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Bladder Cancer Group: Introduce yourself and connect with others
Bladder Cancer | Last Active: 1 day ago | Replies (538)Comment receiving replies
Husband diagnosed with high grade bladder cancer. Has had BCG treatments and surgery to remove a tumor. Just recently informed that microscopic urine test was still positive for cancer cells. Scope indicated another tumor. Been doing a lot of reading, research etc about ileal conduit and neo bladder. Would very much like to hear from someone that has had bladder and prostate removed and which procedure those chose.
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@ronniek check out this link to a recent discussion of this topic. https://connect.mayoclinic.org/discussion/neobladder-or-ileal-conduit-unsure/
My husband had cystectomy/prostatectomy/neobladder surgery at Mayo Clinic 5 years ago. We spent 2 years dealing with complications from the surgery. Others have had much better experiences. He is still satisfied that he made the right choice. He must self catheterize due to scar tissue but that became routine pretty quickly. Continence is good with minimal leakage only at night. He just did not want to deal with a stoma.