total years for me.

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My name is Linda Marlin from Columbus, Ohio, 75 years of age. I had three tumors in my bladder, one of which was a low grade non-invasive carcinoma. I had surgery and then had treatments via catheter every Friday for 6 weeks and completed the treatment October 31, 2025 with a follow-up cystoscope scheduled for December 17.

I joined this group to learn more about this cancer and risks of reoccurrence. I never had any symptom. My primary physician was concerned with my lab results showing a trace of blood in my urine which was totally unrelated to the cancer and he ordered a Urogram, sent me for a cystoscope and lo and behold three tumors.

Linda Marlin

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Hi, I'm Charles Somervill. I've had two surgeries, intermediate stage for both. I finally took BCG after the second; resisted the first. All clear after 6 weeks. I'm now scheduled for BCG, 3 month intervals, for 3 weeks at a time. I wonder whether longer intervals are common and advisable?

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Profile picture for talltxlady @talltxlady

Good morning @lannak. I recently had my cystoscopy which came back clean. Got my next semi-annual cysto scheduled for 6 months out. Doctor said if next cysto comes back good I will be at the 5 year mark at that point and can start doing annual cystoscopys instead of semi-annual. I also took 3 full years of BCG treatments.

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@talltxlady
What month intervals for BCG follow-ups?

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My name is Charles Somervill. I've had two tumor surgeries. I decided to go ahead and take BCG after the second. I'm now scheduled to take BCG for three weeks after a three month period. Does this schedule typically go on for a lifetime?

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Profile picture for jrappster @jrappster

Hi my name is Jeff
I have a Transurethral resection of bladder tumor scheduled for December 5th
At this point not sure of type of cancer or safety of the procedure to remove the tumor

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@jrappster, Hi Jeff. To help you prepare for your upcoming transurethral resection of bladder tumor (TURBT), you might be interested in these related discussions and ask any questions you may have:
- Bladder Tumor Scraping: What is recovery from TURBT like?https://connect.mayoclinic.org/discussion/turbt-first-time-for-husband-with-bladder-tumor/
- How soon can one fly after TURBT? What is needed for at home care?https://connect.mayoclinic.org/discussion/turbt-procedure/

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Hi, I have had my liung cancer sorted and now moving on to have bkaðer cancer sorted.was to be BCG but whilst fixing lungs has now become muscle invasive so going for radiotherapy. Unfortunately this now on hold as found that can not empty bladder for CT scan so havingvto have treatment. What a Palaver

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Hi, I was diagnosed with BC 5 months ago, had 2 Turbs for total removal/resection of malignant tumors and then after 6 weeks started my treatment and just finished my 6 weeks/times BCG inductions.
Firstly was low grade pta type and then doctor said it might be intermediate type

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Profile picture for Colleen Young, Connect Director @colleenyoung

@jr1466, Welcome. How is the recovery from the TURBT going?

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@colleenyoung Hi! Overall pretty smooth recovery after 17 days. Small blood clot maybe once a day and occasional “rust” in the bathroom, especially overnight. But nothing unexpected.

Have learned that finding a good hydration level is really important. I was doing a 20-ounce water/Gatorade every two hours but was feeling like it was flooding the system a bit, so I backed it off to a bottle every three hours and that’s been a good pace for me.

At Mayo today in preparation for BCG starting in December.

Hope everyone in the US has a nice Thanksgiving!

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